About Crying Over Spilt Milk / GRSNNZ

GASTRIC REFLUX SUPPORT NETWORK NEW ZEALAND FOR PARENTS OF INFANTS AND CHILDREN CHARITABLE TRUST (GRSNNZ)

Charities Registration Number: CC26780.geralt / Pixabay

MISSION STATEMENT

GRSNNZ is committed to provide support and information to families caring for infants and children with gastric reflux and associated conditions throughout NZ.
GRSNNZ offers moral support, coping techniques, and endeavours to provide up to date information.
GRSNNZ intends to support parents to learn skills to cope with infant gastric reflux, and the effects it has on their families and lives.
GRSNNZ’s purpose is to hand back confidence to parents and guardians, and highlight the great work they do at home.
GRSNNZ will provide education to parents, families, communities and health professionals.

GRSNNZ believes that families living with Infant Gastric Reflux have the right to:
Support
Safe up to date Information
Confidentiality
Guidance to access community services
Contact with other parents and staff who understand

Phone/Text 022 585 5935
Phone: 0800 380 517

(The most efficient way to speak to one of the Gastric Reflux Support Network NZ staff is to text a message to 022 585 5935. Include your name, phone numbers or email and a brief explanation of why you are contacting us. We will contact you as soon as possible.)

For local support networks nationwide click here

Board of Trustees and Committee
Chair

Mrs. Nicoll
Mrs. Ballantyne
Mrs. Giblin
Mrs. Devine
Ms. McAlister

Committee Member
Mrs. Hopgood

Sub Committee
Funding

Mrs. Ballantyne
Mrs. Devine

Advisory Forum
*Roslyn Ballantyne, RN, GRSNNZ Researcher, Writer, Website Manager and National Coordinator South Island
*Dr Rodney Ford, Paediatrician, GRSNNZ Medical Reviewer
*Jennifer Howard, Trained Community Karitane, Diploma Natural Therapies, Diploma Child Psychology, Parent Educator/Facilitator for Sport Waikato, GRSNNZ National Coordinator 2001 – 2013
*Rochelle Wilson, GRASP National Co-Coordinator 1995 – 2001, GRSNNZ Researcher and Advisor
*Fiona Kenworthy, Speech-Language Therapist, Child Development, Counties Manukau, Auckland University, Clinical Tutor, GRSNNZ Advisor

Updated January 2016

Structure

National Office Staff
National Coordinator
Roslyn Ballantyne

Website Design and Maintenance
Roslyn Ballantyne

Message Board Moderators
Roslyn Ballantyne
GRSNNZ Moderators (appointed)
Facebook Page Moderators
GRSNNZ Committee Members

Local Support Networks Supervisor
Roslyn Ballantyne
Local appointed GRSNNZ Members

Advertising
Mrs. Devine
Roslyn Ballantyne
Mrs. Mackrell-Pearson

Newsletter Editors
Roslyn Ballantyne
GRSNNZ Board of Trustees

To become a member of GRSNNZ please complete this form: GRSNNZ Membership & Confidentiality Agreement Form. Becoming a member of GRSNNZ helps indicate the number of families coping with reflux within New Zealand and the problems or issues encountered. Membership is free.

Newsletters are sent to GRSNNZ members and like the information contained in Crying Over Spilt Milk is prepared for New Zealand residents.


Crying Over Spilt Milk WEBSITE INFORMATION

(This website (Crying Over Spilt Milk) belongs to, and is responsible to, the GRSNNZ Board of Trustees.)

Address: www.cryingoverspiltmilk.co.nz

MANAGER:
Roslyn Ballantyne
– working part-time as a Registered Nurse (RN), National Coordinator, GRSNNZ and mother of three including one with GORD born in 2000.

INFORMATION
The information contained in this site is from a variety of sources including G.R.A.S.P who have given us permission to use and edit their articles to stay relevant with current treatment and knowledge. Please see the source/author for each article, and be aware that many will have been written by parents from their own experience.
The information provided on this site should be considered to support and complement the relationship that exists between a patient and their physician, but not replace it. Information contained here is intended for New Zealand residents, but may be useful for residents of other countries. Please be aware that medication contents and names may differ in other countries, as may recommended treatment.

HISTORY
The original msn website “Infant Gastric Reflux Stories (NZ)” was created in March 2002 when the need for a permanent place for information became apparent to back up the reflux discussion board at “everybody” which had commenced in October 2001. In August 2003 IGRS became part of the Gastric Reflux Support Network New Zealand for Parents of Infants and Children Charitable Trust (GRSNNZ).
February 2004 GRSNNZ registered their own domain name and IGRS moved to www.cryingoverspiltmilk.co.nz making access easier and the address easily remembered by any parent of a baby with gastric reflux. The website has now been renamed Crying Over Spilt Milk to bring it into line with the web address, and is easily recognised by our crying baby. In 2013 the discussion boards at “everybody” were discontinued.  GRSNNZ’s main form of social media is now Facebook.

FUNDING
Crying Over Spilt Milk and GRSNNZ is partially funded by the Lottery Grants Board and other funders, but is also supported by some volunteer hours.  (Please see the Links Page.) Some advertisements may be provided for members’ benefits and in reciprocal agreements.  Advertisements have no influence on the editorial content of Crying Over Spilt Milk and will be labelled as ”Advertisements”.  If you have any concerns regarding the suitability of an advert please use the contact form to advise the Website Manager of this, including the nature of the ad.

GRASP ACKNOWLEDGMENT
Gastric Reflux Association For The Support Of Parents/Babies (GRASP) was a support group that has ceased to operate and was a great source of information and support from people who had experience in this area. When GRASP closed in May 2001 they forwarded a pack to health professionals to help them support and inform families with babies/children with gastro-oesophageal reflux. GRSNNZ has since taken over some of the previous role of GRASP.

Written by Roslyn Ballantyne, National Coordinator and GRSNNZ Board of Trustees for © Crying Over Spilt Milk Gastric Reflux Support Network New Zealand for Parents of Infants and Children Charitable Trust 2013 to 2015.

  • Has anyones bub had a fundoplication surgery? My almost 9 month old is having one as is failing to thrive and no meds or anything helping. Also what are the best solids for her with her oesaphagitis? Thanks

  • hi i have a little girl that will be 4 weeks old on thursday. we have been having abit of trouble with her spilling/bringing up with some of her feeds this can be between 10ml and what seems like a whole feed i am breastfeeding but due to not producing enough i need to top her up with either EBM/doner milk or formula i am currently using nurture gold 1 in her bottles. when bottle feeding i have her more upright almost in a sitting position then let her chill to let milk settle before burping but yet the milk still tends to come up normally she will gag before hand. is there any type of formula that could help or just thinkening agents to put in the formula or would anything like gripewater or inficol to help bring the wind to the top on her tummy to keep the milk down? any advice would be great. thanks in advance.

  • hi my little girl is going to be 4 week old on thursday and we are having trouble with her spilling/bringing up at possibly half of her feed times this can be between 10ml to what seems like a full feed. i am breast feeding but due to not producing enough i am topping her up with either EBM/doner milk or formula i am currently using nurture gold 1 (since thats all my local dairy had at the time. during bottle feeds i have her almost sitting right up then let her chill in that same position for at least a minute then burp for maybe good 5 minutes but still she tends to bring it up normally she will gag then up comes the milk. she is not really bothered by it at all. is there any cant of thicker formula that i can swtich to or are the thickeners thatyou put in the only option? would something like gripewater or inficol work to help get the wind threw the milk so the milk stays down? any advise would be great. thanks in advance. 🙂

  • What you speak often becomes the truth for those who hear, including your self-talk. Be kind to yourself too. Big hugs to everyone out there who are coping with infant and child Gastric Reflux and associated conditions. You are loving caring parents to your wonderful strong children.

  • Thinking of everyone affected by the recent earthquakes. It certainly gave us a good shake here, but we have no damage. Here is a good article published by Treasures.

  • Had peadetrician appt this morning. End result being a formal diagnosis of severe reflux and an another appointment in a week or so with ENT specialist to check his nasal passage and osephagus. Need to use both gavisone and losec. Bad sleep during day is probably due to reflux. But he is also flat lining in his weight gain, so need weekly weigh ins and have a minimum amount to try and get into him, but he's starting to refuse feeds so its getting more difficult. At the end of the appointment she said we're doing all we can and that she wishes there was something she could do to make it better but it's not likely to get better anytime soon. I burst into tears at that

  • Hi just wanting more info!!my daughter is 3 months old and only 4 weeks ago had a virus, which seem to being on reflux. The pediatrician then after going back twice decide that she has slient reflux, they were not helpful just told me to give her gavison, but that made her very constipated . So went back to gp and got losec, which I am very unsure about giving it to her. She seems to have a few good days then bad , tensing up so bad and not sleeping, is that normal?? Also can losec upset her tummy more , can i give it to her with pear at her age?? Im just giving to her by puting them in her mouth in the afternoon. Need help one unsettled baby girl 😫

  • BreastFedNZ App - Short App Survey - Sent by GRSNNZ

  • Does anyone have experience with apnoeas and a baby who has outgrown these? Can you share your experience with someone who has posted? Please see posts to the page.

  • Just a question to those mums and dads with infants who suffer with Apnea. When did your little one grow out of apnea episodes? My little one is 6 months and had one on Friday. It's really scaring me and the paediatrician at the hospital said he would grow out of them but Ive got no idea when this is meant to happen. I know every child is different Im just finding it really hard to cope with the anxiety of when it could happen next. Thanks in advance.

  • Sara wants to get in touch with others that have a child who has had to have a gastrostomy due to reflux. See posts to page if you can help.

  • Has anyone had their babies needing a gastrostomy/peg/mikey button purely for reflux? Would love to get in touch with anyone who has! Thankyou!

  • https://m.facebook.com/starshipfoundation/photos/a.404110593784.167013.124721253784/10154021067883785/?type=3&fs=1

  • Another good article. It talks about tantrums as well and says this: "Young children are still learning how to communicate, and their language abilities aren’t very sophisticated yet." That makes sense as to why our toddlers with ongoing pain from reflux can have tantrums in response to pain. They either don't have the ability to communicate what they are feeling or maybe are so overwhelmed that they can't communicate it. Does anyone else relate to this? PS: I love this picture I found. http://childmind.org/article/how-discipline-toddlers/?utm_medium=email&utm_source=childmind&utm_content=4+-+How+to+Discipline+Toddlers&utm_campaign=Weekly+092716&source=Weekly+092716

  • Emma has asked a question about whether others have a child who's Gastric Reflux has returned. Please see the visitor's posts to page.

  • Has anyone's baby had infant reflux that resolved itself over time, but has then returned months later?

  • I like the message from Emily at the end to other mothers "Dear mother, You are brave. You are strong. It is a sign of your love for your children and your partner that you’re getting help so that you can be the best mother you can be. It will be OK."

  • Please see the visitor posts to the page, and share your experiences with first solids.

  • Hey all. My son has GERD and we have just started introducing solids. I was wondering what solids you introduced that had either had an effect or no effect on your little ones reflux?

  • Have you had luck removing stains? Can you share these with Michaela? See posts to the page and reply there please.

  • Hoping I have a straight forward question, how do you get stains out of your (and your baby's) clothes. I find I can get milk stains out but when my DD spits up pure stomach acid I'm finding I can't get the smell or stains out. Does anyone have any good tips?

  • https://m.facebook.com/purpleclvr/photos/a.375609882543951.1073741828.369508529820753/1557557571015837/?type=3&fs=1

  • This chat with Plunket might be of use to some of you.