About Crying Over Spilt Milk / GRSNNZ

GASTRIC REFLUX SUPPORT NETWORK NEW ZEALAND FOR PARENTS OF INFANTS AND CHILDREN CHARITABLE TRUST (GRSNNZ)

Charities Registration Number: CC26780.geralt / Pixabay

MISSION STATEMENT

GRSNNZ is committed to provide support and information to families caring for infants and children with gastric reflux and associated conditions throughout NZ.
GRSNNZ offers moral support, coping techniques, and endeavours to provide up to date information.
GRSNNZ intends to support parents to learn skills to cope with infant gastric reflux, and the effects it has on their families and lives.
GRSNNZ’s purpose is to hand back confidence to parents and guardians, and highlight the great work they do at home.
GRSNNZ will provide education to parents, families, communities and health professionals.

GRSNNZ believes that families living with Infant Gastric Reflux have the right to:
Support
Safe up to date Information
Confidentiality
Guidance to access community services
Contact with other parents and staff who understand

Phone/Text 022 585 5935
Phone: 0800 380 517

(The most efficient way to speak to one of the Gastric Reflux Support Network NZ staff is to text a message to 022 585 5935. Include your name, phone numbers or email and a brief explanation of why you are contacting us. We will contact you as soon as possible.)

For local support networks nationwide click here

Board of Trustees and Committee
Chair

Mrs. Nicoll
Mrs. Ballantyne
Mrs. Giblin
Mrs. Devine
Committee Member
Mrs. Hopgood

Sub Committee
Funding

Mrs. Ballantyne
Mrs. Devine

Advisory Forum
*Roslyn Ballantyne, RN, GRSNNZ Researcher, Writer, Website Manager and National Coordinator South Island
*Dr Rodney Ford, Paediatrician, GRSNNZ Medical Reviewer
*Jennifer Howard, Trained Community Karitane, Diploma Natural Therapies, Diploma Child Psychology, Parent Educator/Facilitator for Sport Waikato, GRSNNZ National Coordinator 2001 – 2013
*Rochelle Wilson, GRASP National Co-Coordinator 1995 – 2001, GRSNNZ Researcher and Advisor
*Fiona Kenworthy, Speech-Language Therapist, Child Development, Counties Manukau, Auckland University, Clinical Tutor, GRSNNZ Advisor

Updated March 2017

Structure

National Office Staff
National Coordinator
Roslyn Ballantyne

Website Design and Maintenance
Roslyn Ballantyne

Message Board Moderators
Roslyn Ballantyne
GRSNNZ Moderators (appointed)
Facebook Page Moderators
GRSNNZ Committee Members

Local Support Networks Supervisor
Roslyn Ballantyne
Local appointed GRSNNZ Members

Advertising
Mrs. Devine
Roslyn Ballantyne
Mrs. Mackrell-Pearson

Newsletter Editors
Roslyn Ballantyne
GRSNNZ Board of Trustees

To become a member of GRSNNZ please complete this form: GRSNNZ Membership & Confidentiality Agreement Form. Becoming a member of GRSNNZ helps indicate the number of families coping with reflux within New Zealand and the problems or issues encountered. Membership is free.

Newsletters are sent to GRSNNZ members and like the information contained in Crying Over Spilt Milk is prepared for New Zealand residents.


Crying Over Spilt Milk WEBSITE INFORMATION

(This website (Crying Over Spilt Milk) belongs to, and is responsible to, the GRSNNZ Board of Trustees.)

Address: www.cryingoverspiltmilk.co.nz

MANAGER:
Roslyn Ballantyne
– working part-time as a Registered Nurse (RN), National Coordinator, GRSNNZ and mother of three including one with GORD born in 2000.

INFORMATION
The information contained in this site is from a variety of sources including G.R.A.S.P who have given us permission to use and edit their articles to stay relevant with current treatment and knowledge. Please see the source/author for each article, and be aware that many will have been written by parents from their own experience.
The information provided on this site should be considered to support and complement the relationship that exists between a patient and their physician, but not replace it. Information contained here is intended for New Zealand residents, but may be useful for residents of other countries. Please be aware that medication contents and names may differ in other countries, as may recommended treatment.

HISTORY
The original msn website “Infant Gastric Reflux Stories (NZ)” was created in March 2002 when the need for a permanent place for information became apparent to back up the reflux discussion board at “everybody” which had commenced in October 2001. In August 2003 IGRS became part of the Gastric Reflux Support Network New Zealand for Parents of Infants and Children Charitable Trust (GRSNNZ).
February 2004 GRSNNZ registered their own domain name and IGRS moved to www.cryingoverspiltmilk.co.nz making access easier and the address easily remembered by any parent of a baby with gastric reflux. The website has now been renamed Crying Over Spilt Milk to bring it into line with the web address, and is easily recognised by our crying baby. In 2013 the discussion boards at “everybody” were discontinued.  GRSNNZ’s main form of social media is now Facebook.

FUNDING
Crying Over Spilt Milk and GRSNNZ is partially funded by the Lottery Grants Board and other funders, but is also supported by some volunteer hours.  (Please see the Links Page.) Some advertisements may be provided for members’ benefits and in reciprocal agreements.  Advertisements have no influence on the editorial content of Crying Over Spilt Milk and will be labelled as ”Advertisements”.  If you have any concerns regarding the suitability of an advert please use the contact form to advise the Website Manager of this, including the nature of the ad.

GRASP ACKNOWLEDGMENT
Gastric Reflux Association For The Support Of Parents/Babies (GRASP) was a support group that has ceased to operate and was a great source of information and support from people who had experience in this area. When GRASP closed in May 2001 they forwarded a pack to health professionals to help them support and inform families with babies/children with gastro-oesophageal reflux. GRSNNZ has since taken over some of the previous role of GRASP.

Written by Roslyn Ballantyne, National Coordinator and GRSNNZ Board of Trustees for © Crying Over Spilt Milk Gastric Reflux Support Network New Zealand for Parents of Infants and Children Charitable Trust 2013 to 2015.

  • Any suggestions of What else I should be trying? My 4 mth old with silent reflux, is very fussy around feeding, takes small amounts, eats every three hours or so through the night still, is on elecare as of this week. Prior to that was on breast milk (dairy free) and some neocate. Is on losec at a good dose for his weight. Is constantly fussing over feeds but at the pre bed time one just SCREAMS. Is obviously hungry but on and off and screams as soon as start. Hear the reflux at the start of all this. Is pretty distressing for everyone. Feed him upright, use dummy to calm him if starts getting upset. If too much try and get him drowsy then try again. Thanks for any suggestions

  • Mission We are committed to provide support and information to parents/guardians of Infants and children with Gastric Reflux Disease throughout NZ. Actively facilitate community education in New Zealand.

  • Admin delete if not allowed. I have noticed there is no real active peer support group for silent reflux in NZ. The Australian one often has discussions on meds and treatments not available in NZ. So I have created a group which you are welcome to join. It will be closely moderated and hope it will allow parents to make contact in "real life" too. If you'd like to join search "Silent Reflux (GORD) New Zealand

  • What support (other than peer) is available through GRSN?

  • Can someone please tell me if omeprazole gets worse before it gets better? Follow up app isn't for 5 more weeks and after one week on this I am at my wits end with the ZERO sleep! Son is 14mo and his sleeping is so very much worse which I didn't even think was actually possible but just wondering if I should stop it or keep going.

  • https://whanau.skip.org.nz/behaviours/not-sleeping/

  • Hi there, does anyone know the research on whether losec as a single dose or split dose is better for infants?

  • Sarah has a question about Neocate and Elecare. Have a look at the visitor posts to page. No advice, just experiences please.

  • Has Anyone tried both neocate and elecare? Any difference?

  • Worth a look https://www.facebook.com/babocush/posts/1887748414848173

  • Hi,just wondering if anyone has a lactation consultant in Auckland that they would recommend. I have a very fast flow and birth my first child, and now my second (9 days old) have had issues with it. My first had silent reflux I believe,and now my second's behavior after feeding is following the exact same path. I'd like to see if there's anything other than laying back whilst feeding that I can do to help ease irritation that seems to be occurring. Thanks in advance!

  • This chat with Plunket New Zealand should be interesting.

  • My three month old (baby two with reflux and seems to have cmpi like my eldest) is really struggling. Has started on losec three weeks ago, is constipated (never went often anyway), and now trying to get him onto neocate (previously breastfed with ebm top ups but can't keep pumping and stressing about supply). Am trying to sweeten the formula but he's not keen so far. Anyone share experiences of getting babe onto it? Anyone for whom it actually took 15 tried to take it like website suggests? Eldest was no bother so this is new to me. Thanks :/

  • Just wondering has anyone dealing with reflux had an issue with constipation too. Our LO has had alot of problems with constipation since starting solids beginning of Jan. We've tried a couple laxatives & have had to resort to suppository's.

  • GRSNNZ would like to highlight our Site Guidelines which also cover this Facebook Page after some recent concerns. Please read. In particular: As the moderators, GRSNNZ reserves the right to remove or edit any posts: - that recommend another medication as being better or to treat conditions that it is not indicated for - that give medical advice --------------------------------------------------------------------- You are all great supports to each other. Please carry on doing this. These guidelines are to keep this Page a safe and happy place.

  • 💜💙💚💛💖

  • If you are feeling stressed these tips might be a help.

  • Hey all, I have a hard time latching my three month old, in particular on one breast. He will repeatedly pull off and turn his head to the side. Does it on the other breast too, turning head in opposite direction. Do you think this is related to reflux or something else? Sometimes think he's just not hungry but can be hours since he last ate. His weight gain has been slow. He's on lose c now. Ta for any insight!!

  • My 8 week old has suspected silent reflux, he shows all the signs, feeds non stop, putting on huge amounts of weight, will not sleep unless being upright and if he is laid down will wake after 10 minutes screaming, pulls off the breast constantly and a really clingy, high maintenance baby. I've been given gaviscon but struggling to get him to take it, I've tried in s bottle of expressed milk but were struggling to get her to take a bottle, tried it in a syringe with water but he gags, any suggestions, I'm one exhausted mumma with two toddlers to look after aswel

  • Does anyone else get so sick from this?? I have tried every tablet and nothing helps to the point I have lost so much weight and now may need a feeding tube 😴

  • #tautoko

  • Question.... my midwife suggested my baby has silent reflux and we have been on infant gaviscon but wondering if we have the right diagnosis??! How do we go about getting a proper diagnosis? Thanks 😀