#‎NationalInfantandChildGastricRefluxAwarenessWeek‬ 2015 – What Gastric Reflux Means

The following is created from a thread during National Infant and Child Gastric Reflux Awareness Week on our Facebook Page https://www.facebook.com/hashtag/nationalinfantandchildgastricrefluxawarenessweek

It included words or short phrases that had something to do with what gastric reflux meant for those who commented.  There were 70 comments which included:

  • BibsBibs
  • Sewing larger bibs
  • Overwhelming x 2
  • Communal puking anywhere, any time
  • Heartbreak
  • Agony
  • Exhaustion x 4
  • Made it through the other side
  • Missing cheese, being grateful for choice TV at 3 am, hard work
  • That black cloud of reflux
  • Open sores in mouth, head banging, weight loss, chronic cough, not enough sleep, paediatricians, A & E, stridor, wheeze, recurring ear infections and chest infections, no support, pain, desperation
  • Grieving for the happy baby we thought we would have
  • Washing x 2
  • Failure
  • Wasted breast milk
  • Frustration towards paediatricians, sleep deprivation, constant fear of SIDS
  • Stained carpet
  • Confusing
  • Frustrating x 6
  • Sleeplessness
  • Helplessness x 3
  • Torture x 2
  • Emotional
  • Information overload
  • CPR, isolation, financial ruin
  • Painful for everyone!
  • Endless cuddles
  • Grunting, dislikes normal food, medications
  • Drool
  • Ongoing ear problems (12 grommet operations at 8 years old)
  • People politely declining to hold your constantly held baby through fear of being vomited on
  • Arghh!!!
  • Fear
  • Screaming x 3
  • Tired toddler, not fair
  • Long haul
  • Nightmare
  • Crying (both of us) x 2
  • Lonely x 2
  • Traumatic
  • Staying in a darkened bedroom for 8 weeks and counting trying to “train” naps/sleeps by holding my baby at a sufficiently included position that he will stay asleep…only to find out I can’t cope with doing that for another year as it’s getting worse since 3 months old.  Pale and emotional wreckage.
  • Depression
  • Endless washing of tops
  • Sleeping upright
  • Feelings of anxiety
  • Isolating, spirit breaking
  • Heart-breaking
  • Emotional rollercoaster
  • Endless hours spent on the couch while she gets some sleep
  • Devastating and helpless
  • Relentless
  • Endurance
  • Let-down
  • Spill marks over clothes, always!

© Gastric Reflux Support Network NZ Facebook Page Commenters and Crying Over Spilt Milk Gastric Reflux Support Network New Zealand for Parents of Infants and Children Charitable Trust (GRSNNZ) June 2015.

Comments

#‎NationalInfantandChildGastricRefluxAwarenessWeek‬ 2015 – What Gastric Reflux Means — 1 Comment

  1. A comment from one of our members on the finished post:
    “Well done. I think it is important for health professionals to note that most of these comments come from parents experiencing a ‘typical’ reflux journey. They are by no means extreme reactions to extreme cases. They are normal feelings expressed by normal people.”