About Crying Over Spilt Milk / GRSNNZ

GASTRIC REFLUX SUPPORT NETWORK NEW ZEALAND FOR PARENTS OF INFANTS AND CHILDREN CHARITABLE TRUST (GRSNNZ)

 

MISSION STATEMENT

GRSNNZ is committed to provide support and information to families caring for infants and children with gastric reflux throughout NZ.
GRSNNZ offers moral support, coping techniques, and endeavours to provide up to date information.
GRSNNZ intends to support parents to learn skills to cope with infant gastric reflux, and the effects it has on their families and lives.
GRSNNZ’s purpose is to hand back confidence to parents and guardians, and highlight the great work they do at home.
GRSNNZ will provide education to parents, families, communities and health professionals.

GRSNNZ believes that families living with Infant Gastric Reflux have the right to:
Support
Safe up to date Information
Confidentiality
Guidance to access community services
Contact with other parents and staff who understand

Phone/Text 022 585 5935
Phone: 0800 380 517

(The most efficient way to speak to one of the Gastric Reflux Support Network NZ staff is to text a message to 022 585 5935. Include your name, phone numbers or email and a brief explanation of why you are contacting us. We will contact you as soon as possible.)

For local support networks nationwide click here

Board of Trustees
Chair

Mrs. Nicoll
Mrs. Ballantyne
Mrs. Mackrell-Pearson
Mrs. Devine
Ms. McAlister
Sub Committee
Funding

Mrs. Ballantyne
Mrs. DevineAdvisory Forum
*Roslyn Ballantyne, RN, GRSNNZ Researcher, Writer, Website Manager and National Coordinator South Island
*Dr Rodney Ford, Paediatrician, GRSNNZ Medical Reviewer
*Jennifer Howard, Trained Community Karitane, Diploma Natural Therapies, Diploma Child Psychology, Parent Educator/Facilitator for Sport Waikato, GRSNNZ National Coordinator 2001 – 2013
*Rochelle Wilson, GRASP National Co-Coordinator 1995 – 2001, GRSNNZ Researcher and Advisor
*Fiona Kenworthy, Speech-Language Therapist, Child Development, Counties Manukau, Auckland University, Clinical Tutor, GRSNNZ AdvisorUpdated September 2013

Structure

National Office Staff
National Coordinator
Roslyn Ballantyne
Website Design and Maintenance
Roslyn BallantyneMessage Board Moderators
Roslyn Ballantyne
GRSNNZ Moderator (appointed)
Facebook Page Moderators
GRSNNZ Board of Trustees
Local Support Networks Supervisor
Roslyn BallantyneAdvertising
Mrs. Devine
Roslyn Ballantyne
Mrs. Mackrell-PearsonNewsletter Editors
Roslyn Ballantyne
GRSNNZ Board of Trustees

To become a member of GRSNNZ please complete this form: GRSNNZ Membership & Confidentiality Agreement Form. Becoming a member of GRSNNZ helps indicate the number of families coping with reflux within New Zealand and the problems or issues encountered. Membership is free.

Newsletters are sent to GRSNNZ members and like the information contained in Crying Over Spilt Milk is prepared for New Zealand residents.


Crying Over Spilt Milk WEBSITE INFORMATION

(This website (Crying Over Spilt Milk) belongs to, and is responsible to, the GRSNNZ Board of Trustees.)

Address: www.cryingoverspiltmilk.co.nz

MANAGER:
Roslyn Ballantyne
- Registered Nurse (RN) working part-time as a B4 School Check Provider, National Coordinator, GRSNNZ and mother of three including one child with GORD aged 13 years.

INFORMATION
The information contained in this site is from a variety of sources including G.R.A.S.P who have given us permission to use and edit their articles to stay relevant with current treatment and knowledge. Please see the source/author for each article, and be aware that many will have been written by parents from their own experience.
The information provided on this site should be considered to support and complement the relationship that exists between a patient and their physician, but not replace it. Information contained here is intended for New Zealand residents, but may be useful for residents of other countries. Please be aware that medication contents and names may differ in other countries, as may recommended treatment.

HISTORY
The original msn website “Infant Gastric Reflux Stories (NZ)” was created in March 2002 when the need for a permanent place for information became apparent to back up the reflux discussion board at “everybody” which had commenced in October 2001. In August 2003 IGRS became part of the Gastric Reflux Support Network New Zealand for Parents of Infants and Children Charitable Trust (GRSNNZ).
February 2004 GRSNNZ registered their own domain name and IGRS moved to www.cryingoverspiltmilk.co.nz making access easier and the address easily remembered by any parent of a baby with gastric reflux. The website has now been renamed Crying Over Spilt Milk to bring it into line with the web address, and is easily recognised by our crying baby. In 2013 discussion boards at “everybody” moved to a new location and are how hosted by Kiwi Health, Pregnancy & Parenting.

FUNDING
Crying Over Spilt Milk is mostly operated on a voluntary basis, but GRSNNZ is partially funded by the Lottery Grants Board. Some advertisements are provided for members’ benefits and in reciprocal agreements.  Advertisements have no influence on the editorial content of Crying Over Spilt Milk and are labelled as ”Advertisements”.  If you have any concerns regarding the suitability of an advert please use the contact form to advise the Website Manager of this, including the nature of the ad.

GRASP ACKNOWLEDGMENT
Gastric Reflux Association For The Support Of Parents/Babies (GRASP) was a support group that has ceased to operate and was a great source of information and support from people who had experience in this area. When GRASP closed in May 2001 they forwarded a pack to health professionals to help them support and inform families with babies/children with gastro-oesophageal reflux. GRSNNZ has since taken over some of the previous role of GRASP.

Written by Roslyn Ballantyne, National Coordinator and GRSNNZ Board of Trustees for © Crying Over Spilt Milk Gastric Reflux Support Network New Zealand for Parents of Infants and Children Charitable Trust 2013.

  • Hi. My boy is 6.5 wks. He started screaming at 3 wks. Became unsettled for periods of up to nearly 12hrs without sleep. He's been on formula as my milk never came in. He gets about 100-200 ml breastmilk /dy I pump. He started spilling/vomiting a lot at 4.5wks old.started losec 9 dys ago-frm GP. Saw paediatriciAn 4 dys ago and started amino acid formula to check for CMA. I feel things improved a bit about 4 dys after losec started. Also he seemed great once on th amino acid formula but thn yesterday was his old really bad self - fussed all day 10am-4pm thn really distressed n frantic 4-9pm. He's been ok today.i also started adding karicare thickener 2 dys ago. His first poo day after starting amino acid formula was soft n ok but I thnk he might b constipated with th thickener. He really had to push to get yesterday's out n was very sticky. Anyone else experience this? What do you do? I've heard lactulose and prune juice etc can make reflux/ wind worse. I thought about halving th amt thickener I'm using.also his vomiting better on th new formula I think but still occasional. He vomited Sunday night n mayb brought th losec up- could 1 missed dose like thts make him bad th next day like he was? Any opinions greatly appreciated

  • Please consider joining Gastric Reflux Support Network NZ for Parents of Infants and Children Charitable Trust for access to our Newsletters and Private Local and National Support Networks: http://www.reflux.cryingoverspiltmilk.co.nz/grsnnz-membership-confidentiality-agreement-form/ Membership is free, and this gives you opportunities to discuss gastric reflux related issues with others in a safe and confidential setting. If you have completed a membership form previously, but never received anything further, please message me (Roslyn Ballantyne at https://www.facebook.com/roslyn.ballantyne.rn ) or comment below. The membership sign-up had been a double opt-in with a confirmation email, but as some people have had trouble with this, I've now changed it to a single opt-in. (I do still need to process applications and add you manually to your Local Support Networks though.)

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    Gastric Reflux Support Network NZ for Parents of Infants & Children Charitable Trust Membership & Confidentiality Agreement Form / Newsletter Admin PageFirst NameLast nameEmailStreet AddressCity/TownAreaPostcodeDo you live in NZ?Country and Area if not NZHome Phone (include area code)Partner's NameE…

  • Hi I'm a bit confused. I filled out th membership form on th cryingspiltmilk main page. Do I need to do anything else? I see there's a forum somewhere else - kiwi health or something? Or do I just post n use this Facebook page? I'm thnking you hav th older site but most people jst use this Facebook page now yeah? Ta :) I hav a 6 wks old beautiful boy who has been in so much pain been breaking my heart but I'm jst getting things in motion now to help I thnk. Saw paediatriciAn few dys ago n hav started losec gaviscon mylanta and amino acid formula with karicare thickener

  • Hiya, I'm starting to introduce solids to my almost 6 month old and just wondering if there are any foods that any of you have found to be better than others and which ones to avoid? TIA. :-)

  • Other information here: http://www.lalecheleague.org.nz/news-a-events/lllnz-conference-2014/312-lllnz-50th-anniversary-conference-2014

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  • Anyone want to help? I know you all have plenty to say. ;-)

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    And just in case you missed the post and the opportunity to help others through.........In five words, no more no less, share some inspirational advice to parents that are struggling with a newborn suffering from colic, reflux and inconsolable crying. If there are enough submissions I will post these on my website and perhaps in my book - Prevent and Remedy Colic, Reflux, Lactose and Dairy Overload Naturally - which is off to the proof readers this week!! http://www.naturalwinding.com/book/

  • A new story: http://www.cryingoverspiltmilk.co.nz/ryans-story-of-reflux-and-christinas-story-of-pnd/ Thank you, Christina.

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    I don’t really know where to begin with my story of Ryan and his reflux, and me with Post Natal Depression. I used to feel very sad thinking of all the precious time that was robbed from us. I loved Ryan from the moment I saw him, and he was a dream baby up until two weeks of age. ...

  • Hi my 7 week old, breastfed baby started showing signs of reflux recently so I went to the GP and was prescribed Gaviscon sachets. I'm having trouble giving it to her, but it seems to be working. She usually goes poos after every feed but since starting the Gaviscon (monday) she has only been once. She strains and cries. Not sure what i safe to give her to help as she is so young? Thanks

  • Hi there My 8 week old boy is formula fed and is now trialing gaviscon for his silent reflux, already I feel like it is making a difference but I am worried about the possible constipation the gaviscon may cause...how do you parents relieve constipation in young babies? I know about the cooled boiled water but are there any other remedies that are worth knowing about? Or tricks that can maybe help avoid constipation?

  • Hi, would you say it's a reflux symptom to bring up small vomits between feeds? Like an hour or so after eating? I keep being told that's normal, but it doesn't feel normal? My baby is only 4 weeks old though, so it's hard to me to tell what's normal and what isn't.

  • Hi, my 10 week old is trialling gaviscon to see if it helps with her (potential) reflux. She isnt a miserable baby, but she does scream if I put her down in the daytime, she has a persistent cough, a husky voice (this developed over the last week), and she spills even hours after a feed. Does this sound like reflux? If so, how do I get her to keep the gaviscon down? It says to give it to her after a feed, but she vomits straight after a feed...also is it worth going dairy free to see if this helps? Finding the spilling and coughing and husky voice quite upsetting, it must be horrible for her :(

  • Here is an amazing article about using probiotics and digestive enzymes to help with reflux. I only found this after I had my second reflux baby and he was 4 months old. Our first son had an endoscopy when he was 12months, which revealed extremely low digestive enzymes in his stomach. So when losec and ranitidine didn't provide much relief for our new baby, we presumed he was the same. We put him onto probiotics and enzymes and have had great results. Worth a read if you are interested. Feel free to message me for any more info (iv been researching it ever since!)

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    What I found to help! I am not claiming to cure or diagnose anything!

  • Good on you team for creating an awareness week and getting all of the publicity. So proud of those who have shared their stories. They have all had me in tears, partly because it triggers memories and partly because reading about those who have been without medical support just makes me so sad. Plunket nurses should be required to read about the symptoms of reflux and some real life stories as part of training. So should midwives actually.