#‎NationalInfantandChildGastricRefluxAwarenessWeek 2015‬ Story 3

The moment you first get handed your child says it all, it sets the scene for what is your future, or at least that’s how it felt for me. My daughter seemed to come out fighting, boxing gloves and all, ready to attack this world; and as it turned out the burning inside her was literal.gloves_1433643426-843x1024

Reflux seemed such a dirty word, whenever I spoke it people’s faces seemed to either screw up in pity or provide an expression of disbelief. The ‘stigma’ was the worst. Everybody seemed to either know it all and offer their advice which only seemed to judge and I felt like I was doing it all wrong, or they didn’t understand and shrugged it off as a non-issue so that I was made to feel as if I was making it all up. ‘Surely my baby wasn’t really ‘projectile’ vomiting, I couldn’t have possibly seen blood in her spills and of course there was no way she cried for hours and hardly slept’. The lifeline was an online community where my story seemed to ring true; and in the rare people who did understand from their own experience.

O’s GORD was severe. I felt like I was drowning. We worked hard on sleeping from the start and though I felt like we weren’t getting anywhere at the time, it really paid off in the end. Little miss independent had to deal with it on her own sometimes and developing some sleep independence was crucial for her because having a routine and knowing what was happening and when was her ‘safety blanket’. I researched everything and felt like I tried everything. She would cry anywhere from 30 minutes to over an hour every night to get to sleep and if she woke screaming in the night it could take 2 hours to get her back to sleep. We were expected to just manage. We skimmed the line of ‘healthy weight gain’ but only because I was determined not to let the reflux win and did everything I could to make it from one day to the next.

There were many times I felt like I wanted to be the one to sit on the floor and ‘throw my toys out of the cot’. The hardest moment was when I realised I had forgotten to enjoy and have fun with my baby. The day when you hear them chuckle with another person and you realise it’s the first time they have laughed, ever and it wasn’t with you.

But, we found a way through and there were happy memories too. Those are the ones you remember more that the worst.

View the original #‎NationalInfantandChildGastricRefluxAwarenessWeek‬ 2015 Story 3

© Erika, GRSNNZ Member and Crying Over Spilt Milk Gastric Reflux Support Network New Zealand for Parents of Infants and Children Charitable Trust June 2015

#NationalInfantandChildGastricRefluxAwarenessWeek 2015‬ – Tips on coping…

The following is created from a thread during National Infant and Child Gastric Reflux Awareness Week on our Facebook Page https://www.facebook.com/hashtag/nationalinfantandchildgastricrefluxawarenessweek

There were 38 comments with advice or tips on how parents coped with infants or children with gastric reflux and I’ve included some of these below:

  • Always have a cloth on hand when breastfeeding to stem the flow of milk when baby starts spluttering with reflux, and never look flustered when this happens in public or you may end up not going anywhere.
  • Forget all the things you said you would never do when you were a parent…..a reflux baby is a whole new ball game & you just need to do whatever works at the time. What works one day may not work the next so be prepared to follow what your baby needs at the time. Don’t listen to all the advice you are given by parents who haven’t had a reflux baby & be confident in yourself that YOU know your baby better than anyone else, & you need to do what works for you & your baby, not what worked for someone else
  • Remember there is no one correct way to treat or parent our infants and children with gastric reflux so remain flexible, but keep safety first.
  • When the screaming just seems to get too much, go for a walk and a cuddle with your little one even around the garden. Being trapped in the house with only the screaming in your ear is not good for the soul. At least outside there are distractions for both of you and the screaming is not so loud.
  • My children are four-and-a half and almost six. I did have to LOL at the question how did you cope. I still don’t know how I got through it. My children both had milk protein allergies so reflux was secondary. I had always said I would never use a dummy, but when my sonPACIFIER was about three days and had screamed since the second he was born, I was like please take the dummy. Had heaps of bibs; I had to layer three at a time and when feeding I would use a towel then layers of old style cloth nappies and have face cloths on hand. It’s really important to have support.  When my second child was two I discovered playcentre and I so wish I had known about it during that critical time when I struggled to get till lunch time let alone till the end of the day. I wish I had been at playcentre and had half a dozen people there who would love to hold my baby for me while I could just breathe and have a break. 
  • Cloth nappies are a necessity (and they aren’t for the bottom) and a pushchair is also not just a necessity but a life saver!!! When things get bad go for a walk; if they won’t sleep a foot pushing the pushchair wheel back and forwards at least gives you a little time to do something else with your hands!
  • My husband and I shared 15 minutes each of screaming, and on nice nights would walk outside with the baby so the person inside got a break. If husband not there, and you really need a break, ask someone else. People want to help when they see the pain for baby and you! Short time in their lives.
  • Remind yourself that this is not your baby’s personality. They are crying from discomfort and when things become better, which they will, you’ll see their delightful little personality shining through.
  • Ignore the other (mostly well-meaning) parents that say ‘oh yeah, reflux, my baby has that’ when you know for sure that they have no idea what they’re talking about.
  • To do whatever works. Relax your parenting ideas and learn to go with the flow. You’ll need to take babies lead a lot of the time rather than sticking to strict routines etc.
  • Invest in good front pack…they are filled with magical sleepydust!  Life saver for me.  Absolute lifesaver. Yes! (x 5 comments combined)
  • Oh, and invest in a bulk load of good carpet stain remover or your house will stink of vomit and curdled milk forever…
  • The use of a dummy. Life/sanity saver for us.
  • Feeding in the bath/shower helped me settle during the bad times.
  • Pick your battles. For example if you wanted to use cloth nappies, but things are too hard and you are putting too much pressure on yourself, just use disposables. Be kind to yourself.
  • It’s okay to ask for help and to accept the help.
  • Dairy free diet!
  • Determination.  Always think that you will get through to the other side. By this I mean fight for your child as you are their voice. This was what kept me going.
  • Remember it is not for forever.
  • Find something that make you smile or laugh at least once a day. A good comedy show for the bad days.
  • Bath Bub in a bucket (a cheap one works fine) so they are upright, nice and warm.  This was the only time my Bub was happy.  It seemed to help with any trapped wind.
  • A moby wrap for my youngest was a lifesaver for me. For my eldest it was being correctly diagnosed and prescribed medication that worked in her case. I must say, not to be afraid to ask for help and have some time just for yourself as reflux babies can be so draining.
  • Work out any intolerances, get support including for sleep, friends, family, home start, keep pestering for appointments with paediatricians, ask for any cancellations, go armed with information and nice guidelines to GP and paediatrician appointments, keep fighting, fresh air and walking, iPod with happy music to tone down the screams, helps calm you and then LO. This will pass! LO will not remember it (hopefully!)
  • Use a dummy / tv / medication as recommended and prescribed, whatever worked to help you and bub get through and don’t feel guilty. I wish someone had told me that.
  • Forget about any routine and just try to get through it as best as you can. Remember it won’t be this way forever and try to lower your expectations. Buy a sling and lots of muzzies x.
  • The importance of optimum burping and techniques to do so. Changed our lives!  Also my midwife constantly telling me I was a good Mum and that I was faced with these challenges because I was strong enough to overcome them.
  • Getting a front pack that keeps Bub in an upright position was one of the best moves we made! And of course getting proper treatment prescribed by the GP.
  • Prioritise something just for you, whether it’s a hot bath or a hot coffee sitting in the sun. It can be 10 minutes, but it helps you recharge your failing batteries to help care for your wee one. I know this sounds too hard, but try it if you are able to sneak it in.
  • Follow your gut instinct when you know things are not right. Keep going back to GP, no matter how many times until you feel your wee one is getting the help/support needed. And be kind to yourself.
  • Follow your instincts.
  • Dummy & referral to Paeditrician.
  • Ignore the know-it-all parents; just do what works for your baby.
  • Definitely wear your baby.
  • Wear your baby!!
  • I bought a foldable wipeable playmat and took it with me to friends houses so he could puke on that instead of the carpet! Lifesaver! I think they appreciated it too.
  • Babywearing!

Some comments have been edited.

© Gastric Reflux Support Network NZ Facebook Page Commenters and Crying Over Spilt Milk Gastric Reflux Support Network New Zealand for Parents of Infants and Children Charitable Trust (GRSNNZ) June 2015.

#‎NationalInfantandChildGastricRefluxAwarenessWeek 2015‬ Story 2

Daughter number 3 was born in 2000, weighed 8lb, 6oz and fed well, but we escaped the maternity home earlier than with number 2 as she just wouldn’t settle at night easily.

At eight days old, my husband found her grey and limp, but breathing. She went on to have prolonged apnoeas (cessation of breathing), but to cut a long story short, although they confirmed severe gastro-oesophageal reflux on barium swallow (http://www.cryingoverspiltmilk.co.nz/reflux/investigations/) during this hospital admission and started treatment for it, her apnoeas were not thought to be caused by it. The apnoeas settled with antibiotics five days later.

Because of her apnoeas, the diagnosis of gastro-oesophageal reflux was made early and treated aggressively. Once she started recovering from her apnoeas, she became distressed with the pain of gastric reflux, however, and it wasn’t until I tried a dairy free diet whilst breastfeeding that we gained any sort of control of her symptoms. It was like magic! She required a combination of medication AND a dairy free diet to control her GORD.

View the original #‎NationalInfantandChildGastricRefluxAwarenessWeek‬ 2015 Story 2

© Roslyn Ballantyne (RN), National Coordinator, Crying Over Spilt Milk Gastric Reflux Support Network New Zealand for Parents of Infants and Children Charitable Trust June 2015

#‎NationalInfantandChildGastricRefluxAwarenessWeek‬ 2015 – What Gastric Reflux Means

The following is created from a thread during National Infant and Child Gastric Reflux Awareness Week on our Facebook Page https://www.facebook.com/hashtag/nationalinfantandchildgastricrefluxawarenessweek

It included words or short phrases that had something to do with what gastric reflux meant for those who commented.  There were 70 comments which included:

  • BibsBibs
  • Sewing larger bibs
  • Overwhelming x 2
  • Communal puking anywhere, any time
  • Heartbreak
  • Agony
  • Exhaustion x 4
  • Made it through the other side
  • Missing cheese, being grateful for choice TV at 3 am, hard work
  • That black cloud of reflux
  • Open sores in mouth, head banging, weight loss, chronic cough, not enough sleep, paediatricians, A & E, stridor, wheeze, recurring ear infections and chest infections, no support, pain, desperation
  • Grieving for the happy baby we thought we would have
  • Washing x 2
  • Failure
  • Wasted breast milk
  • Frustration towards paediatricians, sleep deprivation, constant fear of SIDS
  • Stained carpet
  • Confusing
  • Frustrating x 6
  • Sleeplessness
  • Helplessness x 3
  • Torture x 2
  • Emotional
  • Information overload
  • CPR, isolation, financial ruin
  • Painful for everyone!
  • Endless cuddles
  • Grunting, dislikes normal food, medications
  • Drool
  • Ongoing ear problems (12 grommet operations at 8 years old)
  • People politely declining to hold your constantly held baby through fear of being vomited on
  • Arghh!!!
  • Fear
  • Screaming x 3
  • Tired toddler, not fair
  • Long haul
  • Nightmare
  • Crying (both of us) x 2
  • Lonely x 2
  • Traumatic
  • Staying in a darkened bedroom for 8 weeks and counting trying to “train” naps/sleeps by holding my baby at a sufficiently included position that he will stay asleep…only to find out I can’t cope with doing that for another year as it’s getting worse since 3 months old.  Pale and emotional wreckage.
  • Depression
  • Endless washing of tops
  • Sleeping upright
  • Feelings of anxiety
  • Isolating, spirit breaking
  • Heart-breaking
  • Emotional rollercoaster
  • Endless hours spent on the couch while she gets some sleep
  • Devastating and helpless
  • Relentless
  • Endurance
  • Let-down
  • Spill marks over clothes, always!

© Gastric Reflux Support Network NZ Facebook Page Commenters and Crying Over Spilt Milk Gastric Reflux Support Network New Zealand for Parents of Infants and Children Charitable Trust (GRSNNZ) June 2015.

#‎NationalInfantandChildGastricRefluxAwarenessWeek‬ 2015 Story 1

My first child definitely had very few, if no signs of gastric reflux. I can’t even remember her spilling much – mind you, she is 22 years old.

Three years later we had another daughter, born 13 days late, who decided she should then enter the world in a rush. She became unsettled at about two weeks old when I was given antibiotics and there are lots of notes about her spilling in her Plunket Book.

From six weeks, she slept through the night for 12 hours at a time – but getting her to sleep was a challenge. She never went to sleep, unless she screamed for half an hour first. But, hey we went with the flow. She wasn’t our first baby and she slept for a long time at night so we could cope with a bit of crying during the day. Getting five to six breastfeeds into a 12 hour period was a bit of a challenge with a half hour cry to sleep! I was apparently always breastfeeding.

Thankfully once she started rolling, the spilling did decrease so I didn’t need to follow her around like I was expecting with a bucket and cloth!

At her 10 month Plunket Check, she had gained 100 grams exactly in two months. We did manage to improve her weight gain after this.

In hindsight DD2 had gastric reflux. I’m not sure if it caused her pain, or if it was just discomfort from spilling that made her cry or her temperament. She was not a baby that you could feed to sleep and even as a toddler if she had an ear infection, she would push you away rather than ask for a cuddle. She remained quite a slim child throughout childhood.

I don’t think she ever needed medication for gastric reflux as an infant, but could have been managed better by her parents (us) if we had been aware.

(Please note the National Infant and Child Gastric Reflux Awareness Week logo is copyright and may only be used with permission from GRSNNZ.)

View the original #‎NationalInfantandChildGastricRefluxAwarenessWeek‬ 2015 Story 1

© Roslyn Ballantyne (RN), National Coordinator 2013 – 2020, Crying Over Spilt Milk Gastric Reflux Support Network New Zealand for Parents of Infants and Children Charitable Trust June 2015

New baby on the way … taking probiotics ….

Well I thought I would update you all on our baby.  She was born on 24th August, the day before her due date and on my birthday.  I was taking 3 x 2 caps of Probiotics per day in the last month of pregnancy which can seem excessive, but as I can’t overdose on them and I only get one chance, I thought I would go for it.  If anything, it was helping me to have almost no heartburn.  On the days that I reduced the dose too much or ran out altogether, the heartburn came back.  Such as the day, she was born when I had heartburn so bad I vomited throughout my birth.

She came out the regular way, not fun, but at least she may have covered herself in all that good bacteria she needs.  She spilled from day one and I kept her upright for at least 15 minutes after every feed, tilted her bed,  burped her between feeding her the other side and thoroughly.  I watched her like a hawk.  Every day I thought I saw something; too much spit up, a funny cry, but each time I went back to my guide which is: Is she sleeping?  Does she sound like she is being stabbed when she cries?  Is she bringing her knees up when she cries?  Does she scream while feeding or straight after?  Does she want to feed all the time, and then scream?

Each day she passed the test.  At five days old, she slept eight hours.  She went down in her bassinet without a dummy with the minimum of fuss.  I continued on the large amounts of Probiotics I was taking for a month then stated reducing them.

She is eight weeks old this Sunday and I am off the probiotics.  I thought about putting her on baby Probiotics but have yet to do so.  She sleeps 6-8+ hours almost every night and sleeps happily during the day.  She loves her milk and is a very easy smiley baby.  She is only uncomfortable when she has wind and makes super large burps.  She still spills so I still hold her up after every feed.

I catch myself calling her, her brother’s name when she is irritable.  I still automatically think to go get the medicine when I am preparing dinner, and I hear her wake up and cry.  I haven’t yet thrown out the Infant Gaviscon etc. left over from my son.  I have only had one night that I wanted to scream at her like I did with my other refluxers, but she eventually went to sleep.

I am finally hopeful though, whereas before I was wary.

I don’t know if the probiotics worked or if she would have been fine regardless.  Her chances of not getting Reflux were increased by being a female also.

I hope that anyone else out there having a baby can add to the information if they are taking probiotics.  I know that a study is being done around reflux and probiotics at Victoria University at the moment, but I didn’t want to get the placebo.  Maybe we can find a way to prevent this from happening to children and families.

Good luck everyone out there.  Keep it up; you are doing a fantastic job!

12 year old son – No reflux!
7 year old son – Reflux, out grew at 12 months! Yay!
5 Year old son – Reflux til his 4th Birthday, then grew out of it suddenly.  Amazing relief.
3 month old Daughter – No reflux at all!! Go Probiotics!!!

© AmyNona and Crying Over Spilt Milk Gastric Reflux Support Network New Zealand for Parents of Infants and Children Charitable Trust October 2014.

Published November 2014.

…there needs to be more awareness of infant gastric reflux!

Hi, my name is Bridget Anderson.  My son Dartanyan had severe gastro-oesophageal reflux disease (GORD).  At six-months-old it got pretty bad; he got to the stage where he couldn’t keep all his food and milk down.  As a first time mum, this was quite stressful.  It then lead to lung infections and we were at the doctor every week, and then approximately monthly hospital admissions for up to five days at a time with high temperatures over a period of about four months.

We were then referred to an excellent surgeon who did the wrap surgery on Dartanyan.  This was quite a stressful time, having a young boy go for surgery, but he recovered quickly and the operation was a success.

I do think there needs to be more awareness of infant gastric reflux.  As a mum, I did not know much about gastric reflux and would have loved to know that there was a support group out there at the time.  I would love to help raise awareness of gastric reflux, and that there is support out there for other mums and dads going through the same situation.

Tēnā koutou, my name is Roslyn Ballantyne, National Coordinator of the Gastric Reflux Support Network NZ and mother to three beautiful girls well beyond the baby stage.  Thankfully, most infants who have gastric reflux don’t have GORD and don’t need surgery or other medical treatment, but we all wish/pray for and expect the perfect baby when pregnant, and are devastated, stressed, exhausted and maybe even depressed when our precious bundle has gastric reflux and spills constantly.  The constant mess, cleaning, laundry etc. can lead to tiredness and isolation and others don’t necessarily understand why we aren’t coping with something that is so normal that it affects more than 50% of babies.

If your infant or child has gastric reflux, please Join Gastric Reflux Support Network NZ

We look forward to meeting you.

Roslyn and Bridget

© Bridget Anderson (Member), Roslyn Ballantyne, RN (National Coordinator 2013 – 2020) and Crying Over Spilt Milk Gastric Reflux Support Network New Zealand for Parents of Infants and Children Charitable Trust June 2014.

This story was written for the front page of our website for National Infant Gastric Reflux Awareness Week 2014.

“His gastric reflux stopped…”

Hi Roslyn,

Thanks for the updates over the past several months.  I am leaving the group as my little boy no longer suffers from gastric reflux and is also no longer dairy intolerant!

FYI he was on Neocate from 3 months old and had a combination of formula and my milk until he was 7.5 months.  I also went dairy free.

We were going through a dozen bibs a day, multiple clothes changes and masses of washing – including my own clothes.  It was impossible to know whether the gastric reflux was a result of being dairy intolerant, but very interestingly the gastric reflux did continue for a long time after we’d taken him off dairy, and I was dairy free and breast feeding him.

His gastric reflux stopped when he was able to sit up alone at approximately 8 months. From this observation I would agree with Plunket that he probably was a ‘happy chucker‘ and his little system did just need to strengthen to be able to stop the gastric reflux i.e. by the time he was strong enough to sit alone, it must have also been a lot more mature and keeping milk down.

We waited until he was 12 months old before we gradually introduced dairy – under the paediatrician’s instruction and the results have been great.

Very happy, strong little boy who is now nearly 15 months!
Very happy, strong little boy who is now nearly 15 months!

I just thought other members might be interested!

Many thanks,

Rebecca.

© Rebecca and Crying Over Spilt Milk Gastric Reflux Support Network New Zealand for Parents of Infants and Children Charitable Trust July 2014.

Reflux robbed us of baby joy

AMANDA MCDONOUGH

Original Article Last updated 06:00 13/06/2014

reflux

NO JOY: Amanda McDonough reached breaking point trying to get help for her son.

When our son was born he never stopped crying and refused to breastfeed.

The day we left hospital we were given 24 hours to get him to put on weight or he would be put into the special care baby unit. We managed to get him breastfeeding and he piled on the weight, but the constant screaming never stopped.

He would sleep no longer than 40 minutes at a time and it would take me hours to get him to sleep each time he woke up. If he was awake he was miserable and constantly had a love-hate relationship with the breast.

He would feed to comfort himself, then vomit, then feed, then vomit.

It was very distressing for us all.

When I mentioned to our Plunket nurse what was happening she told me it was normal and that I was missing his sleepy signs and snack-feeding him and that I needed to sort it out. She even tried to convince me it was all in my head because I had post-natal depression. I didn’t.

One day a friend put me onto the www.cryingoverspiltmilk.co.nz website and I cried reading stories about other reflux babies, realising that we had finally found the answer we were looking for.

We followed the advice on the site and started a new battle of trying to get a doctor to take us seriously.

We were given Gaviscon and Losec which didn’t help much and his dose kept being increased. We kept getting told he would grow out of it. He developed a sleep disorder as a direct result of the reflux.

Our doctor kept referring us to the paediatrician but he kept declining to see us.

Finally at 16 months old things had become so bad that our son was aspirating his vomit and we were having to clear his airways and I had become so exhausted from being up eight or more times a night and dealing with a baby screaming all day that I needed respite care in the hospital.

My marriage was in tatters, I was working fulltime shift work and I was hanging by a thread.

We made an appointment at the doctor and told him we couldn’t be parents anymore and begged for help. We had reached our breaking point.

He put us in hospital for observation and the paediatrician worked with Starship to diagnose multiple parasomnia sleep disorders and GORD (gastroesophageal reflux disease).

Our son was put on a controlled anti-seizure drug and his medications were increased. He had scans and a barium swallow done.

We also had to see a speech developmental therapist as he had developed and oral aversion and dysphagia which meant he couldn’t swallow and choked a lot and he still could not take a bottle, so his main nutrition was coming from pureed food and breastfeeding.

The paediatrician suggested we stop breastfeeding. He almost ended up on a tube so I resumed until he was two and a half years old.

He is now almost 4 years old and a pretty normal kid. I do believe all the crying and lack of sleep has permanently affected his personality as he is quite a stressed-out kid and can’t handle routine changes etc.

Had we had the help we needed sooner a lot of it could have been avoided.

If it wasn’t for the Crying Over Spilt Milk website and all the helpful information and support on the site things would have been a lot harder.

I wish there was no such thing as reflux. The grief we felt at the loss of joy at becoming parents will always affect us. We have just had another son who is reflux-free and happy.

It makes me sad to look at my older boy and think about how painful life must have been for him. My heart breaks that he had such a rough start to life.

This was a contribution to the original Article Reflux: A reason to cry over spilt milk published in the North Harbour News, and written by reporter Erica Donald for National Infant Gastric Reflux Awareness Week 2014.

http://www.stuff.co.nz/stuff-nation/assignments/our-baby-won-t-stop-crying/10144665/Reflux-robbed-us-of-baby-joy

Used with permission from Amanda.

Reflux: A reason to cry over spilt milk

Original Article Last updated 09:20 06/06/2014

TJ and family

GETTING BETTER: TJ’s reflux has improved now that he is older, a relief for parents Wayne and Dian Warner, but there are still challenges for the family.

This week is National Infant Gastric Reflux Awareness Week. Reporter Erica Donald talks to a North Shore, Auckland, family who deal with their son’s severe case of gastric reflux daily. 

When Dian Warner was pregnant she didn’t know much about gastric reflux, but that changed with the birth of her son TJ.

Two years later she says “life has changed dramatically” because of it.

Gastric reflux is when a valve doesn’t close properly and food and digestive acids are brought back up into the oesophagus. The acid can burn and cause great discomfort.

Her son TJ was only two days old when he started having trouble keeping his milk down.

At six weeks the projectile vomiting was at its worst, and parents Dian and Wayne were lucky if he was sleeping 45 minutes straight.

TJ went to Starship where they tested him for a multitude of things before being told it was just reflux and were sent home.

Some days TJ would be in so much pain from the reflux his whole body would stiffen up and he couldn’t bend, and he would spend 22 out of 24 hours crying.

“That’s the hardest part as a parent,” Dian says. “When your child is in pain and they’re little so they can’t tell you what’s wrong. You’ve done everything you can but you can’t stop the pain.”

The couple discovered TJ was most comfortable when kept upright.

“As soon as you lay him past a 45 degree angle the food would come back up and he would reflux,” she says.

“He couldn’t sleep unless he was propped up, which is a big no-no, but as soon as you lay him on his back he would scream and couldn’t sleep. It was the only way to get him to sleep.”

TJ needed constant monitoring as things could go wrong in the blink of an eye.

“He vomited in his car seat, swallowed the vomit into his airway and he turned blue at 2 weeks of age.”

TJ is a severe example of gastric reflux, and although it has improved now he is older the 2-year-old still suffers.

While Dian teaches at Albany Primary School, Wayne had to leave his job to stay home and look after TJ fulltime at their Mairangi Bay home.

Dian suffered an injury from her epidural which means she struggles to carry TJ as much as is needed each day.

TJ is also lactose and soy intolerant, so has a special medical formula for his bottle at night.

He has to be fed something small and masticated every two hours during the day to ensure he gains weight.

TJ is fed every four hours during the night. Dian and Wayne take turns to sleep in his room, make a bottle and then keep him upright for at least 45 minutes.

The longest TJ has slept straight for was 4 hours.

Dian recommends Crying Over Spilt Milk, a New Zealand website which puts members into localised support groups, and she says people should know there are support services available.

“It can be really, really hard when you’re sleep deprived for so long,” she says.

“Luckily my parents live close by, but I can’t imagine what it would be like with two children.”

For parents who are struggling with children that suffer from gastric reflux, Dian says the best thing you can do is find some really good friends or family and teach them the procedures so they can help you out.

– North Harbour News

http://www.stuff.co.nz/auckland/local-news/north-harbour-news/10126655/A-reason-to-cry-over-spilt-milk – no longer available 2018

Used with Permission.

Wayne and TJ

SLEEPY CUDDLES: The only way for baby TJ to sleep was laying against his dad Wayne Warner. TJ suffered from severe reflux. Their cat Pheonix sometimes joined in on the naps.