#‎NationalInfantandChildGastricRefluxAwarenessWeek‬ 2015 – What Gastric Reflux Means

The following is created from a thread during National Infant and Child Gastric Reflux Awareness Week on our Facebook Page https://www.facebook.com/hashtag/nationalinfantandchildgastricrefluxawarenessweek

It included words or short phrases that had something to do with what gastric reflux meant for those who commented.  There were 70 comments which included:

  • BibsBibs
  • Sewing larger bibs
  • Overwhelming x 2
  • Communal puking anywhere, any time
  • Heartbreak
  • Agony
  • Exhaustion x 4
  • Made it through the other side
  • Missing cheese, being grateful for choice TV at 3 am, hard work
  • That black cloud of reflux
  • Open sores in mouth, head banging, weight loss, chronic cough, not enough sleep, paediatricians, A & E, stridor, wheeze, recurring ear infections and chest infections, no support, pain, desperation
  • Grieving for the happy baby we thought we would have
  • Washing x 2
  • Failure
  • Wasted breast milk
  • Frustration towards paediatricians, sleep deprivation, constant fear of SIDS
  • Stained carpet
  • Confusing
  • Frustrating x 6
  • Sleeplessness
  • Helplessness x 3
  • Torture x 2
  • Emotional
  • Information overload
  • CPR, isolation, financial ruin
  • Painful for everyone!
  • Endless cuddles
  • Grunting, dislikes normal food, medications
  • Drool
  • Ongoing ear problems (12 grommet operations at 8 years old)
  • People politely declining to hold your constantly held baby through fear of being vomited on
  • Arghh!!!
  • Fear
  • Screaming x 3
  • Tired toddler, not fair
  • Long haul
  • Nightmare
  • Crying (both of us) x 2
  • Lonely x 2
  • Traumatic
  • Staying in a darkened bedroom for 8 weeks and counting trying to “train” naps/sleeps by holding my baby at a sufficiently included position that he will stay asleep…only to find out I can’t cope with doing that for another year as it’s getting worse since 3 months old.  Pale and emotional wreckage.
  • Depression
  • Endless washing of tops
  • Sleeping upright
  • Feelings of anxiety
  • Isolating, spirit breaking
  • Heart-breaking
  • Emotional rollercoaster
  • Endless hours spent on the couch while she gets some sleep
  • Devastating and helpless
  • Relentless
  • Endurance
  • Let-down
  • Spill marks over clothes, always!

© Gastric Reflux Support Network NZ Facebook Page Commenters and Crying Over Spilt Milk Gastric Reflux Support Network New Zealand for Parents of Infants and Children Charitable Trust (GRSNNZ) June 2015.


#‎NationalInfantandChildGastricRefluxAwarenessWeek‬ 2015 – What Gastric Reflux Means — 1 Comment

  1. A comment from one of our members on the finished post:
    “Well done. I think it is important for health professionals to note that most of these comments come from parents experiencing a ‘typical’ reflux journey. They are by no means extreme reactions to extreme cases. They are normal feelings expressed by normal people.”