GASTRIC REFLUX SUPPORT NETWORK NEW ZEALAND FOR PARENTS OF INFANTS AND CHILDREN CHARITABLE TRUST (GRSNNZ)
GRSNNZ is committed to provide support and information to families caring for infants and children with gastric reflux throughout NZ.
GRSNNZ offers moral support, coping techniques, and endeavours to provide up to date information.
GRSNNZ intends to support parents to learn skills to cope with infant gastric reflux, and the effects it has on their families and lives.
GRSNNZ’s purpose is to hand back confidence to parents and guardians, and highlight the great work they do at home.
GRSNNZ will provide education to parents, families, communities and health professionals.
GRSNNZ believes that families living with Infant Gastric Reflux have the right to:
Safe up to date Information
Guidance to access community services
Contact with other parents and staff who understand
Phone/Text 022 585 5935
Phone: 0800 380 517
For local support networks nationwide click here
|Board of Trustees
Mrs. DevineAdvisory Forum
*Roslyn Ballantyne, RN, GRSNNZ Researcher, Writer, Website Manager and National Coordinator South Island
*Dr Rodney Ford, Paediatrician, GRSNNZ Medical Reviewer
*Jennifer Howard, Trained Community Karitane, Diploma Natural Therapies, Diploma Child Psychology, Parent Educator/Facilitator for Sport Waikato, GRSNNZ National Coordinator 2001 – 2013
*Rochelle Wilson, GRASP National Co-Coordinator 1995 – 2001, GRSNNZ Researcher and Advisor
*Fiona Kenworthy, Speech-Language Therapist, Child Development, Counties Manukau, Auckland University, Clinical Tutor, GRSNNZ AdvisorUpdated September 2013
|National Office Staff
Website Design and Maintenance
Roslyn BallantyneMessage Board Moderators
GRSNNZ Moderator (appointed)
Facebook Page Moderators
GRSNNZ Board of Trustees
Local Support Networks Supervisor
Mrs. Mackrell-PearsonNewsletter Editors
GRSNNZ Board of Trustees
To become a member of GRSNNZ please complete this form: GRSNNZ Membership & Confidentiality Agreement Form. Becoming a member of GRSNNZ helps indicate the number of families coping with reflux within New Zealand and the problems or issues encountered. Membership is free.
Newsletters are sent to GRSNNZ members and like the information contained in Crying Over Spilt Milk is prepared for New Zealand residents.
Crying Over Spilt Milk WEBSITE INFORMATION
(This website (Crying Over Spilt Milk) belongs to, and is responsible to, the GRSNNZ Board of Trustees.)
Roslyn Ballantyne - Registered Nurse (RN) working part-time as a B4 School Check Provider, National Coordinator, GRSNNZ and mother of three including one child with GORD aged 13 years.
The information contained in this site is from a variety of sources including G.R.A.S.P who have given us permission to use and edit their articles to stay relevant with current treatment and knowledge. Please see the source/author for each article, and be aware that many will have been written by parents from their own experience.
The information provided on this site should be considered to support and complement the relationship that exists between a patient and their physician, but not replace it. Information contained here is intended for New Zealand residents, but may be useful for residents of other countries. Please be aware that medication contents and names may differ in other countries, as may recommended treatment.
The original msn website “Infant Gastric Reflux Stories (NZ)” was created in March 2002 when the need for a permanent place for information became apparent to back up the reflux discussion board at “everybody” which had commenced in October 2001. In August 2003 IGRS became part of the Gastric Reflux Support Network New Zealand for Parents of Infants and Children Charitable Trust (GRSNNZ).
February 2004 GRSNNZ registered their own domain name and IGRS moved to www.cryingoverspiltmilk.co.nz making access easier and the address easily remembered by any parent of a baby with gastric reflux. The website has now been renamed Crying Over Spilt Milk to bring it into line with the web address, and is easily recognised by our crying baby. In 2013 discussion boards at “everybody” moved to a new location and are how hosted by Kiwi Health, Pregnancy & Parenting.
Crying Over Spilt Milk is mostly operated on a voluntary basis, but GRSNNZ is partially funded by the Lottery Grants Board. Some advertisements are provided for members’ benefits and in reciprocal agreements. Advertisements have no influence on the editorial content of Crying Over Spilt Milk and are labelled as ”Advertisements”. If you have any concerns regarding the suitability of an advert please use the contact form to advise the Website Manager of this, including the nature of the ad.
Gastric Reflux Association For The Support Of Parents/Babies (GRASP) was a support group that has ceased to operate and was a great source of information and support from people who had experience in this area. When GRASP closed in May 2001 they forwarded a pack to health professionals to help them support and inform families with babies/children with gastro-oesophageal reflux. GRSNNZ has since taken over some of the previous role of GRASP.
Written by Roslyn Ballantyne, National Coordinator and GRSNNZ Board of Trustees for © Crying Over Spilt Milk Gastric Reflux Support Network New Zealand for Parents of Infants and Children Charitable Trust 2013.
The December Newsletter is due out. Is there anything that you want to see in it? Is there anything you want to contribute? A tip or a story?
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Hi Ladies, my 12 week old has silent reflux, was put on neocate with suspected milk intolerance but symptoms never went away untill we suspected reflux was put on gaviscon, helped alot, still wouldnt sleep in the day would wake crying so was put on losec, been on this for three weeks and stil no improvement. And he has started to spill now with every feed. Im wondering if the neocate isn't right for him and considering normal formula. Or would that make things worse?? Any ideas :) Thanks
Did you know that gastro-esophageal reflux disease can present as a behaviour disturbance?
Hi, im after some advice/help. I have a 7 week old son that has been diagnosed with servere reflux and colic.( he also has a upper lip tie and doesnt feed well anyway) We were prescribed infant gavison to help with the reflux but it has blocked him up horrendously. we were told to stop it and have been given a laxative to help clear him out. yesterday the doctor was talking about prescribing him an entensively hydrolysed formula (pepti Junior) and trialing before we can look at the Neocate as she thinks he may have a cows milk allergy. Today she has rung and said there is a new formula out from Karicare. Its called Karicare Plus comfort which is partially hydrolysed. And that i need to pick one and trial it. Im so confused and googling all this info has confused me even more. HELP PLEASE
Hi ladies, is it ok to give a reflux baby infacol wind drops?? Or will it make his reflux worse??? Thanks
The most efficient way to speak to one of the Gastric Reflux Support Network NZ staff is to text a message to 022 585 5935. Include your name, phone numbers or email and a brief explanation of why you are contacting us. We will contact you as soon as possible. Gastric Reflux Support Network NZ for Parents of Infants and Children Charitable Trust (GRSNNZ) appreciates your donations so that we can continue to support families coping with gastric reflux. http://www.givealittle.co.nz/org/GRSNNZ
Can you get samples of Neocate or similar from anywhere?
Does anyone know if there is any kind of parents support page for kids with allergies? Sorry not entirely reflux related but since they often go hand in hand thought id ask here. Thanks :)
The most efficient way to speak to one of the Gastric Reflux Support Network NZ staff is to text a message to 022 585 5935. Include your name, phone numbers or email and a brief explanation of why you are contacting us. We will contact you as soon as possible.
Hi there, I have just today searched for & found your page as I am desperate to find some relief for my 7.5 week old who is in pain & discomfort. My 7 week old was born 4weeks early via c-section & we are seeing a cranio-osteopath for a number of the interventions she needed during & post birth. After the last 2 treatments she has what seems like reflux symptoms, last time (3 weeks ago) was for 6 days, this time we are on day four. She screams for hours after feeds in pain, no holding position really works better than others, we just fluke a good position which may only offer a few minutes relief or she goes into an exhausted pained sleep. She can't sleep on her back in bed during the day (have tried propping it) so I either put her on her tummy (works sometimes) or hold her upright tummy to tummy at varying degrees on me in the ring sling, we need to sleep like that at night sometimes too. She used to wind well & was spilly at times but it didn't seem like an issue. Now she often doesn't burp or spill at all, gets tense & upset instead. Also her saliva gets so thick & it sounds like she's choking & struggling to breathe past it in her throat. I have tried shorter feeds more often but it doesn't really help - and how does this work if she is screaming for 2-3+ hours (more feeding makes it worse) then going to sleep? How will she get enough if every feed is smaller? I don't want to wake her as it all starts again & we both need to recharge too. Any advice much appreciated, I don't know what to do for her & it's so distressing!
http://www.medscape.com/viewarticle/812388?nlid=35583_2047&src=wnl_edit_medn_peds&uac=76049AV&spon=9 :-) - Conclusion is also that it is likely to do no harm either.
Studies vary too widely in products and dosages used to permit definitive conclusions, investigators say.
HAMILTON people - how many of you are out there and reading this post??? I'm just replying to a message regarding our COGS Funding Application for the Hamilton area. As our Trust has just moved from the Hamilton area to the Canterbury area, they want to know how many people we are supporting in Hamilton on a weekly basis. I know how many members we have in Hamilton, but of course we support more via our website and this Facebook page. Please LIKE this post if you are in Hamilton and reading this BUT only if you are in Hamilton. :-) Many thanks for your help. Roslyn National Coordinator Gastric Reflux Support Network NZ for Parents of Infants and Children Charitable Trust
Constipation with infant gaviscon...just wondering if baby's system "gets used to it"?
Sorry but need to vent...my daughter who is now 18months had a pre-op check today for her grommet procedure on Monday, met with another new doctor today who obviously only briefly read her file and noted reflux she then proceeded to check her arms and state how chubby she was and that would make inserting a drip harder and because she is reflux there is a chance the mask could make her sick - she then stated 'obviously she hasn't got bad reflux because she is still quite chubby!' um, well obviously you haven't been her doctor for the last 18months and have no idea of the ordeal the reflux actually has been fir her or our family...this made me wild! Anyone else encountered this attitude??
To my Gastric Reflux Support Network NZ email address "I am interested in buying some of your products for our clients in Manila Philippines.While surfing for some purchases online,I came across that your company stocks some of our required goods and could help provide this items..." LOL what do they want to purchase??? Screaming sounds, vomit, curdled milk, preloved stained carpets... ;-)