About Crying Over Spilt Milk / GRSNNZ

GASTRIC REFLUX SUPPORT NETWORK NEW ZEALAND FOR PARENTS OF INFANTS AND CHILDREN CHARITABLE TRUST (GRSNNZ)

Charities Registration Number: CC26780.geralt / Pixabay

MISSION STATEMENT

GRSNNZ is committed to provide support and information to families caring for infants and children with gastric reflux throughout NZ.
GRSNNZ offers moral support, coping techniques, and endeavours to provide up to date information.
GRSNNZ intends to support parents to learn skills to cope with infant gastric reflux, and the effects it has on their families and lives.
GRSNNZ’s purpose is to hand back confidence to parents and guardians, and highlight the great work they do at home.
GRSNNZ will provide education to parents, families, communities and health professionals.

GRSNNZ believes that families living with Infant Gastric Reflux have the right to:
Support
Safe up to date Information
Confidentiality
Guidance to access community services
Contact with other parents and staff who understand

Phone/Text 022 585 5935
Phone: 0800 380 517

(The most efficient way to speak to one of the Gastric Reflux Support Network NZ staff is to text a message to 022 585 5935. Include your name, phone numbers or email and a brief explanation of why you are contacting us. We will contact you as soon as possible.)

For local support networks nationwide click here

Board of Trustees
Chair

Mrs. Nicoll
Mrs. Ballantyne
Mrs. Mackrell-Pearson
Mrs. Devine
Ms. McAlister

Sub Committee
Funding

Mrs. Ballantyne
Mrs. Devine

Advisory Forum
*Roslyn Ballantyne, RN, GRSNNZ Researcher, Writer, Website Manager and National Coordinator South Island
*Dr Rodney Ford, Paediatrician, GRSNNZ Medical Reviewer
*Jennifer Howard, Trained Community Karitane, Diploma Natural Therapies, Diploma Child Psychology, Parent Educator/Facilitator for Sport Waikato, GRSNNZ National Coordinator 2001 – 2013
*Rochelle Wilson, GRASP National Co-Coordinator 1995 – 2001, GRSNNZ Researcher and Advisor
*Fiona Kenworthy, Speech-Language Therapist, Child Development, Counties Manukau, Auckland University, Clinical Tutor, GRSNNZ Advisor

Updated September 2013

Structure

National Office Staff
National Coordinator
Roslyn Ballantyne

Website Design and Maintenance
Roslyn Ballantyne

Message Board Moderators
Roslyn Ballantyne
GRSNNZ Moderator (appointed)
Facebook Page Moderators
GRSNNZ Board of Trustees

Local Support Networks Supervisor
Roslyn Ballantyne
Local appointed GRSNNZ Members

Advertising
Mrs. Devine
Roslyn Ballantyne
Mrs. Mackrell-Pearson

Newsletter Editors
Roslyn Ballantyne
GRSNNZ Board of Trustees

To become a member of GRSNNZ please complete this form: GRSNNZ Membership & Confidentiality Agreement Form. Becoming a member of GRSNNZ helps indicate the number of families coping with reflux within New Zealand and the problems or issues encountered. Membership is free.

Newsletters are sent to GRSNNZ members and like the information contained in Crying Over Spilt Milk is prepared for New Zealand residents.


Crying Over Spilt Milk WEBSITE INFORMATION

(This website (Crying Over Spilt Milk) belongs to, and is responsible to, the GRSNNZ Board of Trustees.)

Address: www.cryingoverspiltmilk.co.nz

MANAGER:
Roslyn Ballantyne
- Registered Nurse (RN) working part-time as a B4 School Check Provider, National Coordinator, GRSNNZ and mother of three including one child with GORD aged born in 2000.

INFORMATION
The information contained in this site is from a variety of sources including G.R.A.S.P who have given us permission to use and edit their articles to stay relevant with current treatment and knowledge. Please see the source/author for each article, and be aware that many will have been written by parents from their own experience.
The information provided on this site should be considered to support and complement the relationship that exists between a patient and their physician, but not replace it. Information contained here is intended for New Zealand residents, but may be useful for residents of other countries. Please be aware that medication contents and names may differ in other countries, as may recommended treatment.

HISTORY
The original msn website “Infant Gastric Reflux Stories (NZ)” was created in March 2002 when the need for a permanent place for information became apparent to back up the reflux discussion board at “everybody” which had commenced in October 2001. In August 2003 IGRS became part of the Gastric Reflux Support Network New Zealand for Parents of Infants and Children Charitable Trust (GRSNNZ).
February 2004 GRSNNZ registered their own domain name and IGRS moved to www.cryingoverspiltmilk.co.nz making access easier and the address easily remembered by any parent of a baby with gastric reflux. The website has now been renamed Crying Over Spilt Milk to bring it into line with the web address, and is easily recognised by our crying baby. In 2013 discussion boards at “everybody” moved to a new location and are now hosted by Kiwi Health, Pregnancy & Parenting.

FUNDING
Crying Over Spilt Milk and GRSNNZ is partially funded by the Lottery Grants Board and other funders, but is also supported by some volunteer hours.  (Please see the Links Page.) Some advertisements may be provided for members’ benefits and in reciprocal agreements.  Advertisements have no influence on the editorial content of Crying Over Spilt Milk and will be labelled as ”Advertisements”.  If you have any concerns regarding the suitability of an advert please use the contact form to advise the Website Manager of this, including the nature of the ad.

GRASP ACKNOWLEDGMENT
Gastric Reflux Association For The Support Of Parents/Babies (GRASP) was a support group that has ceased to operate and was a great source of information and support from people who had experience in this area. When GRASP closed in May 2001 they forwarded a pack to health professionals to help them support and inform families with babies/children with gastro-oesophageal reflux. GRSNNZ has since taken over some of the previous role of GRASP.

Written by Roslyn Ballantyne, National Coordinator and GRSNNZ Board of Trustees for © Crying Over Spilt Milk Gastric Reflux Support Network New Zealand for Parents of Infants and Children Charitable Trust 2013 to 2015.

  • Gastric Reflux Support Network NZ shared Inspiring and Positive Quotes's photo.

    I had to share this one!

    Inspiring and Positive Quotes <3

  • Those walking on a similar path are more likely to understand.

  • Gastric Reflux Support Network NZ shared Inspiring and Positive Quotes's photo.

    Inspiring and Positive Quotes <3

  • Gastric Reflux Support Network NZ shared a page.

  • This is GRSNNZ's new additional website. It has it's own Facebook Page attached to it. We were aware that there was a group of parents who were not getting the support that they needed as although they were stressed by their situation, their babies were not deemed to have gastric reflux. Please let anyone you know who might benefit from support with others about the website and associated social media.

    Welcome to “Spilt Milk”! The aim of this website is to provide information and support for parents or caregivers who are stressed by coping with their infant who spills and/or is irritable. The hope would be that by participating with others with similar challenges and experiences, that a...

  • Hi Roz and team just to let you know we are re branding from Mothers Matter to PND Canterbury and the new website went live last week http://www.pndcanterbury.co.nz. There is a page on support for Canterbury. If there are any Mums/Dads with any questions please get in touch supportgroup@pndcanterbury.co.nz or call me on 021 131 4352 Sonya. :) I to had a reflux baby through to about 3 years so I really do get it.

    Postnatal Depression Family/Whanau NZ Trust. Our mission: To support the wellness of mothers and their familes who are suffering from postnatal depression (PND) and other related mental illnesses.

  • Jess McBrearty :)

  • My daughter was discharged from hospital last Monday, but is still very unwell. I processed all the membership forms last week (except for one that has since come in) and have finally come up for air.
    I've just turned on the phone and cleared the messages, but I only have one. I know there was at least one other from 27 February, but the phone hasn't saved it. Please phone back! I would love to talk to you.

  • The GRSNNZ 0800 number and cell phone is currently not being answered or messages cleared. I haven't had a chance to change the message on it either.
    I know there is a message there from last week I haven't cleared too.
    My daughter has been in hospital since Monday and we had several visits last week. I'll attend to the messages hopefully next week.

  • My 4 week old baby is on Ompreazole granules and we are going to start weaning him off in a few weeks to see how we go. I am considering starting him on probiotics to help this process. Can I give probiotics to a 4 week old or do I take them and he gets the benefit through my breastmilk? If I give it to him how do I administer it and what brand is best?

  • Alisha is now 3 1/2 months old, she is around 5 kg. We have had heaps of trouble with her. Put her on various medications and changes in my diet, then onto Neocate Formula with Losec Capsules. She has pretty much improved 100% from where she was a couple of months ago.

    My question is, what quantity of formula does your baby drink and roughly how long inbetween? I've been trying to give her three hours inbetween each feeding which she can manage totally fine. But when food is offered she hardly drinks much in a sitting. I can usually get 100ml of formula into her over an hour, sometimes takes me longer.

    Is this normal for a reflux baby??

  • Gastric Reflux Support Network NZ shared Positive Parenting: Toddlers and Beyond's photo.

  • Is infant gaviscon at all effective for 2.5 yesr old? my son reacts to ranitadine and omeprozole but has had a reflux flare up which is now resulting in vomiting after lying down in bed. He's even coughing and gaging on water during the day probably from the irritation in his throat etc. I'm having to wait quite some time after dinner to give him rice milk and again before attempting bed. It's pushing bedtime out too far with him not napping. Any suggestions? Can't pinpoint anything dietry wise that may be causing it.

  • Gastric Reflux Support Network NZ shared Inspiring and Positive Quotes's photo.

    So true!

    Inspiring and Positive Quotes <3

  • Hi everyone. I'm after a bit of advice, my 20month old has recently commenced on liquid iron supplement (after we were told his iron levels are low from blood tests) but we've found its giving him a really sore tummy. Have tried halving the dose but I still have a tearful distressed little man on my hands. Does anyone have any ideas? Or can recommend something else.

  • Hi there, I'm wondering if someone could please advise me. I have been dairy free for 3 weeks today and introduced some back in today; just butter on one piece of toast and a splash of cows milk in 2 hot drinks. My daughter's been crying and not sleeping most of the day unless held. I've also been block feeding to try to prevent her choking etc on my fast flow, however Plunket advised I may like to rethink that now she's 8 weeks old so my supply doesn't diminish. She's a frequent feeder and I've managed to push her out to 2 1/2 hourly feeds over the last few weeks (on Plunket and Dr advice as they said her always feeding would make the reflux worse). She had been quite a bit better over the last week. Tonight I offered her the other breast at her feed as well, instead of the same one as usual and she had a good feed, so obviously needed it. But my goodness, the reflux has been really bad afterwards with lots of gagging and choking and pained crying etc etc (she's not much of a puker). I don't know if this is from having both breasts at the one feed (surely not) or she's super sensitive to the dairy? I'm wondering how long it will now take to see if there's improvement now that I've quit the dairy again? Please tell me it won't be a whole other 3 weeks again!! As I said, it was only a small amount reintroduced today.

  • Paging Rebecca who left a message on the Gastric Reflux Support Network NZ Support Answer Phone on Monday!
    Sorry, for some reason I can't return your call. Can you either text us again on 022 585 5935 or send us an email through the website (which is now working) - http://www.cryingoverspiltmilk.co.nz/contact/

    Contact Gastric Reflux Support Network New Zealand for Parents of Infants and Children Charitable Trust Phone/Text 022 585 5935 Phone 0800 380 517 * indicates required field Name:* Email:* Subject:* Message:* CAPTCHA Code:* Request Skype Call/Conversation using the form above. Page last updated…

  • Just trying to access the website about allowances in nz.. nothing will load?

  • In all the reading I've done about reflux babies it seems common that they don't settle to sleep to well
    During the day but will at night? Why is that?

  • I don't know if any of you have noticed, but as the website is having a lot of updates at the moment, I have started adding a blog about it to the website. The posts appear on the home page, under the Facebook Preview. Roslyn, National Coordinator.

    For infant and child gastric reflux support in New Zealand: Phone/Text 022 585 5935 Phone 0800 380 517 Contact GRSNNZ via email form Join Gastric Reflux Support Network NZ for Parents of Infants and Children Charitable Trust for access to our Newsletters and Private Local and National Support Networ…

  • Gastric Reflux Support Network NZ shared Inspiring and Positive Quotes's photo.

    :-) :-) :-) :-) :-)

    Inspiring and Positive Quotes <3

  • Interesting article on dreamfeeds:

    Will ‘dream feeds’ work for your baby? Dorothy Waide shares her insights on this late night option.

  • does a thickener help for Elecare formula? It seems to be so thin and my little granddaughter is spilling a lot with this formula.Would welcome your feedback thanks

  • Christchurch people - there is a new post from someone needing help finding Karicare Aptamil Food Thickener. If you know where to find it, can you please reply on their post?
    Thank you!

  • Does anyone in CHCH know where to find the formula thickener for Elecare formula?? My wee one has just been put onto Elecare and I am finding it needs to be a bit thicker as she is bringing up a lot just like the breast milk. Not all pharmacies sell it