About Crying Over Spilt Milk / GRSNNZ

GASTRIC REFLUX SUPPORT NETWORK NEW ZEALAND FOR PARENTS OF INFANTS AND CHILDREN CHARITABLE TRUST (GRSNNZ)

Charities Registration Number: CC26780.geralt / Pixabay

MISSION STATEMENT

GRSNNZ is committed to provide support and information to families caring for infants and children with gastric reflux throughout NZ.
GRSNNZ offers moral support, coping techniques, and endeavours to provide up to date information.
GRSNNZ intends to support parents to learn skills to cope with infant gastric reflux, and the effects it has on their families and lives.
GRSNNZ’s purpose is to hand back confidence to parents and guardians, and highlight the great work they do at home.
GRSNNZ will provide education to parents, families, communities and health professionals.

GRSNNZ believes that families living with Infant Gastric Reflux have the right to:
Support
Safe up to date Information
Confidentiality
Guidance to access community services
Contact with other parents and staff who understand

Phone/Text 022 585 5935
Phone: 0800 380 517

(The most efficient way to speak to one of the Gastric Reflux Support Network NZ staff is to text a message to 022 585 5935. Include your name, phone numbers or email and a brief explanation of why you are contacting us. We will contact you as soon as possible.)

For local support networks nationwide click here

Board of Trustees and Committee
Chair

Mrs. Nicoll
Mrs. Ballantyne
Mrs. Giblin
Mrs. Devine
Ms. McAlister

Committee Member
Mrs. Hopgood

Sub Committee
Funding

Mrs. Ballantyne
Mrs. Devine

Advisory Forum
*Roslyn Ballantyne, RN, GRSNNZ Researcher, Writer, Website Manager and National Coordinator South Island
*Dr Rodney Ford, Paediatrician, GRSNNZ Medical Reviewer
*Jennifer Howard, Trained Community Karitane, Diploma Natural Therapies, Diploma Child Psychology, Parent Educator/Facilitator for Sport Waikato, GRSNNZ National Coordinator 2001 – 2013
*Rochelle Wilson, GRASP National Co-Coordinator 1995 – 2001, GRSNNZ Researcher and Advisor
*Fiona Kenworthy, Speech-Language Therapist, Child Development, Counties Manukau, Auckland University, Clinical Tutor, GRSNNZ Advisor

Updated January 2016

Structure

National Office Staff
National Coordinator
Roslyn BallantyneWebsite Design and Maintenance
Roslyn Ballantyne

Message Board Moderators
Roslyn Ballantyne
GRSNNZ Moderators (appointed)
Facebook Page Moderators
GRSNNZ Committee Members

Local Support Networks Supervisor
Roslyn Ballantyne
Local appointed GRSNNZ Members

Advertising
Mrs. Devine
Roslyn Ballantyne
Mrs. Mackrell-Pearson

Newsletter Editors
Roslyn Ballantyne
GRSNNZ Board of Trustees

To become a member of GRSNNZ please complete this form: GRSNNZ Membership & Confidentiality Agreement Form. Becoming a member of GRSNNZ helps indicate the number of families coping with reflux within New Zealand and the problems or issues encountered. Membership is free.

Newsletters are sent to GRSNNZ members and like the information contained in Crying Over Spilt Milk is prepared for New Zealand residents.


Crying Over Spilt Milk WEBSITE INFORMATION

(This website (Crying Over Spilt Milk) belongs to, and is responsible to, the GRSNNZ Board of Trustees.)

Address: www.cryingoverspiltmilk.co.nz

MANAGER:
Roslyn Ballantyne
– working part-time as a Registered Nurse (RN), National Coordinator, GRSNNZ and mother of three including one with GORD born in 2000.

INFORMATION
The information contained in this site is from a variety of sources including G.R.A.S.P who have given us permission to use and edit their articles to stay relevant with current treatment and knowledge. Please see the source/author for each article, and be aware that many will have been written by parents from their own experience.
The information provided on this site should be considered to support and complement the relationship that exists between a patient and their physician, but not replace it. Information contained here is intended for New Zealand residents, but may be useful for residents of other countries. Please be aware that medication contents and names may differ in other countries, as may recommended treatment.

HISTORY
The original msn website “Infant Gastric Reflux Stories (NZ)” was created in March 2002 when the need for a permanent place for information became apparent to back up the reflux discussion board at “everybody” which had commenced in October 2001. In August 2003 IGRS became part of the Gastric Reflux Support Network New Zealand for Parents of Infants and Children Charitable Trust (GRSNNZ).
February 2004 GRSNNZ registered their own domain name and IGRS moved to www.cryingoverspiltmilk.co.nz making access easier and the address easily remembered by any parent of a baby with gastric reflux. The website has now been renamed Crying Over Spilt Milk to bring it into line with the web address, and is easily recognised by our crying baby. In 2013 the discussion boards at “everybody” were discontinued.  GRSNNZ’s main form of social media is now Facebook.

FUNDING
Crying Over Spilt Milk and GRSNNZ is partially funded by the Lottery Grants Board and other funders, but is also supported by some volunteer hours.  (Please see the Links Page.) Some advertisements may be provided for members’ benefits and in reciprocal agreements.  Advertisements have no influence on the editorial content of Crying Over Spilt Milk and will be labelled as ”Advertisements”.  If you have any concerns regarding the suitability of an advert please use the contact form to advise the Website Manager of this, including the nature of the ad.

GRASP ACKNOWLEDGMENT
Gastric Reflux Association For The Support Of Parents/Babies (GRASP) was a support group that has ceased to operate and was a great source of information and support from people who had experience in this area. When GRASP closed in May 2001 they forwarded a pack to health professionals to help them support and inform families with babies/children with gastro-oesophageal reflux. GRSNNZ has since taken over some of the previous role of GRASP.

Written by Roslyn Ballantyne, National Coordinator and GRSNNZ Board of Trustees for © Crying Over Spilt Milk Gastric Reflux Support Network New Zealand for Parents of Infants and Children Charitable Trust 2013 to 2015.

  • Gastric Reflux Support Network NZ shared Linkage's photo.

    Thank you Linkage!

  • Gastric Reflux Support Network NZ added 2 new photos — in Canterbury, New Zealand.

    ...At this stage we have three registrations and are surprised we do not have more, and would like to understand why people who fit the criteria in Canterbury haven't registered.... Please respond if you are in Canterbury and fit the criteria. See below. ------------------------------------------------------------------------------------------ The Gastric Reflux Support Network NZ has organised a series of four sessions called "Spilt Milk (Canterbury)" facilitated by the lovely Judy Arnold in Christchurch for those who have a baby under the age of one year who is unsettled or spills, and who would be interested in ideas to look after themselves and manage everyday life in a better way. This does include some practical tips on settling your baby, but the main focus is the parent. This starts next Wednesday morning and runs fortnightly, and is FREE. At this stage we have three registrations and are surprised we do not have more, and would like to understand why people who fit the criteria in Canterbury haven't registered. Was it the short notice, the day and time didn't suit (if so, when would), lack of childcare (please don't let that put you off), no transport (please register and let us know), not a first time parent (it doesn't matter - you still matter!), can't commit to all four sessions, worried about going out with your baby? Something else? Please reply to this post and let us know - or message us. Whichever you feel more comfortable with.

  • So true. Make some time today for you, even if it is just 5 minutes. #happiness #gastricreflux #gor #gord #infant #baby #gastricrefluxsupportnetworknz #cryingoverspiltmilk #child #family #reflux

  • Hi there im only new to all of this! My daughter is 12 weeks old and was put on losec and gaviscon last week, we have had issues with her vomitting up the granules, no matter what we try she just does! My gp has just given us the liquid form to try, my question is do we still give it to her half hr before a feed? Or can we give during? It dosnt say on the bottle

  • Gastric Reflux Support Network NZ shared Spilt Milk's event.

    Is there anyone with a child under the age of one year who is unsettled who would be interested in ideas to look after yourself? This does include some practical tips on settling your baby, but the main focus is you. See the event for details and please register using the registration form. This starts a week tomorrow and we don't have many registrations. Please register asap so we know whether it is worth continuing.

  • Try to relax and enjoy the little things this Sunday. #gastricreflux #gor #gord #infant #baby #gastricrefluxsupportnetworknz #cryingoverspiltmilk #child #family #reflux

  • I have an 18 month old son who had silent reflux. we weaned of gaviscon about four weeks ago. His symptoms for reflux were aconstant runny nose, cough and wheezing. For the last week he has had the above symptoms again. I have had him to the Drs and they have said just to give him his inhaler as he is wheezy. I have always had to fight to get the diagnosis of reflux. I was just wondering if anyone has weaned there child off gaviscon and if so how long would it take to symptoms to possibly reappear?

  • Spilt Milk (Canterbury) February / March 2016

  • Gastric Reflux Support Network NZ shared Spilt Milk's event.

  • We have been weaning off omeprazole and the most recent drop didn't work so we have increased again. How long until she's feeling herself and not in pain again?

  • My 10 week daughter I think is suffering from reflux. She doesn't spill alot however I notice she swallows back quite often. Latley she has been gaging. She has been in a lot of discomfort from about 2 weeks. I've been taking her to a chiropractor which I thought was heping but this last week seems to be back to her old symtoms. I'm just wondering about the medications people use. Do they work? She is gaining good weight. So I'm wondering do I just go another month and hope she grows out of it? or do I try the medications? I'm just worried they might cause trouble Down the track? I don't have a very good GP so no help there. Any suggestions would be great thanks ☺

  • #gastricreflux #gor #gord #infant #baby #gastricrefluxsupportnetworknz #cryingoverspiltmilk #child #family #reflux

  • Gastric Reflux Support Network NZ shared Patient's photo.

  • Had you noticed that this page for the Gastric Reflux Support Network NZ is a Verified Page by Facebook confirming that it is an authentic page for the Gastric Reflux Support Network New Zealand for Parents of Infants and Children Charitable Trust? http://www.cryingoverspiltmilk.co.nz

  • Gastric Reflux Support Network NZ shared Above Rubies's photo.

    Thank you to our previous National Coordinator for sharing this one. And in the words of Kelly from SmileDial our children might be a different kind of perfect.

  • Thanks Margot Kristensen for adding me to here we have a silent refulx baby we've been in and outa hospital for help and suport she's 8 weeks old crys frm the moment she wakes till any were frm 11pm or later I've tryed everything she has this day of screaming all day and then she's exausted the next day the pediatrician says there is nothing he can do and she is in pain were Goin to be admitted to mother craft in Hamilton as I can't rock her all day every day I'm exausted 2 any tips or advice pls

  • I have a 4 month old (5 at end of month) he's on omeprazol for silent reflux. He's started spitting his medication and I can't get him to swallow all of it. He gets distressed and this morning he vomited it all back up after gagging on it. He's had a flare up I'm sure cause he's not getting enough. I've asked GP for capsules w. Baby pear, but been denied cause hex too young. Anyone had luck mixing liquid with anything to get him to take it?

  • Hi We were prescribed gaviscon infant and told that it acts Like a plug keeping the acid down, b However I noticed on the crying over spilt milk site that there are two gaviscons used and that it is the other one that acts like a plug. My son is on ranitidine for silent reflux, which has helped but he still wakes up all the time from it and during the day will only sleep for about ten minutes before waking. Can anyone explain the difference between the two gaviscons? Also, is there any reason why my son sleeps better at night? Or is he just exhausted from not sleeping during the day? Thanks in advance for any advice

  • Please check the posts to the page and help out on a recent question if you have ideas for helping keep a young baby upright.

  • Hi there, I have a little 3 week old baby girl who we have just been told has reflux. It causes her a lot of pain and because of the reflux her windpipe gets closed off for an extended period of time with the milk/acid going up and down causing her to go bluey or purple which is very scary. She needs to be held 99% of the time because when lying her down it causes a lot of pain and also causes her to be sick out her nose and mouth. She has been started on gaviscon at every feed which seems to be helping with the "choking" episodes but I still need to hold her all the time. I am wondering if anyone has had any good slings or has any ideas that may help to keep her upright and comfortable to sleep etc. for both me and her. :)

  • Gastric Reflux Support Network NZ shared Patient's photo.

    #understanding #havebeenthere

  • Our daughter has had reflux since about 5 weeks & she is now 7 and a half months old. She will sleep 12 hours and wake to have 30 mls. She has small amounts often throughout the day and cannot handle anymore than 80 mls which is few and far between. She also has solids 2 - 3 times a day. She is also still on newborn teats and we try all the time to go up but she cannot handle the flow and wont drink at all. She is now a good size and looks healthy but only because I am constantly feeding her and also have a 4 year old who has gone backwards in her behaviour and toileting because Miss 7 1/2 months is so time consuming. She is under a pediatrician, on Ranitidine 3 x a day and is booked in for a barium swallow on the 18th of this month. Has anyone else had/have this issue?

  • #gastricreflux #gor #gord #infant #baby #gastricrefluxsupportnetworknz #cryingoverspiltmilk #child #family #reflux

  • Our seven week old baby can sleep for hours vertically in our arms, but wakes when in his back. When he is sleeping on his back he often makes a sound which sounds like someone clearing their throat, it goes on and on and eventually he wakes up. He doesn't spit up, but often has white on his tongue. He also grimaces a lot in his sleep. Does this sound like silent reflux? I'm especially keen to know if anyone has experienced the same type of noises in their baby. We have a doctors appointment on Tuesday.

  • There is a post to the page about settling babies with Gastric Reflux to sleep.