About Crying Over Spilt Milk / GRSNNZ

GASTRIC REFLUX SUPPORT NETWORK NEW ZEALAND FOR PARENTS OF INFANTS AND CHILDREN CHARITABLE TRUST (GRSNNZ)

Charities Registration Number: CC26780.geralt / Pixabay

MISSION STATEMENT

GRSNNZ is committed to provide support and information to families caring for infants and children with gastric reflux throughout NZ.
GRSNNZ offers moral support, coping techniques, and endeavours to provide up to date information.
GRSNNZ intends to support parents to learn skills to cope with infant gastric reflux, and the effects it has on their families and lives.
GRSNNZ’s purpose is to hand back confidence to parents and guardians, and highlight the great work they do at home.
GRSNNZ will provide education to parents, families, communities and health professionals.

GRSNNZ believes that families living with Infant Gastric Reflux have the right to:
Support
Safe up to date Information
Confidentiality
Guidance to access community services
Contact with other parents and staff who understand

Phone/Text 022 585 5935
Phone: 0800 380 517

(The most efficient way to speak to one of the Gastric Reflux Support Network NZ staff is to text a message to 022 585 5935. Include your name, phone numbers or email and a brief explanation of why you are contacting us. We will contact you as soon as possible.)

For local support networks nationwide click here

Board of Trustees
Chair

Mrs. Nicoll
Mrs. Ballantyne
Mrs. Mackrell-Pearson
Mrs. Devine
Ms. McAlister

Sub Committee
Funding

Mrs. Ballantyne
Mrs. Devine

Advisory Forum
*Roslyn Ballantyne, RN, GRSNNZ Researcher, Writer, Website Manager and National Coordinator South Island
*Dr Rodney Ford, Paediatrician, GRSNNZ Medical Reviewer
*Jennifer Howard, Trained Community Karitane, Diploma Natural Therapies, Diploma Child Psychology, Parent Educator/Facilitator for Sport Waikato, GRSNNZ National Coordinator 2001 – 2013
*Rochelle Wilson, GRASP National Co-Coordinator 1995 – 2001, GRSNNZ Researcher and Advisor
*Fiona Kenworthy, Speech-Language Therapist, Child Development, Counties Manukau, Auckland University, Clinical Tutor, GRSNNZ Advisor

Updated September 2013

Structure

National Office Staff
National Coordinator
Roslyn Ballantyne

Website Design and Maintenance
Roslyn Ballantyne

Message Board Moderators
Roslyn Ballantyne
GRSNNZ Moderator (appointed)
Facebook Page Moderators
GRSNNZ Board of Trustees

Local Support Networks Supervisor
Roslyn Ballantyne
Local appointed GRSNNZ Members

Advertising
Mrs. Devine
Roslyn Ballantyne
Mrs. Mackrell-Pearson

Newsletter Editors
Roslyn Ballantyne
GRSNNZ Board of Trustees

To become a member of GRSNNZ please complete this form: GRSNNZ Membership & Confidentiality Agreement Form. Becoming a member of GRSNNZ helps indicate the number of families coping with reflux within New Zealand and the problems or issues encountered. Membership is free.

Newsletters are sent to GRSNNZ members and like the information contained in Crying Over Spilt Milk is prepared for New Zealand residents.


Crying Over Spilt Milk WEBSITE INFORMATION

(This website (Crying Over Spilt Milk) belongs to, and is responsible to, the GRSNNZ Board of Trustees.)

Address: www.cryingoverspiltmilk.co.nz

MANAGER:
Roslyn Ballantyne
- Registered Nurse (RN) working part-time as a B4 School Check Provider, National Coordinator, GRSNNZ and mother of three including one child with GORD aged born in 2000.

INFORMATION
The information contained in this site is from a variety of sources including G.R.A.S.P who have given us permission to use and edit their articles to stay relevant with current treatment and knowledge. Please see the source/author for each article, and be aware that many will have been written by parents from their own experience.
The information provided on this site should be considered to support and complement the relationship that exists between a patient and their physician, but not replace it. Information contained here is intended for New Zealand residents, but may be useful for residents of other countries. Please be aware that medication contents and names may differ in other countries, as may recommended treatment.

HISTORY
The original msn website “Infant Gastric Reflux Stories (NZ)” was created in March 2002 when the need for a permanent place for information became apparent to back up the reflux discussion board at “everybody” which had commenced in October 2001. In August 2003 IGRS became part of the Gastric Reflux Support Network New Zealand for Parents of Infants and Children Charitable Trust (GRSNNZ).
February 2004 GRSNNZ registered their own domain name and IGRS moved to www.cryingoverspiltmilk.co.nz making access easier and the address easily remembered by any parent of a baby with gastric reflux. The website has now been renamed Crying Over Spilt Milk to bring it into line with the web address, and is easily recognised by our crying baby. In 2013 discussion boards at “everybody” moved to a new location and are now hosted by Kiwi Health, Pregnancy & Parenting.

FUNDING
Crying Over Spilt Milk and GRSNNZ is partially funded by the Lottery Grants Board and other funders, but is also supported by some volunteer hours.  (Please see the Links Page.) Some advertisements may be provided for members’ benefits and in reciprocal agreements.  Advertisements have no influence on the editorial content of Crying Over Spilt Milk and will be labelled as ”Advertisements”.  If you have any concerns regarding the suitability of an advert please use the contact form to advise the Website Manager of this, including the nature of the ad.

GRASP ACKNOWLEDGMENT
Gastric Reflux Association For The Support Of Parents/Babies (GRASP) was a support group that has ceased to operate and was a great source of information and support from people who had experience in this area. When GRASP closed in May 2001 they forwarded a pack to health professionals to help them support and inform families with babies/children with gastro-oesophageal reflux. GRSNNZ has since taken over some of the previous role of GRASP.

Written by Roslyn Ballantyne, National Coordinator and GRSNNZ Board of Trustees for © Crying Over Spilt Milk Gastric Reflux Support Network New Zealand for Parents of Infants and Children Charitable Trust 2013 to 2015.

  • The GRSNNZ 0800 number and cell phone is currently not being answered or messages cleared. I haven't had a chance to change the message on it either.
    I know there is a message there from last week I haven't cleared too.
    My daughter has been in hospital since Monday and we had several visits last week. I'll attend to the messages hopefully next week.

  • My 4 week old baby is on Ompreazole granules and we are going to start weaning him off in a few weeks to see how we go. I am considering starting him on probiotics to help this process. Can I give probiotics to a 4 week old or do I take them and he gets the benefit through my breastmilk? If I give it to him how do I administer it and what brand is best?

  • Alisha is now 3 1/2 months old, she is around 5 kg. We have had heaps of trouble with her. Put her on various medications and changes in my diet, then onto Neocate Formula with Losec Capsules. She has pretty much improved 100% from where she was a couple of months ago.

    My question is, what quantity of formula does your baby drink and roughly how long inbetween? I've been trying to give her three hours inbetween each feeding which she can manage totally fine. But when food is offered she hardly drinks much in a sitting. I can usually get 100ml of formula into her over an hour, sometimes takes me longer.

    Is this normal for a reflux baby??

  • Is infant gaviscon at all effective for 2.5 yesr old? my son reacts to ranitadine and omeprozole but has had a reflux flare up which is now resulting in vomiting after lying down in bed. He's even coughing and gaging on water during the day probably from the irritation in his throat etc. I'm having to wait quite some time after dinner to give him rice milk and again before attempting bed. It's pushing bedtime out too far with him not napping. Any suggestions? Can't pinpoint anything dietry wise that may be causing it.

  • Hi everyone. I'm after a bit of advice, my 20month old has recently commenced on liquid iron supplement (after we were told his iron levels are low from blood tests) but we've found its giving him a really sore tummy. Have tried halving the dose but I still have a tearful distressed little man on my hands. Does anyone have any ideas? Or can recommend something else.

  • Hi there, I'm wondering if someone could please advise me. I have been dairy free for 3 weeks today and introduced some back in today; just butter on one piece of toast and a splash of cows milk in 2 hot drinks. My daughter's been crying and not sleeping most of the day unless held. I've also been block feeding to try to prevent her choking etc on my fast flow, however Plunket advised I may like to rethink that now she's 8 weeks old so my supply doesn't diminish. She's a frequent feeder and I've managed to push her out to 2 1/2 hourly feeds over the last few weeks (on Plunket and Dr advice as they said her always feeding would make the reflux worse). She had been quite a bit better over the last week. Tonight I offered her the other breast at her feed as well, instead of the same one as usual and she had a good feed, so obviously needed it. But my goodness, the reflux has been really bad afterwards with lots of gagging and choking and pained crying etc etc (she's not much of a puker). I don't know if this is from having both breasts at the one feed (surely not) or she's super sensitive to the dairy? I'm wondering how long it will now take to see if there's improvement now that I've quit the dairy again? Please tell me it won't be a whole other 3 weeks again!! As I said, it was only a small amount reintroduced today.

  • Paging Rebecca who left a message on the Gastric Reflux Support Network NZ Support Answer Phone on Monday!
    Sorry, for some reason I can't return your call. Can you either text us again on 022 585 5935 or send us an email through the website (which is now working) - http://www.cryingoverspiltmilk.co.nz/contact/

    Contact Gastric Reflux Support Network New Zealand for Parents of Infants and Children Charitable Trust Phone/Text 022 585 5935 Phone 0800 380 517 * indicates required field Name:* Email:* Subject:* Message:* CAPTCHA Code:* Request Skype Call/Conversation using the form above. Page last updated…

  • Just trying to access the website about allowances in nz.. nothing will load?

  • In all the reading I've done about reflux babies it seems common that they don't settle to sleep to well
    During the day but will at night? Why is that?

  • I don't know if any of you have noticed, but as the website is having a lot of updates at the moment, I have started adding a blog about it to the website. The posts appear on the home page, under the Facebook Preview. Roslyn, National Coordinator.

    For infant and child gastric reflux support in New Zealand: Phone/Text 022 585 5935 Phone 0800 380 517 Contact GRSNNZ via email form Join Gastric Reflux Support Network NZ for Parents of Infants and Children Charitable Trust for access to our Newsletters and Private Local and National Support Networ…

  • Interesting article on dreamfeeds:

    Will ‘dream feeds’ work for your baby? Dorothy Waide shares her insights on this late night option.

  • does a thickener help for Elecare formula? It seems to be so thin and my little granddaughter is spilling a lot with this formula.Would welcome your feedback thanks

  • Christchurch people - there is a new post from someone needing help finding Karicare Aptamil Food Thickener. If you know where to find it, can you please reply on their post?
    Thank you!

  • Does anyone in CHCH know where to find the formula thickener for Elecare formula?? My wee one has just been put onto Elecare and I am finding it needs to be a bit thicker as she is bringing up a lot just like the breast milk. Not all pharmacies sell it

  • After some advice, I have a 10 week old with possible silent reflux ( just started gaviscon) we are wanting to progress to help him achieve self settling. Does anyone have any methods that worked? Absolutely no comfort in patting and shushing... Or am I asking too much from my little man that finds a lot of comfort in being rocked to sleep?

  • Hi all, Just wondering if someone could confirm for me that going dairy free means you can still have non cows milk products like sheep or goat products? I read the spilt milk site and seems to be a cows milk protein issues, not other types of animal products? I just ate sheeps feta then second guessed if it's OK.

  • My 16 month old just saw an allergist today and he told me it sounded like he had reflux. He had it as an infant but around 9 months he stopped needing meds and was fine, but now this winter he has stayed sick! So I'm really trying hard to wrap my head around this... I feel like my baby has been sick for months (stuffy, sneezing, coughing, wheezing, fever.. the list goes on and on) and it's just reflux! I mean if that's the case I guess I'm relieved because that seems like a simple fix. I just feel like he's really been suffering. His pedi was thinking he had asthma and sinus infections. The allergist did swab his nose to see if anything comes back on it but for now he is just taking nexxium(sp?) and a nasal spray.

  • Ignore my previous message (If you saw it), http://www.cryingoverspiltmilk.co.nz is back!

    For infant and child gastric reflux support in New Zealand: Phone/Text 022 585 5935 Phone 0800 380 517 Contact GRSNNZ via email form Join Gastric Reflux Support Network NZ for Parents of Infants and Children Charitable Trust for access to our Newsletters and Private Local and National Suppor…

  • I asked for a script for infant gaviscon and was given Acidex. Whats the difference?

  • Hoping for a bit of help/more advice. My now 8 week old baby has what we believe to be silent reflux, no one has actually diagnosed her with it, but have been given meds to help. She definitely regurgitates milk, and sometimes projectile vomits (she has only started doing this recently). I am getting so lost of what to do next, we have another appointment with the GP on Thursday, but in the mean time would love any advice on what I can do to help her.

    We started out on Infant Gaviscon, which didn't help much at all. Then onto Ranitidine, which didn't help either. We got prescribed Losec by my GP to use with gaviscon. Which seemed to help for two weeks, but now she is back to being so unsettled and unhappy. From birth she could only ever drink a small amount before she got really uncomfortable and started screaming, I started expressing to get an idea of what she is really drinking, which turned out to be bugger all, this was why i was feeding her 20 odd ml every 1/2 hr to an hour. I'm doing everything I can to help her, have got the bassinet head raised, burp after what seems to be every mouthful! I wear her in my wrap a fair bit during the day for some of her naps.

    I took her to the osteopath last week, and her said she was very sore and had a very tight diaphragm. Two nights later she slept 6 hours! But the next night she was back to a couple of hours at a time. I have another appointment on Thursday.

    As I have a 20 1/2 month old toddler and, expressing got too much as I could never find the time to do it, so now have her on Karicare Formula, which i'm not 100% sure if this is upsetting her stomach aswell. She was induced at 38 weeks as they were concerned about her growth, she was 6lb 3 oz at birth.

    What would be the best formula to have her on? She is still currently on losec and gaviscon. AND how can I ease the screaming after every feed? I'm really starting to stress alot about it and find myself getting pretty emotional.

    Thanks and sorry for the long story!
    Emma

  • Hi everyone, my daughter had severe gerd up until about 9 months and was treated with losec and gaviscon and eurthymician (sp). Four about 3 months she was really good, not needing any meds at all so we weened her off them. She has been med free for about 6 months, but the past two months we are back to screaming and crying every hour each night ( was previously a good night sleeper!) very unsettled etc, but no vomit . My question is can reflux suddenly come back ?

  • Just popping in to clarify our website/forum guidelines.
    Please see this page: http://www.cryingoverspiltmilk.co.nz/guidelines/
    In particular:

    "As the moderators, GRSNNZ reserves the right to remove or edit any posts:

    that recommend another medication as being better or to treat conditions that it is not indicated for

    where dosages of medications are being compared (especially in an unsafe manner) as each child is an individual with differing needs
    where personal advice is given on choosing a formula (sharing experiences is fine)

    where volumes of fluid drunken are counted and compared
    with personal attacks against other users including GRSNNZ staff

    Medications and prescription foods and formula may not be offered for sale/give away on these forums."

    And:

    "Please seek assistance from your Doctor, Midwife, Health Professional or Dietician about feeding your baby. "

    We are getting a lot of requests for advice regarding choosing formulas over the phone, by email and on the forum. Members can tell you their experiences, but they are only their experiences and do not apply to your baby. Please contact your health professional for advice in the first instance or Nutricia also have qualified dieticians.

    GRSNNZ supports the Baby Friendly Initiative and promotes Breastfeeding. GRSNNZ will not give personal advice on formula.

    Kind regards
    GRSNNZ Committee

    Site Guidelines Most of the information on Crying Over Spilt Milk is copyrighted and may not be reproduced on another site/publication without permission, but some may be printed for the personal use of families (and these pages will be clearly marked at the bottom with instructions.) Some material…

  • Please help i am desperate! My wee 9 week old is under a paediatrician forbreflux and a maybe dairy allergy. My milk supply is starring to drop and she has been given Elecare but she refuses to drink it. Have tried vanilla essence and mixing it with my breast milk but still no luck. Any help/advice will be greatly appreciated 😊

  • Hi. I am having real trouble settling my 9 week old baby, especially at night. I would like to wean her off me and have tried both pepti Jr and neocate but no luck. Also on ranitidine for refulx. Am i just best to breast feed or is there other options?

  • Sharing for your information. Please read the whole article - there are safe options.

    A survey of portable cots for sale in New Zealand has uncovered potentially fatal safety defects - including folding mechanisms that could trap a child's neck. - New Zealand Herald