About Crying Over Spilt Milk / GRSNNZ

GASTRIC REFLUX SUPPORT NETWORK NEW ZEALAND FOR PARENTS OF INFANTS AND CHILDREN CHARITABLE TRUST (GRSNNZ)

 

MISSION STATEMENT

GRSNNZ is committed to provide support and information to families caring for infants and children with gastric reflux throughout NZ.
GRSNNZ offers moral support, coping techniques, and endeavours to provide up to date information.
GRSNNZ intends to support parents to learn skills to cope with infant gastric reflux, and the effects it has on their families and lives.
GRSNNZ’s purpose is to hand back confidence to parents and guardians, and highlight the great work they do at home.
GRSNNZ will provide education to parents, families, communities and health professionals.

GRSNNZ believes that families living with Infant Gastric Reflux have the right to:
Support
Safe up to date Information
Confidentiality
Guidance to access community services
Contact with other parents and staff who understand

Phone/Text 022 585 5935
Phone: 0800 380 517

(The most efficient way to speak to one of the Gastric Reflux Support Network NZ staff is to text a message to 022 585 5935. Include your name, phone numbers or email and a brief explanation of why you are contacting us. We will contact you as soon as possible.)

For local support networks nationwide click here

Board of Trustees
Chair

Mrs. Nicoll
Mrs. Ballantyne
Mrs. Mackrell-Pearson
Mrs. Devine
Ms. McAlister
Sub Committee
Funding

Mrs. Ballantyne
Mrs. DevineAdvisory Forum
*Roslyn Ballantyne, RN, GRSNNZ Researcher, Writer, Website Manager and National Coordinator South Island
*Dr Rodney Ford, Paediatrician, GRSNNZ Medical Reviewer
*Jennifer Howard, Trained Community Karitane, Diploma Natural Therapies, Diploma Child Psychology, Parent Educator/Facilitator for Sport Waikato, GRSNNZ National Coordinator 2001 – 2013
*Rochelle Wilson, GRASP National Co-Coordinator 1995 – 2001, GRSNNZ Researcher and Advisor
*Fiona Kenworthy, Speech-Language Therapist, Child Development, Counties Manukau, Auckland University, Clinical Tutor, GRSNNZ AdvisorUpdated September 2013

Structure

National Office Staff
National Coordinator
Roslyn Ballantyne
Website Design and Maintenance
Roslyn BallantyneMessage Board Moderators
Roslyn Ballantyne
GRSNNZ Moderator (appointed)
Facebook Page Moderators
GRSNNZ Board of Trustees
Local Support Networks Supervisor
Roslyn BallantyneAdvertising
Mrs. Devine
Roslyn Ballantyne
Mrs. Mackrell-PearsonNewsletter Editors
Roslyn Ballantyne
GRSNNZ Board of Trustees

To become a member of GRSNNZ please complete this form: GRSNNZ Membership & Confidentiality Agreement Form. Becoming a member of GRSNNZ helps indicate the number of families coping with reflux within New Zealand and the problems or issues encountered. Membership is free.

Newsletters are sent to GRSNNZ members and like the information contained in Crying Over Spilt Milk is prepared for New Zealand residents.


Crying Over Spilt Milk WEBSITE INFORMATION

(This website (Crying Over Spilt Milk) belongs to, and is responsible to, the GRSNNZ Board of Trustees.)

Address: www.cryingoverspiltmilk.co.nz

MANAGER:
Roslyn Ballantyne
- Registered Nurse (RN) working part-time as a B4 School Check Provider, National Coordinator, GRSNNZ and mother of three including one child with GORD aged 13 years.

INFORMATION
The information contained in this site is from a variety of sources including G.R.A.S.P who have given us permission to use and edit their articles to stay relevant with current treatment and knowledge. Please see the source/author for each article, and be aware that many will have been written by parents from their own experience.
The information provided on this site should be considered to support and complement the relationship that exists between a patient and their physician, but not replace it. Information contained here is intended for New Zealand residents, but may be useful for residents of other countries. Please be aware that medication contents and names may differ in other countries, as may recommended treatment.

HISTORY
The original msn website “Infant Gastric Reflux Stories (NZ)” was created in March 2002 when the need for a permanent place for information became apparent to back up the reflux discussion board at “everybody” which had commenced in October 2001. In August 2003 IGRS became part of the Gastric Reflux Support Network New Zealand for Parents of Infants and Children Charitable Trust (GRSNNZ).
February 2004 GRSNNZ registered their own domain name and IGRS moved to www.cryingoverspiltmilk.co.nz making access easier and the address easily remembered by any parent of a baby with gastric reflux. The website has now been renamed Crying Over Spilt Milk to bring it into line with the web address, and is easily recognised by our crying baby. In 2013 discussion boards at “everybody” moved to a new location and are how hosted by Kiwi Health, Pregnancy & Parenting.

FUNDING
Crying Over Spilt Milk is mostly operated on a voluntary basis, but GRSNNZ is partially funded by the Lottery Grants Board. Some advertisements are provided for members’ benefits and in reciprocal agreements.  Advertisements have no influence on the editorial content of Crying Over Spilt Milk and are labelled as ”Advertisements”.  If you have any concerns regarding the suitability of an advert please use the contact form to advise the Website Manager of this, including the nature of the ad.

GRASP ACKNOWLEDGMENT
Gastric Reflux Association For The Support Of Parents/Babies (GRASP) was a support group that has ceased to operate and was a great source of information and support from people who had experience in this area. When GRASP closed in May 2001 they forwarded a pack to health professionals to help them support and inform families with babies/children with gastro-oesophageal reflux. GRSNNZ has since taken over some of the previous role of GRASP.

Written by Roslyn Ballantyne, National Coordinator and GRSNNZ Board of Trustees for © Crying Over Spilt Milk Gastric Reflux Support Network New Zealand for Parents of Infants and Children Charitable Trust 2013.

  • I wrote a book following my sons silent reflux! Please download a copy and help spread the knowledge on reflux!! Thank you

    A guide for families who have babies suffering with reflux or silent reflux

  • Hi there. Posting from the UK. Wanted to share our story to gain some more insight. We've had a really tough time. My first baby is 8 + weeks now and we've had no end of issues. She was tongue tied..snipped...but latch still a problem. She is mostly breastfed but using nipple shields. Occasional top up when i can't tolerate feeding her. She feeds or wants to feed constantly. Thought it was hunger but no different after a bottle of formula. Anyway...a friend mentioned she could have silent reflux...symptoms are constant feeding hand sucking...back arching fussing through feeds like she wants it but doesn't too. Struggles to sleep although sooo tired. Falls asleep on boob but wakes immediately after. Hiccups a lot. Sneezes a lot. Crys after feeds...weight has been slow to gain tho. Prescribed infant gaviscon...any experiences of this and is it likely to make her constipated if mostly breastfed?! Worried it feels like trial and error at her expense. She's so unsettled and we are really struggling....opinions welcome :)

  • The Cards are now available in an app for Android and Apple devices: http://allright.org.nz/our-projects/tiny-adventures/

    Our Pack of Tiny Adventures was developed to help parents to enjoy quick, fun and affordable activities with their children. It was developed in partnership with SKIP (Strategies with Kids Information for Parents) gives parents easy ways to connect with their kids - even if they only have a few min…

  • My 12 week old baby has reflux, currently on 5mg of losec in the morning novelac reflux formula, she also suffers with painful wind, lately she has been choking on her vomit, not sure if I should change to novo lac colic formula instead, we have tried soy and goats to which she spewed up a lot more than the ar formula, please help with suggestions , it is hugely stressful for our family

  • Cn u get formula made for babies with reflux on script?

  • I'm getting the September Newsletter ready. Is there anything anyone wants to contribute? Please let me know: https://www.facebook.com/roslyn.ballantyne.rn

  • Hi there are there any formulas that you can get on prescription or financial assistance? Pretty sure my 8 week old isn't coping with his formula that he's on. He has reflux and on ranitidine but now he has green mucousy poo so im thinking he might need some different formula? But I see specialist formulas are expensive!!

  • Hi, my 5 month old has started solids and we have been ok'd to feed these before milk as otherwise he spills most of it. He takes losec granules, which was have been giving with pear 30mins before a milk feed. Can we now just give these with his solids with milk following half an hour+ later? Or not due to the higher volume of food in his stomach so it wouldn't be digested by the time he has his milk. Thanks

  • Hi. We've used the karicare thickener in our boys bottles on top of losec and neocate to control his reflux. Now he's 4 months old I was looking at using watties rice cereal to thicken his bottles before moving to solids at 6 months. Looking to find anyone who thickens with rice cereal. Advice? Thank you

  • Argh! I don't know if I'm doing the right thing for my wee girl. We discovered her reflux early 8 days old and has been on goats milk formula for 3 months. Did it help? Hard to say but she was happy enough. We were reffered to the hosp dietician by our plunket nurse and on Thursday started neocate. Its made things worse and she seems in pain.. her poops are slimy green. We gave her a few gaviscon feeds with it to help her tum cos she seems to have a sore tummy a lot. So its Sunday, we've been on it three days but I am continually second guessing myself. Should we have seen a change in her by now. Is it normal to take a few days for the tummy to get used to it? I hate putting her through all this esp if it doesn't end up working... sometimes I just want to throw it in and put her back on goats milk... would love some advice from others on neocate or just any advice/encouragement please and thank you :)

  • Hi mums I have recently taken my daughter off losec on advise from a paed to see how she went. We didn't notice the symptoms coming back and also started solids around same time with it going great. She's had a cough and cold but is over it except this nagging cough which is day and night until she eventually throws up. My question is could the cough actually be the reflux and should I start losec again.

  • A Good News Story ... http://www.cryingoverspiltmilk.co.nz/his-gastric-reflux-stopped/

    Hi Roslyn, Thanks for the updates over the past several months. I am leaving the group as my little boy no longer suffers from gastric reflux and is also no longer dairy intolerant! FYI he was on Neocate from 3 months old and had a combination of formula and my milk until he was 7.5 months. ...

  • Hi. My boy is 6.5 wks. He started screaming at 3 wks. Became unsettled for periods of up to nearly 12hrs without sleep. He's been on formula as my milk never came in. He gets about 100-200 ml breastmilk /dy I pump. He started spilling/vomiting a lot at 4.5wks old.started losec 9 dys ago-frm GP. Saw paediatriciAn 4 dys ago and started amino acid formula to check for CMA. I feel things improved a bit about 4 dys after losec started. Also he seemed great once on th amino acid formula but thn yesterday was his old really bad self - fussed all day 10am-4pm thn really distressed n frantic 4-9pm. He's been ok today.i also started adding karicare thickener 2 dys ago. His first poo day after starting amino acid formula was soft n ok but I thnk he might b constipated with th thickener. He really had to push to get yesterday's out n was very sticky. Anyone else experience this? What do you do? I've heard lactulose and prune juice etc can make reflux/ wind worse. I thought about halving th amt thickener I'm using.also his vomiting better on th new formula I think but still occasional. He vomited Sunday night n mayb brought th losec up- could 1 missed dose like thts make him bad th next day like he was? Any opinions greatly appreciated

  • Please consider joining Gastric Reflux Support Network NZ for Parents of Infants and Children Charitable Trust for access to our Newsletters and Private Local and National Support Networks: http://www.reflux.cryingoverspiltmilk.co.nz/grsnnz-membership-confidentiality-agreement-form/ Membership is free, and this gives you opportunities to discuss gastric reflux related issues with others in a safe and confidential setting. If you have completed a membership form previously, but never received anything further, please message me (Roslyn Ballantyne at https://www.facebook.com/roslyn.ballantyne.rn ) or comment below. The membership sign-up had been a double opt-in with a confirmation email, but as some people have had trouble with this, I've now changed it to a single opt-in. (I do still need to process applications and add you manually to your Local Support Networks though.)

    Gastric Reflux Support Network NZ for Parents of Infants & Children Charitable Trust Membership & Confidentiality Agreement Form / Newsletter Admin PageFirst NameLast nameEmailStreet AddressCity/TownAreaPostcodeDo you live in NZ?Country and Area if not NZHome Phone (include area code)Partner's NameE…