About Crying Over Spilt Milk / GRSNNZ

GASTRIC REFLUX SUPPORT NETWORK NEW ZEALAND FOR PARENTS OF INFANTS AND CHILDREN CHARITABLE TRUST (GRSNNZ)

Charities Registration Number: CC26780.geralt / Pixabay

MISSION STATEMENT

GRSNNZ is committed to provide support and information to families caring for infants and children with gastric reflux and associated conditions throughout NZ.
GRSNNZ offers moral support, coping techniques, and endeavours to provide up to date information.
GRSNNZ intends to support parents to learn skills to cope with infant gastric reflux, and the effects it has on their families and lives.
GRSNNZ’s purpose is to hand back confidence to parents and guardians, and highlight the great work they do at home.
GRSNNZ will provide education to parents, families, communities and health professionals.

GRSNNZ believes that families living with Infant Gastric Reflux have the right to:
Support
Safe up to date Information
Confidentiality
Guidance to access community services
Contact with other parents and staff who understand

Phone/Text 022 585 5935
Phone: 0800 380 517

(The most efficient way to speak to one of the Gastric Reflux Support Network NZ staff is to text a message to 022 585 5935. Include your name, phone numbers or email and a brief explanation of why you are contacting us. We will contact you as soon as possible.)

For local support networks nationwide click here

Board of Trustees and Committee
Chair

Mrs. Nicoll
Mrs. Ballantyne
Mrs. Giblin
Mrs. Devine
Ms. McAlister

Committee Member
Mrs. Hopgood

Sub Committee
Funding

Mrs. Ballantyne
Mrs. Devine

Advisory Forum
*Roslyn Ballantyne, RN, GRSNNZ Researcher, Writer, Website Manager and National Coordinator South Island
*Dr Rodney Ford, Paediatrician, GRSNNZ Medical Reviewer
*Jennifer Howard, Trained Community Karitane, Diploma Natural Therapies, Diploma Child Psychology, Parent Educator/Facilitator for Sport Waikato, GRSNNZ National Coordinator 2001 – 2013
*Rochelle Wilson, GRASP National Co-Coordinator 1995 – 2001, GRSNNZ Researcher and Advisor
*Fiona Kenworthy, Speech-Language Therapist, Child Development, Counties Manukau, Auckland University, Clinical Tutor, GRSNNZ Advisor

Updated January 2016

Structure

National Office Staff
National Coordinator
Roslyn Ballantyne

Website Design and Maintenance
Roslyn Ballantyne

Message Board Moderators
Roslyn Ballantyne
GRSNNZ Moderators (appointed)
Facebook Page Moderators
GRSNNZ Committee Members

Local Support Networks Supervisor
Roslyn Ballantyne
Local appointed GRSNNZ Members

Advertising
Mrs. Devine
Roslyn Ballantyne
Mrs. Mackrell-Pearson

Newsletter Editors
Roslyn Ballantyne
GRSNNZ Board of Trustees

To become a member of GRSNNZ please complete this form: GRSNNZ Membership & Confidentiality Agreement Form. Becoming a member of GRSNNZ helps indicate the number of families coping with reflux within New Zealand and the problems or issues encountered. Membership is free.

Newsletters are sent to GRSNNZ members and like the information contained in Crying Over Spilt Milk is prepared for New Zealand residents.


Crying Over Spilt Milk WEBSITE INFORMATION

(This website (Crying Over Spilt Milk) belongs to, and is responsible to, the GRSNNZ Board of Trustees.)

Address: www.cryingoverspiltmilk.co.nz

MANAGER:
Roslyn Ballantyne
– working part-time as a Registered Nurse (RN), National Coordinator, GRSNNZ and mother of three including one with GORD born in 2000.

INFORMATION
The information contained in this site is from a variety of sources including G.R.A.S.P who have given us permission to use and edit their articles to stay relevant with current treatment and knowledge. Please see the source/author for each article, and be aware that many will have been written by parents from their own experience.
The information provided on this site should be considered to support and complement the relationship that exists between a patient and their physician, but not replace it. Information contained here is intended for New Zealand residents, but may be useful for residents of other countries. Please be aware that medication contents and names may differ in other countries, as may recommended treatment.

HISTORY
The original msn website “Infant Gastric Reflux Stories (NZ)” was created in March 2002 when the need for a permanent place for information became apparent to back up the reflux discussion board at “everybody” which had commenced in October 2001. In August 2003 IGRS became part of the Gastric Reflux Support Network New Zealand for Parents of Infants and Children Charitable Trust (GRSNNZ).
February 2004 GRSNNZ registered their own domain name and IGRS moved to www.cryingoverspiltmilk.co.nz making access easier and the address easily remembered by any parent of a baby with gastric reflux. The website has now been renamed Crying Over Spilt Milk to bring it into line with the web address, and is easily recognised by our crying baby. In 2013 the discussion boards at “everybody” were discontinued.  GRSNNZ’s main form of social media is now Facebook.

FUNDING
Crying Over Spilt Milk and GRSNNZ is partially funded by the Lottery Grants Board and other funders, but is also supported by some volunteer hours.  (Please see the Links Page.) Some advertisements may be provided for members’ benefits and in reciprocal agreements.  Advertisements have no influence on the editorial content of Crying Over Spilt Milk and will be labelled as ”Advertisements”.  If you have any concerns regarding the suitability of an advert please use the contact form to advise the Website Manager of this, including the nature of the ad.

GRASP ACKNOWLEDGMENT
Gastric Reflux Association For The Support Of Parents/Babies (GRASP) was a support group that has ceased to operate and was a great source of information and support from people who had experience in this area. When GRASP closed in May 2001 they forwarded a pack to health professionals to help them support and inform families with babies/children with gastro-oesophageal reflux. GRSNNZ has since taken over some of the previous role of GRASP.

Written by Roslyn Ballantyne, National Coordinator and GRSNNZ Board of Trustees for © Crying Over Spilt Milk Gastric Reflux Support Network New Zealand for Parents of Infants and Children Charitable Trust 2013 to 2015.

  • Gastric Reflux Support Network NZ shared Developmental Coordination Disorder (Dyspraxia) & Dyslexia Support's photo.

    Someone just liked this that we shared back in 2014. I think it is time to share it again. #gastricreflux

  • Gastric Reflux Support Network NZ added a new photo.

  • My 17 month old son has just been put on ranitadine. The pharmacist said it needs to be away from foods with iron and calcium. He needs it 3 times a day and im insure how to do this around the restrictions. How have others done it?

  • After advice/recommendations about private paediatricians. We are in the Waikato and are desperate to see someone privately about our four month old who suffers terribly with reflux. Happy to travel (I.e. To Auckland) and don't care what it costs. We really just need to get him proper help. I can't stand to see him in such excruciating pain every feed (and most of the time in between feeds!)

  • Gastric Reflux Support Network NZ added a new photo.

  • My 3.5 yr old daughter has terrible reflux blisters in her throat and at 8 months old had a fundoplication which resulted in a pitched nerve now her reflux is back don't know what to do

  • It's Oral Health Month and Plunket shared this article in their recent newsletter: http://www.plunket.org.nz/your-child/1-2-years/health-and-daily-care/10-things-you-need-to-know-about-children-s-teeth/ To add to this, did you know that some children's toothpastes do not have the recommended amount of fluoride in them?

  • Had anyone had any experience of their child having hiccups whilst asleep? Please see our visitor posts.

  • My 2.5 year old appears to be hiccuping in his sleep. Hasn't done this in years. Was feeling he'd had too much dairy building up. Anyone else get this? It's so weird he seems totally asleep....

  • Isn't this the cutest baby ever? One of our Trustees has been amazing with sharing her photos.

  • Bec has posted a message to the page - look under visitor posts - after having weaned her child off medication. Does anyone else who has done this have wise words to share?

  • Hi. My son is just over 18months. I slowly weaned him off his reflux medication. Wondering what are symptoms to look out for to know if he needs to go back on medication. He seemed fine while weaning. But now he wakes during the night, has hiccups regularly plus a few other symptoms. I'm just not sure if it's reflux or just the cold months. Any advice would be fantastic. Thanks!

  • First in a series from our recent slideshow. :-)

  • Hi - has anyone gone private for a gastroscopy and if so who did you use? I stupidly cancelled ours at the start of the year when I felt things were improving (only lasted 2 weeks!) they didn't take us off the list but they pushed us to the back of the list and to date we have still not even been given an indication of time. We have health care but the paediatrician at the hospital had originally said the public system was the best avenue as the person doing it is a gastroenterologist and would have the most qualification on what they are looking at/for. Would love to hear from anyone else that went private / who through and how did they find it?

  • Gastric Reflux Support Network NZ shared Inspiring and Positive Quotes's photo.

  • So we have tried losec but our 7 wo daughter has got worse, went back to the doc who told us to take her off it now, so what now? He wants us to try nasel drops for a week to clear out her nasal passage. I assume this rules out reflux as such as points more to severe wind? Has anyone dealt with losec not helping them/making the problem worse? We burp her plenty and often get wind but the second she lays down she screams the house down. If we are lucky her and us get 3 hrs sleep over a 24hr period, I'm surprised by the doc how relaxed they are about it when it's mentally crippling us both and the lack of sleep for her can't be doing much for her.

  • For Canterbury families:

  • Does anyone know if a baby can have losec and infacol? Not at the same time but during the same day.

  • Hi I was just wondering if there is a support group or page on Facebook to chat with other people? Thanks in advance.

  • #canvacup #gastricreflux #gor #gord #infant #baby #gastricrefluxsupportnetworknz #cryingoverspiltmilk #child #family #reflux #tautoko #tamariki #whanau

  • Gastric Reflux Support Network NZ shared David Wolfe's video.

  • Do you use screens for distraction and have sleep issues with your child? It might be a good idea to not use them for an hour before bed time at night. It could also pay to explore lighting in the room for an hour before bed, and in the bed room during the night and for any night time wakings. Even digital clocks and nightlights are too bright for some.

  • Gastric Reflux Support Network NZ shared Purple Clover's photo.

    ... However, it is essential to have some "you" time. Even just 5 minutes for half a cup of tea. ;-)

  • Gastric Reflux Support Network NZ shared Brainwave Trust Aotearoa's photo.

  • Sorry to anyone who has tried to join using the Join GRSNNZ tab on Facebook. I just realised it wasn't connected to MailChimp. All sorted now. The alternative and probably better way of joining though is to go to: http://www.reflux.cryingoverspiltmilk.co.nz/grsnnz-membership-confidentiality-agreement-form/