Allowances Available in New Zealand

APPLICATION FORMS FOR THESE ALLOWANCES ARE AVAILABLE FROM YOUR LOCAL WORK AND INCOME SUPPORT OFFICE.

CHILD DISABILITY ALLOWANCE
This allowance is available to parents caring for a child or young person (under 18) who has a serious medical, physical and/or intellectual disability who requires constant care and attention for more than a year due to a medical condition and/or disability.

• It is not income tested
• Either a G.P. or paediatrician can sign the form to verify your child’s condition.
• The child automatically receives their own Community Services card for subsidised health costs.
• The child also becomes eligible for up to 50 hours per week subsidised care (by way of a Childcare Subsidy – subject to level of income).

Below are some of the questions from the medical examination section of the form:

  1. Is the child or young person likely to need constant care and attention over and above the ordinary care and supervision required by a child or young person of a similar age for a period exceeding 12 months? Yes/No

  2. What is the extent of the disability of the child or young person? Mild – has an impairment but no requirement for additional assistance reported; Moderate – requires assistance to function independently but does not require this assistance on a daily basis; Severe – requires assistance on a daily basis

  3. Does the child or young person need more assistance with their self care than that of a child of a similar age? Eg: dressing, eating, toileting, bathing and regular medication to maintain or improve quality of life. Yes/No

  4. Without regular supervision from another person could the child or young person cause harm to themselves or others? Yes/No

  5. Does the child or young person need constant attention and supervision substantially in excess of that normally required by a child or young person of the same age and sex? Constant attention and supervision means the child or young person cannot function in their day to day living with it. Some examples of serious disabilities that may require constant attention and supervision are : Downs Syndrome, severe visual impairment, Autism and Cystic Fibrosis. Yes/No

  1. Is the child or young person’s disability likely to improve? Yes / No / Don’t Know

  2. Would you recommend that we need to re-assess the Child Disability Allowance in relation to the child or young person’s disability? Yes (at what age) / Never to be reassessed

The application is now based mainly on the medical examination. There is no space for the caregiver to explain what extra care and attention their child requires. It may be worth attaching a page to the application with how your child’s condition affects each day.

It is our experience, that the Child Disability Allowance is unlikely to be given for an infant under the age of one year with gastric reflux as their only medical condition, as it is likely that they will outgrow this within a year.  (Number 3)

See Child Disability Allowance.

DISABILITY ALLOWANCE
This is an income tested benefit available to cover costs which are directly related to the child/baby’s personal health need or disability. You may be eligible if your income is below a certain level (see WINZ – Disability Allowance). There is a maximum payment per week for a disability allowance, although separate allowances are generally payable for each member of the family with a personal health need/disability.

Expenses covered are:

  • Medical costs (medical fees, alternative medical fees and prescription fees)

  • Transport costs (travel to and from doctors, specialists and hospital)

  • Living expenses (power, gas, heating, food (i.e. food thickeners for babies, dairy free formulas if over two years of age), clothing)

  • Essential costs (medical alarms and telephone)

  • Extra costs (gardening and consumable items)
  • Extra costs may be able to be claimed, but you will also need to provide receipts, accounts or quotes for every cost claimed.

IF ELIGIBLE, YOU MAY APPLY FOR EITHER OR BOTH OF THESE ALLOWANCES.

There may also be help available for respite care or personal care in severe cases.

NB: These allowances and the criteria for them change frequently so please don’t take this as gospel.

Acknowledgements: GRASP and WINZ (M08 (July 04))

Compiled by Roslyn Ballantyne (RN), National Coordinator for © Crying Over Spilt Milk Gastric Reflux Support Network New Zealand for Parents of Infants and Children Charitable Trust 21/02/2004. Edited February 2015.

Page may be printed or reproduced for personal use of families, as long as copyright and Crying Over Spilt Milk‘s URL are included. It may not be copied to other websites or publications without permission and acknowledgement.

  • Gastric Reflux Support Network NZ shared Linkage's photo.

    Thank you Linkage!

    Something to live by....

  • Hi I have an 8 week old prem (6 weeks early so 2 weeks corrected) suffering from reflux. She is exclusively breastfeed and the dr has prescribed gaviscon. I am having real difficulty in getting her to take it. I have tried syringing it and also tried to feed via a bottle (she had never had a bottle for anything before) but she is just refusing it or spitting it back out. Does anybody have any tips for getting bubs to take the medicine?

  • Gastric Reflux Support Network NZ shared Plunket New Zealand's event.

    There might be some of you who are interested in joining Plunket's Chat on Toddler Sleep. Please head over to Plunket's Event.

    Join our PlunketLine nurse Carla for our 'Toddler Sleep' chat on Wednesday the 26th of August from 8-9pm. Post any questions you have below or private message us and we'll be sure to answer your question during our chat. The chat will take place on our timeline with a 'chat open' post at 8pm.

  • Wow yesterday Gastric Reflux Support Network NZ had 5 new members in one day! I think this is a record.

    If you want to join also: http://www.reflux.cryingoverspiltmilk.co.nz/grsnnz-membership-confidentiality-agreement-form/

    I haven't processed most new members from this week as my middle daughter has been very sick with glandular fever. I'll do this as soon as I can.

    Roslyn Ballantyne, National Coordinator

    Gastric Reflux Support Network NZ for Parents of Infants & Children Charitable Trust Membership & Confidentiality Agreement Form First Name: Last Name: Email Address: Street Address: City/Town: Area: Auckland Canterbury Gisborne Hawkes Bay Marlborough Nelson Northland Otago Southland Taranaki...

  • Hi there, im new to this page and I've just found out my 12week old has gastric reflux.
    We are currently going through a growth spurt and she appears to be in more pain from the extra milk intake, has anyone experienced this?
    I'm thinking about taking her to the hospital to get some pain medication....

  • Hi all, Just wondering if any of you have had a similar experience. My 7 month old is on omeprazole 2ml morning and night. For a few nights we have accidentally forgotten to give it to him... And then the last 2 nights he has screamed blue murder for hours. He would go down ok but then wake and cry for hours like he is in pain. Nothing will console him. Its the only thing we have done differently - has anyone has a similar experience??? Thanks! Bec

  • Hey! Day 4 on gaviscon for our 4 week son and he's constipated any suggestions to get him going?

  • Hallucinations on Omeprazole!? ... Forgive me if this has been discussed recently or at all (probably not I'm guessing) I was active on this page when my daughter was just a baby with terrible reflux. She was on omeprazole back then until about 8-9 months old. She is back on it as of a week and a half ago just to trial whether her frequent cough and waking in the night could be reflux back at age 3.5!!!!.... Anyway, for the last 4-5 nights she has woken terrified that there are worms in her bed and on her body. (It is not a nightmare or a night terror) last night was the worst night yet! Awake from 1-5am with the most frightening hallucinations yet. Worms and flies all through the bed, on the ceiling and even as I consoled her she screamed that they were all over my face :( it was heartbreaking. Even with all the lights on she could see them. I could go on describing this but I won't. My question is has anyone's child or you yourself experienced the very rare (but documented) side effect of hallucinations? Needless to say I am stopping the meds today.

  • Please tell me someone is in the same boat...

    Our son can't sleep for longer then a few minutes at a time without gagging on his reflux and waking himself up. Normally the only way for him to get any sleep is to sale him and hold him vertical against our chests.

    He is on Gaviscon, Omeprazole (losec) and we've just dropped Ranitidine (Zantac) and added Domperidone. Nothing so far is helping to resolve this sleep issue. His bed is on a steep incline but often the moment you put him in it he starts spluttering and throat clearing loudly until he wakes.

    He's 9 weeks and I've been dairy free breast feeding for about a month. He has now started Neocate formula.

    Anyone else have a baby who can't stay asleep because of reflux? Any tips?

  • There is a new post to the page asking for any feedback on experiences around surgery for reflux.

  • I would love some feedback from parents who kids that have had a fundo. Our daughter (6) has been suffering all of these years with reflux combined with eating disorder (avoidant restrictive food intake disorder, basically associates food with pain) and now docs have suggested a fundo so I'd like to hear people experiences

  • http://www.healthshare.health.nz/home/2015/08/07/midland-dhbs-set-to-launch-free-breastfeeding-app
    We are being kept up to date with this, so will make sure this is added to the website links when it is available.

    Breastfeeding mums and pregnant women will soon have useful tips and advice at their fingertips with the launch of a new, free, breastfeeding app.

  • Has anyone found that omeprizole made a reflux baby worse??
    Ds is the worst he has ever been since starting losec, but I'm unsure whether its the losec causing it or something else.
    Has anyone seen improvement after stopping losec?? He's 4.5 months

  • There is a new question if anyone wants to share their experience. Remember no medical advice! :-)

  • I'm interested in chatting to anyone who may have been, or is, in a similar position to me. I have a beautiful 3 month old son, exclusively breast fed. I think he's suffering from silent reflux. He looks like he is going to vomit, sounds like liquid comes up, but doesn't spit anything up. He flicks quickly between happy and unhappy baby. He seems to want to feed a lot and doesn't seem to have an off switch when he is full. I'm worried I'm making him worse feeding him. He's always gained weight well until more recently. We had been using a dummy but stopped because I got sick of him waking wanting it in the night, but starting to use it again in desperation. He's thankfully a very good night sleeper. He is starting to get bottom teeth now to make things worse! He has a lot of dribble at times. He doesn't really spill a lot, and doesn't cry that much but just doesn't seem happy. Currently trying homeopathic wind drops, weleda colic powder and I take a tea that was made up for me with multiple herbs including fennel. I've also got an amber necklace on him. I am not a hippy but like the idea of natural solutions more than giving him meds if I can find something that works. Happy to use medication though if needed. He has no signs of any allergies so I don't think it's that. Interested in any suggestions or thoughts! Thanks!

  • Just for some fun. You have to watch the clip.

    Thinking back two years prior to pregnancy, this couple recalls how they thought they had everything about parenting all figured out. But they quickly realized all of their aspirations were not very realistic when their precious little one was born into the world.

  • Gastric Reflux Support Network NZ shared Judy Arnold - Infant and child Consultant's photo.

    It is about time for another Coffee together and to ask Questions Thursday morning, 9.30-11. Looking forward to catching up.

  • Just wondering - is gaviscon like a fast acting relief - like for that feed only- or is it longer lasting ?

    I haven't used gaviscon for 3 days and my 10 week old has been good for 3 days so thought maybe he was getting a bit better - but then tonight spewed up quite a bit. Is that because the gaviscon was still working in his system and now has worn off ? Or does it have a shorter term effect ?

    We have also just started trying formula. 50ml yesterday and today and it was after that he spewed- so also wanting to rule out the fact that it's the gaviscon wearing off...to see if the formula is making him spew.

    I'm pretty sure he's reacting to the formula but just curious how long gaviscon relief works also.

  • Gastric Reflux Support Network NZ shared Hope For The Broken Hearted's photo.

  • Gastric Reflux Support Network NZ shared Interstitial Cystitis Association's photo.

  • Gastric Reflux Support Network NZ shared Patient's photo.

    #sleep

  • Gastric Reflux Support Network NZ shared a page.

    Empowering families of people with disabilities and health impairments through support and information.

  • Hi there, my daughter has been on omeprozole granules (5mg, twice daily) since 6 weeks old. I've talked to our GP about how and when to wean, his advice was to go cold turkey "whenever we felt like it"..!

    I'm looking for some advice from other families on how they went about weaning - Would like to take a gentle path.
    Are there signs of readiness?
    What age did you start?
    Did you drop one dose and see if there was any effect before fully weaning?
    Or is cold turkey the right thing to do, after all?

    Thanks.

  • Hi all,
    Does anyone know if its okay to mix kiwiherb stuff with losec to mask the taste if you stick to the correct dosages? Eg .5ml each of kids calm, echinature, and chest syrup mixed with 3.8ml of losec?

  • 10 day old baby showing signs of reflux already. Similar to his brother (who is now 22months).
    He has the "breath that smells like stomach acid", looks like he's got a bad taste in his mouth, the "cottage cheese" spit up at times and obviously a very sore tummy after feeds.
    I am babywearing to keep him upright which is helping.

    I suppose what I'm asking is at what point do I go to gp and ask for a paed referral? My husband says don't go looking for trouble until it becomes a much more obvious issue.