About Crying Over Spilt Milk / GRSNNZ

GASTRIC REFLUX SUPPORT NETWORK NEW ZEALAND FOR PARENTS OF INFANTS AND CHILDREN CHARITABLE TRUST (GRSNNZ)

 

MISSION STATEMENT

GRSNNZ is committed to provide support and information to families caring for infants and children with gastric reflux throughout NZ.
GRSNNZ offers moral support, coping techniques, and endeavours to provide up to date information.
GRSNNZ intends to support parents to learn skills to cope with infant gastric reflux, and the effects it has on their families and lives.
GRSNNZ’s purpose is to hand back confidence to parents and guardians, and highlight the great work they do at home.
GRSNNZ will provide education to parents, families, communities and health professionals.

GRSNNZ believes that families living with Infant Gastric Reflux have the right to:
Support
Safe up to date Information
Confidentiality
Guidance to access community services
Contact with other parents and staff who understand

Phone/Text 022 585 5935
Phone: 0800 380 517

(The most efficient way to speak to one of the Gastric Reflux Support Network NZ staff is to text a message to 022 585 5935. Include your name, phone numbers or email and a brief explanation of why you are contacting us. We will contact you as soon as possible.)

For local support networks nationwide click here

Board of Trustees
Chair

Mrs. Nicoll
Mrs. Ballantyne
Mrs. Mackrell-Pearson
Mrs. Devine
Ms. McAlister
Sub Committee
Funding

Mrs. Ballantyne
Mrs. DevineAdvisory Forum
*Roslyn Ballantyne, RN, GRSNNZ Researcher, Writer, Website Manager and National Coordinator South Island
*Dr Rodney Ford, Paediatrician, GRSNNZ Medical Reviewer
*Jennifer Howard, Trained Community Karitane, Diploma Natural Therapies, Diploma Child Psychology, Parent Educator/Facilitator for Sport Waikato, GRSNNZ National Coordinator 2001 – 2013
*Rochelle Wilson, GRASP National Co-Coordinator 1995 – 2001, GRSNNZ Researcher and Advisor
*Fiona Kenworthy, Speech-Language Therapist, Child Development, Counties Manukau, Auckland University, Clinical Tutor, GRSNNZ AdvisorUpdated September 2013

Structure

National Office Staff
National Coordinator
Roslyn Ballantyne
Website Design and Maintenance
Roslyn BallantyneMessage Board Moderators
Roslyn Ballantyne
GRSNNZ Moderator (appointed)
Facebook Page Moderators
GRSNNZ Board of Trustees
Local Support Networks Supervisor
Roslyn BallantyneAdvertising
Mrs. Devine
Roslyn Ballantyne
Mrs. Mackrell-PearsonNewsletter Editors
Roslyn Ballantyne
GRSNNZ Board of Trustees

To become a member of GRSNNZ please complete this form: GRSNNZ Membership & Confidentiality Agreement Form. Becoming a member of GRSNNZ helps indicate the number of families coping with reflux within New Zealand and the problems or issues encountered. Membership is free.

Newsletters are sent to GRSNNZ members and like the information contained in Crying Over Spilt Milk is prepared for New Zealand residents.


Crying Over Spilt Milk WEBSITE INFORMATION

(This website (Crying Over Spilt Milk) belongs to, and is responsible to, the GRSNNZ Board of Trustees.)

Address: www.cryingoverspiltmilk.co.nz

MANAGER:
Roslyn Ballantyne
- Registered Nurse (RN) working part-time as a B4 School Check Provider, National Coordinator, GRSNNZ and mother of three including one child with GORD aged 13 years.

INFORMATION
The information contained in this site is from a variety of sources including G.R.A.S.P who have given us permission to use and edit their articles to stay relevant with current treatment and knowledge. Please see the source/author for each article, and be aware that many will have been written by parents from their own experience.
The information provided on this site should be considered to support and complement the relationship that exists between a patient and their physician, but not replace it. Information contained here is intended for New Zealand residents, but may be useful for residents of other countries. Please be aware that medication contents and names may differ in other countries, as may recommended treatment.

HISTORY
The original msn website “Infant Gastric Reflux Stories (NZ)” was created in March 2002 when the need for a permanent place for information became apparent to back up the reflux discussion board at “everybody” which had commenced in October 2001. In August 2003 IGRS became part of the Gastric Reflux Support Network New Zealand for Parents of Infants and Children Charitable Trust (GRSNNZ).
February 2004 GRSNNZ registered their own domain name and IGRS moved to www.cryingoverspiltmilk.co.nz making access easier and the address easily remembered by any parent of a baby with gastric reflux. The website has now been renamed Crying Over Spilt Milk to bring it into line with the web address, and is easily recognised by our crying baby. In 2013 discussion boards at “everybody” moved to a new location and are how hosted by Kiwi Health, Pregnancy & Parenting.

FUNDING
Crying Over Spilt Milk is mostly operated on a voluntary basis, but GRSNNZ is partially funded by the Lottery Grants Board. Some advertisements are provided for members’ benefits and in reciprocal agreements.  Advertisements have no influence on the editorial content of Crying Over Spilt Milk and are labelled as ”Advertisements”.  If you have any concerns regarding the suitability of an advert please use the contact form to advise the Website Manager of this, including the nature of the ad.

GRASP ACKNOWLEDGMENT
Gastric Reflux Association For The Support Of Parents/Babies (GRASP) was a support group that has ceased to operate and was a great source of information and support from people who had experience in this area. When GRASP closed in May 2001 they forwarded a pack to health professionals to help them support and inform families with babies/children with gastro-oesophageal reflux. GRSNNZ has since taken over some of the previous role of GRASP.

Written by Roslyn Ballantyne, National Coordinator and GRSNNZ Board of Trustees for © Crying Over Spilt Milk Gastric Reflux Support Network New Zealand for Parents of Infants and Children Charitable Trust 2013.

  • The GRSNNZ 0800 number and mobile will not be answered or messages cleared between these dates: 25th to 28th December and then again from 1st January to 11th January. You are welcome to leave a message or text and we will respond as soon as we are able.

  • http://pediatrics.aappublications.org/content/early/2011/10/12/peds.2011-2284.full.pdf
    Please note, from this article that raising the head of the bed to reduce gastro-oesophageal reflux is NOT recommended and is shown to be ineffective.
    I will edit http://www.cryingoverspiltmilk.co.nz as soon as I am able to.

  • I'm hoping someone here can share their experience with me as I'm at my wits end. My daughter is nearly 11 months old and has had chronic vomiting since she was about 5-6 months old (full feed vomits till there was nothing left, gagging, up to 9 times in 24hrs). After no doctors taking me seriously, and seeing 3 different doctors we finally got a barium swallow test done after taking her to the hospital out of desperation and it showed that she has severe reflux. I have accidentally eliminated gluten which has helped immensely but we still get 2-3 vomits a day. I'm waiting to hear from a paediatric doctor at the hospital for a follow up after the test but I'm just curious if anyone else has experienced this and what eventually helped? Or was it a case of managing it until they grow out of it? She was given liquid omeprazole a week ago but that only made it worse so i stopped giving it to her. Thanks in advance x

  • My sons 3 months, we've been in hospital his whole life but hoping to go home in next couple of days. He has liquad omeprozol via NG, i've heard that you have to pick it up from the pharmacy really reguarly be because once made up it looses it effectiveness quickly. How often do i need to get it made up?

  • This may need adapting a bit for infants and of course remember to think about allergens but some great advice: http://www.drlibby.com/stress/nutrients-herbs-help-children-calm-relaxed/?utm_campaign=December+Newsletter&utm_content=control&utm_medium=email&utm_source=vero&utm_term=Newsletter&vero_conv=365086097

    So often I hear parents exclaim that their children are wired and hyperactive, and it is usually late afternoon when parents are trying to run errands, cook dinner or get home from after-school activities. Quickly, wired children become grizzly and tired. Parents know the difference between when the…

  • can I please be added to the laryngomalacia page

  • My 7 week old has reflux. We went to see the paediatrician yesterday and he gave us Pepti Jr to try. Im dairy free as still partially breast feeding. He also prescribed neocate as a back up. Just wondering on anyone's thoughts about pepti jr as have heard alot of people haven't had any luck on it.

  • Help please. Our 4 month old suffers from silent reflux, he's been on omeprazole for 2 months now. Initially we saw significant improvement (different baby!). Unfortunately, things have really started to plateau (worsen) over the last week. We have had 3 consecutive nights of holding him right throughout the entire night. Any attempt to move him from being held completely upright see's him wake within seconds and start screaming in pain. It's harrowing. We have been advised by our Dr to increase his dose to (20mg) he's currently on (15mg). I'm really concerned as I feel there's going to be nowhere left to go if he doesn't grow out of the reflux soon :( Has anyone switched medicine from omeprazole to something else with good results? Can anyone please recommend a good paediatrician in the Auckland area who specialises in reflux? We're feeling a bit gutted in this household as we thought things were under control but definitely not the case at the moment :(

  • http://faithtap.com/2205/whatsupmoms-blank-space-parody/?v=1
    Just for some fun. We can all relate to parts of this.

    These busy moms take some time out of their schedule and create a parody of Taylor Swift’s "Blank Space" that will have every mom relating to the sleepless nights and the need for caffeine the next day to keep going. All in good fun, these three moms from "WhatsUpMoms" will have you laughing at thei…

  • December 2014 Newsletter - It is on its way out to members.
    If you are on the old Yahoo Mailing List it has been emailed earlier this afternoon, but sometimes gets marked as spam so check your spam/junk folders for it if it hasn't arrived.
    If you are on the new custom emailing list (i.e. not Yahoo), we are sending from a new server...slowly...Currently at 136 of 235. Talking to the webhosts about how we can make this faster next quarter.

    If you should have received one and don't by tomorrow, please contact us.

    If you aren't a member and would like a newsletter, it is easy and free: http://www.reflux.cryingoverspiltmilk.co.nz/grsnnz-membership-confidentiality-agreement-form/

    Gastric Reflux Support Network NZ for Parents of Infants & Children Charitable Trust Membership & Confidentiality Agreement Form / Newsletter Admin Page First Name Last name Email Street Address City/Town Area Postcode Do you live in NZ? Country and Area if not NZ Home Phone (include area code) Part…

  • Help please! Miss 7mths was finally diagnosed with reflux 2wks ago. She was pretty god during the day, no spilling anymore, crying occasionally with what I thought was wind but must have been acid, worst was getting her settled at night, took a couple of hours. We started on Gaviscon and it was great the first few days, except neither Dr nor chemist told me of constipation side effect (still not sure if we have her constipation sorted). So last Friday saw the Dr and got omeprazole, at first it helped but have found I still have to give gaviscon at bedtime breastfeed otherwise she won't settle. Now I am concerned as I just saw on the forum a post about omeprazole in suspension not being as effective and this is what we have. Also saw the comment about giving it with milk so it isn't affected by stomach acid. Chemist told me to give it 1/2hr before her first breastfeed of the day, I usually manage to give it 15-30min prior to feed. Finding I still can't give her a breastfeed or water too close to a sleep otherwise she wakes crying (usually wakes and just chats to herself) after about 30-45min, this is worrying me with this Auckland heat and humidity that she isn't having fluids often enough during the day. Maybe this is still happening due to Omeprazole not working properly?
    Now I don't know what to do. I am not looking for medical advice as such but I don't know if I can believe the advice of the Dr and Chemist who don't seem to be very knowledgeable about reflux. Do I still give it suspension or ask for granules? Suspension with a feed or before? My other 3 kids didn't have reflux and I am feeling very lost

  • Has anyone's baby got worse with their reflux after taking Ompremazole?It seems my wee grand daughter is.Any answers would be grateful.Thank you

  • Hi Moms out there! I am in South Africa and my little girl has just turned 2 years last week!
    She was diagnosed with silent reflux about 7 months ago and is currently on Zantac. I am at wits end.. still wakes up three times a night and just can't deal right now. We feel like zombies since the day she was born. We must sound like terrible parents but the lack of sleep is unbearable and the sleepless nights are relentless. She is now eating only gluten free food but there has been no difference
    . Are there any parents out there experiencing the same thing... i am just so heart broken for my little angel! thank you

  • Time for a cuppa chamomile tea and a gingerbread star...whilst I work.
    What are you doing today?

  • Help! How long does omeprazole take to kick in? I thought I saw on here someone say that they had to use gaviscon till it started working but the pharmacist told me it should work straight away. Yesterday was miss 7mths 2nd day of omeprazole and no gaviscon and we had a terrible night last night, she was hard to settle and didn't sleep well. At 2am I gave her gaviscon and she slept about 3-4hrs which was blast nights longest stretch. Just wondering if the omeprazole isn't working at its full potential yet. Thanks heaps

  • Does anyone have a child with laryngeophyrangeal reflux? My son was diagnosed a few months ago and has been on treatment with amazing results (thank goodness). Im just wondering if there is anything else I can do for him, and also if there is an average age they grow out of it. He is 20 months now. Thankyou

  • Gastric Reflux Support Network's page has got much busier and there are more posts to the page.
    Thanks to everyone who keeps on answering. I can't keep up, but it is wonderful to see everyone coming here for support.
    Roslyn, National Coordinator.

  • Has anyone used goats formula on their wee one with a dairy allergy? Am starting my twins on it today as one has dairy allergy and am exhausted from breast feeding so going to do a couple of bottle feeds per day

  • Hello. I read on the website that it recommends the NUK brown rubber teat pacifier. Does anyone know why in particular and where to purchase? Thanks.

  • A question on giving up dairy for relux please...

    Do you need to go 100% dairy free or does cutting back help? I drink ALOT of milk (ill go through nearly 4 litres a week, bit excessive). Can I still have milk in tea/a small amount of cheese etc, or do i need to go 100 % cold turkey?

    My daughter is 2.5 weeks old and is doing alot of regurgitating, back arching/night crying, has acid smelling breath, gets frequent hiccups, coughs and gags alot and cries every time I lay her down. Shall I book a GP visit ASAP? What is usually the first treatment they try?

    Many thanks :)

  • http://www.cryingoverspiltmilk.co.nz/new-baby-on-the-way-taking-probiotics/ - New story from one of our Kiwi Health, Pregnancy and Parenting Forum users. Nice to have positive stories.

    Well I thought I would update you all on our baby. She was born on 24th August, the day before her due date and on my birthday. I was taking 3 x 2 caps of Probiotics per day in the last month of pregnancy which can seem excessive, but as I can’t overdose on them and I only get one chance...

  • Are there any breastfeeding Mums out there? My little girl is about to turn 7mths and has finally been diagnosed with silent reflux (alot of people dismissed me when I suggested it months ago). We have started on Gaviscon sachets nearly 48hrs ago and she is much better especially at settling in the evening. She is usually OK at night so haven't given her the powder when she wakes at night yet. Any tips on how to use at night? I have been mixing it up and syringing it into her mouth. Packet says not to make up in advance but I wondered if I could for nighttime so I don't have to make it up when she wakes. Thanks

  • Anyone else dealing with older children with reflux would love to hear from you my Miss 11 year old seems to be having a relapse . So after nearly 4 years losec free in this household we have it back.

  • There have been some new posts - sorry I haven't had a chance to pop on over and answer. Can anyone share their experiences? Remember, no medical advice. :-)

  • As per my post yesterday, our membership form and newsletter archive for members is now available again.

    Please consider joining Gastric Reflux Support Network NZ for Parents of Infants and Children Charitable Trust for access to our Newsletters and Private Local and National Support Networks: http://www.reflux.cryingoverspiltmilk.co.nz/grsnnz-membership-confidentiality-agreement-form/ Membership is free, and this gives you opportunities to discuss gastric reflux related issues with others in a safe and confidential setting.

    Thanks to one of our amazing webhosts http://www.webmad.co.nz/ for the smooth change-over.

    Gastric Reflux Support Network NZ for Parents of Infants & Children Charitable Trust Membership & Confidentiality Agreement Form / Newsletter Admin Page First Name Last name Email Street Address City/Town Area Postcode Do you live in NZ? Country and Area if not NZ Home Phone (include area code) Part…