About Crying Over Spilt Milk / GRSNNZ

GASTRIC REFLUX SUPPORT NETWORK NEW ZEALAND FOR PARENTS OF INFANTS AND CHILDREN CHARITABLE TRUST (GRSNNZ)

Charities Registration Number: CC26780.geralt / Pixabay

MISSION STATEMENT

GRSNNZ is committed to provide support and information to families caring for infants and children with gastric reflux throughout NZ.
GRSNNZ offers moral support, coping techniques, and endeavours to provide up to date information.
GRSNNZ intends to support parents to learn skills to cope with infant gastric reflux, and the effects it has on their families and lives.
GRSNNZ’s purpose is to hand back confidence to parents and guardians, and highlight the great work they do at home.
GRSNNZ will provide education to parents, families, communities and health professionals.

GRSNNZ believes that families living with Infant Gastric Reflux have the right to:
Support
Safe up to date Information
Confidentiality
Guidance to access community services
Contact with other parents and staff who understand

Phone/Text 022 585 5935
Phone: 0800 380 517

(The most efficient way to speak to one of the Gastric Reflux Support Network NZ staff is to text a message to 022 585 5935. Include your name, phone numbers or email and a brief explanation of why you are contacting us. We will contact you as soon as possible.)

For local support networks nationwide click here

Board of Trustees
Chair

Mrs. Nicoll
Mrs. Ballantyne
Mrs. Mackrell-Pearson
Mrs. Devine
Ms. McAlister

Sub Committee
Funding

Mrs. Ballantyne
Mrs. Devine

Advisory Forum
*Roslyn Ballantyne, RN, GRSNNZ Researcher, Writer, Website Manager and National Coordinator South Island
*Dr Rodney Ford, Paediatrician, GRSNNZ Medical Reviewer
*Jennifer Howard, Trained Community Karitane, Diploma Natural Therapies, Diploma Child Psychology, Parent Educator/Facilitator for Sport Waikato, GRSNNZ National Coordinator 2001 – 2013
*Rochelle Wilson, GRASP National Co-Coordinator 1995 – 2001, GRSNNZ Researcher and Advisor
*Fiona Kenworthy, Speech-Language Therapist, Child Development, Counties Manukau, Auckland University, Clinical Tutor, GRSNNZ Advisor

Updated September 2013

Structure

National Office Staff
National Coordinator
Roslyn Ballantyne

Website Design and Maintenance
Roslyn Ballantyne

Message Board Moderators
Roslyn Ballantyne
GRSNNZ Moderator (appointed)
Facebook Page Moderators
GRSNNZ Board of Trustees

Local Support Networks Supervisor
Roslyn Ballantyne
Local appointed GRSNNZ Members

Advertising
Mrs. Devine
Roslyn Ballantyne
Mrs. Mackrell-Pearson

Newsletter Editors
Roslyn Ballantyne
GRSNNZ Board of Trustees

To become a member of GRSNNZ please complete this form: GRSNNZ Membership & Confidentiality Agreement Form. Becoming a member of GRSNNZ helps indicate the number of families coping with reflux within New Zealand and the problems or issues encountered. Membership is free.

Newsletters are sent to GRSNNZ members and like the information contained in Crying Over Spilt Milk is prepared for New Zealand residents.


Crying Over Spilt Milk WEBSITE INFORMATION

(This website (Crying Over Spilt Milk) belongs to, and is responsible to, the GRSNNZ Board of Trustees.)

Address: www.cryingoverspiltmilk.co.nz

MANAGER:
Roslyn Ballantyne
– Registered Nurse (RN) working part-time as a B4 School Check Provider, National Coordinator, GRSNNZ and mother of three including one child with GORD aged born in 2000.

INFORMATION
The information contained in this site is from a variety of sources including G.R.A.S.P who have given us permission to use and edit their articles to stay relevant with current treatment and knowledge. Please see the source/author for each article, and be aware that many will have been written by parents from their own experience.
The information provided on this site should be considered to support and complement the relationship that exists between a patient and their physician, but not replace it. Information contained here is intended for New Zealand residents, but may be useful for residents of other countries. Please be aware that medication contents and names may differ in other countries, as may recommended treatment.

HISTORY
The original msn website “Infant Gastric Reflux Stories (NZ)” was created in March 2002 when the need for a permanent place for information became apparent to back up the reflux discussion board at “everybody” which had commenced in October 2001. In August 2003 IGRS became part of the Gastric Reflux Support Network New Zealand for Parents of Infants and Children Charitable Trust (GRSNNZ).
February 2004 GRSNNZ registered their own domain name and IGRS moved to www.cryingoverspiltmilk.co.nz making access easier and the address easily remembered by any parent of a baby with gastric reflux. The website has now been renamed Crying Over Spilt Milk to bring it into line with the web address, and is easily recognised by our crying baby. In 2013 discussion boards at “everybody” moved to a new location and are now hosted by Kiwi Health, Pregnancy & Parenting.

FUNDING
Crying Over Spilt Milk and GRSNNZ is partially funded by the Lottery Grants Board and other funders, but is also supported by some volunteer hours.  (Please see the Links Page.) Some advertisements may be provided for members’ benefits and in reciprocal agreements.  Advertisements have no influence on the editorial content of Crying Over Spilt Milk and will be labelled as ”Advertisements”.  If you have any concerns regarding the suitability of an advert please use the contact form to advise the Website Manager of this, including the nature of the ad.

GRASP ACKNOWLEDGMENT
Gastric Reflux Association For The Support Of Parents/Babies (GRASP) was a support group that has ceased to operate and was a great source of information and support from people who had experience in this area. When GRASP closed in May 2001 they forwarded a pack to health professionals to help them support and inform families with babies/children with gastro-oesophageal reflux. GRSNNZ has since taken over some of the previous role of GRASP.

Written by Roslyn Ballantyne, National Coordinator and GRSNNZ Board of Trustees for © Crying Over Spilt Milk Gastric Reflux Support Network New Zealand for Parents of Infants and Children Charitable Trust 2013 to 2015.

  • There are two new posts to the page if anyone would like to help by sharing their experiences.

  • Hi There I am looking for support for a toddler with reflux. She had terrible silent reflux as a baby and then we thought she had grown out of it by 1ish. Then she has been rediagnosed with it age 2 years one month - after countless ENT problems (She has grommets and has had her tonsils and adenoids removed) and constant constipation. The medication is starting to kick in but she is so upset and so angry all the time (also partly because she is a toddler). Any tips people have to soothe her and help her not be afraid of sleeping/ lying down much appreciated, We are also considering reintroducing her dummy as it worked so well last time, but are conflicted about wether it is a terrible idea or not.Thanks

  • For those dealing with a silent refluxer, what are the symptoms you've noticed? We've been treating my 9 month old for this but never had much success which makes me second guess if that's what the problem is :/ she wakes within an hour of going down at night (if we get her down!), won't settle until around midnight, sleep during the day is never guaranteed and now since starting solids she wakes very frequently dumb the night with what looks like either sore tummy or wind pain. Sound like anyone else's baby?

  • A reminder please when you are replying to messages.

    Please do not give advice on dosages, advise families to give medications in two dosages when they were told to give them once daily by the prescriber or vice versa, or give direct advice on medications, formulas etc.

    It is perfectly fine to share your experiences as long as you do not discuss dosages of medications or mention health professionals etc.

    We love you chatting and supporting each other so please continue to do this, but keep it safe and non-medical.

  • Gastric Reflux Support Network NZ wrote a new note: POPULAR PAGES.

  • Gastric Reflux Support Network NZ wrote a new note: GASTRIC REFLUX SUPPORT NETWORK NZ - FACEBOOK PAGE GUIDELINES.

  • Hi Team. My now 3month old has been on Losec for quite sometime now and we had a different chemist make up the liquid and it looked different to out usual dose. Well he now seems like he is back to that child he was before we started on it. I have been back to the old chemist to get it better batch...how long will it take to kick back in,if it has gone out of his system? Cheers. Very exhausted mum

  • Emma has asked a question.

  • Can anyone help us? We have an almost 8 month old she's on Pepti jr, omeprazole and gaviscon. The last 2 weeks have been not very fun for us. She goes off to sleep nicely at 6.30-7 then ban at 9.30-10 inconsolable crying. Her reflux through the day is also much worse. We give losec in the morning and gaviscon with her bottle before bed but not at other feeds because it made her constipated. She's not interested in crawling and rolling anymore because she gets a lot of acid coming up and just wants to stand all the time. She is on a variety of solids is there anything I shouldn't give her because it makes reflux worse? We thought about taking out citrus peaches and apricots?? Too make everything so much more fun she is teething just got her first tooth yesterday ... Any advice much appreciated we would just like some sleep :-(

  • We have a question from Sara now too.

  • Hi there! Im just wondering if anyone has gone down the line of bubs having to have an endoscopy and pH probe study because of reflux lasting too long? My bubs is 15 months and still on high doses of reflux meds and she gets so bad when we try to wean them down. Her Paediatrician has referred us for an Endoscopy +/- pH probe. Has anyone had this? If so, what was the outcome and did it even change their management? Thanks!

  • Hi everyone, Brylee has asked a question. Have a look at the posts to the page. Thanks for sharing your experiences in advance.

  • i keep getting an error message when trying to register?

  • Has anyone else had a major setback with reflux after their little one starts moving? I am feeling so emotionally drained and thought it was supposed to get better, he's now nearly one and we are back to square one

  • I've just hit SEND on the newsletter so if you are a member, you should receive it over the next 24 hours. I'm using MailChimp for the first time, so it will look a little different.
    If you aren't a member and would like to receive newsletters or join our local support groups, please complete a membership form: http://www.reflux.cryingoverspiltmilk.co.nz/grsnnz-membership-confidentiality-agreement-form/
    Membership is free. It has been great to see two to three new members every day since I fixed the form! :-)

    Gastric Reflux Support Network NZ for Parents of Infants & Children Charitable Trust Membership & Confidentiality Agreement Form / Newsletter Admin Page First Name Last name Email Street Address City/Town Area Auckland Bay of Plenty Canterbury Gisborne Hawkes Bay Marlborough Nelson Otago...

  • I've just discovered our membership form hasn't been working due to some unknown glitch and I've spent the last few hours getting it working again. I suspect this has been like this for a fortnight. So sorry anyone who has been trying to join. Remember membership is free and you can join in confidential chats with those in your local area.
    http://www.reflux.cryingoverspiltmilk.co.nz/grsnnz-membership-confidentiality-agreement-form/

    Gastric Reflux Support Network NZ for Parents of Infants & Children Charitable Trust Membership & Confidentiality Agreement Form / Newsletter Admin Page First Name Last name Email Street Address City/Town Area Auckland Bay of Plenty Canterbury Gisborne Hawkes Bay Marlborough Nelson Otago...

  • Another Post created on our website from the Tips on Coping thread from National Infant and Child Gastric Reflux Awareness Week. Thank you so much to those who contributed. I might just try and add this into the Help! Menu as well.

    The following is created from a thread during National Infant and Child Gastric Reflux Awareness Week on our Facebook Page https://www.facebook.com/hashtag/nationalinfantandchildgastricrefluxawarenessweek There were 38 comments with advice or tips on how parents coped with infants or children...

  • Story 2 from National Infant and Child Gastric Reflux Awareness Week transferred to our website for safekeeping. :-)

    Daughter number 3 was born in 2000, weighed 8lb, 6oz and fed well, but we escaped the maternity home earlier than with number 2 as she just wouldn’t settle at night easily. At eight days old, my husband found her grey and limp, but breathing. She went on to have prolonged apnoeas (cessation of...

  • National Infant and Child Gastric Reflux Awareness Week logo profile photos - The week finished 6th June. There are still a few people we've noticed with the logo as their profile picture. Can you please remove this now?

    Many thanks, for your support.

  • Thank you everyone who contributed to this. I think it will help others know that they are not alone in what they feel and experience. I also think it might be a great resource for health professionals.

    The following is created from a thread during National Infant and Child Gastric Reflux Awareness Week on our Facebook Page https://www.facebook.com/hashtag/nationalinfantandchildgastricrefluxawarenessweek It included words or short phrases that had something to do with what gastric reflux meant...

  • Who has seen National Infant and Child Gastric Reflux Awareness Week Posters in waiting rooms, reception areas, play centres, consult rooms or anywhere else?

    There was quite a number posted or delivered around NZ so we would love to hear if you spotted one.

    This is the printed A4 glossy poster that has our phone number and website address at the bottom - not the digital graphic. Draft preview here:

  • Gastric Reflux Support Network NZ shared their photo.

    Thank you so much to everyone that supported the Gastric Reflux Support Network NZ and promoted National Infant and Child Gastric Reflux Awareness Week by taking up the Challenge and using the logo as your PROFILE PICTURE on your PERSONAL PAGE.

    It was wonderful to see so many people doing this and I did lots of double-takes when visiting some pages as there were so many orange PROFILE PICTURES.

    I don't know about you, but I'm looking forward to next year and am already making plans. Hopefully, many of you will no longer be dealing with Infant Gastric Reflux, but feel free to come back between 31st May to 6th June and give others some hope that they will get through this difficult time. Put it in your diaries. :-)

    Best wishes for the year ahead,
    Roslyn Ballantyne, National Coordinator, Gastric Reflux Support Network NZ, National Infant and Child Gastric Reflux Awareness Week 2015!

    (Please note the National Infant and Child Gastric Reflux Awareness Week logo is copyright and may only be used with permission from GRSNNZ. It may be shared using the Facebook Share Function.)

    A Challenge to you ALL except we ask that you only do this on your Personal Profiles i.e. NO PAGES or GROUPS. National Infant and Child Gastric Reflux Awareness Week starts tomorrow and continues until 6th June. During this time GRSNNZ would love you to create Awareness by using this logo as your profile picture. Once you have set it as a profile picture please add a comment to the picture on your page and put the link to this Facebook Page and our Website: https://www.facebook.com/cryingoverspiltmilk and www.cryingoverspiltmilk.co.nz so others can find out more. (Please note the National Infant and Child Gastric Reflux Awareness Week logo is copyright and may only be used with permission from GRSNNZ. Permission is granted as above for the use of Personal Profile Pictures only. It may also be shared using the Facebook Share Function.) Example in the comment soon. Many thanks. GRSNNZ Committee.

  • I'm slowly copying over the Awareness Week happenings to the Crying Over Spilt Milk website so we don't lose them. You will also find some of last year's publicity and stories there. Here is Day 1.

    My first child definitely had very few, if no signs of gastric reflux. I can’t even remember her spilling much – mind you, she is 22 years old. Three years later we had another daughter, born 13 days late, who decided she should then enter the world in a rush. She became unsettled at about two...

  • Hi.

    Just wondering people's opinion or feedback on how they get their baby to sleep?
    My GP wants me to let my 5 month old 'cry it out' but I just don't think it's the best idea for him. At Present we feed him to sleep.

    Thanks

  • Gastric Reflux Support Network NZ shared Mum 2 Mum's photo.

    Just sharing this back to our timeline again as this was a perfect way to promote National Infant and Child Gastric Reflux Awareness Week.

    The logo and Awareness Week is not used to sell a product or promote the business.

    It links back to our website and Facebook page so that users can identify that the logo belongs to the Gastric Reflux Support Network NZ ,and seek support and information.

    Top points Mum 2 Mum.

    Today marks the first day of "National Infant and Child Gastric Reflux Awareness Week" - here at Mum 2 Mum we are not strangers to refluxy and spilly babies and we we know how hard it can be as parents some times. If you have any concerns about your infant or child's health or think they may be suffering from Gastric Reflux, please contact a healthcare professional - if you wish to learn more (from symptoms to real experiences), please take a look at the national gastric reflux support website: www.cryingoverspiltmilk.co.nz or check out Gastric Reflux Support Network NZ :)