APPLICATION FORMS FOR THESE ALLOWANCES ARE AVAILABLE FROM YOUR LOCAL WORK AND INCOME SUPPORT OFFICE.
CHILD DISABILITY ALLOWANCE
This allowance is available to parents caring for a child or young person (under 18) who has a serious medical, physical and/or intellectual disability who requires constant care and attention for more than a year due to a medical condition and/or disability.
• It is not income tested
• Either a G.P. or paediatrician can sign the form to verify your child’s condition.
• It is paid fortnightly at $38.46 per week from the time the application is received.
• The child automatically receives their own Community Services card for subsidised health costs.
• The child also becomes eligible for up to 50 hours per week subsidised care (by way of a Childcare Subsidy – subject to level of income).
Below are some of the questions from the medical examination section of the form:
Is the child or young person likely to need constant care and attention over and above the ordinary care and supervision required by a child or young person of a similar age for a period exceeding 12 months? Yes/No
What is the extent of the disability of the child or young person? Mild – has an impairment but no requirement for additional assistance reported; Moderate – requires assistance to function independently but does not require this assistance on a daily basis; Severe – requires assistance on a daily basis
Does the child or young person need more assistance with their self care than that of a child of a similar age? Eg: dressing, eating, toileting, bathing and regular medication to maintain or improve quality of life. Yes/No
Without regular supervision from another person could the child or young person cause harm to themselves or others? Yes/No
Does the child or young person need constant attention and supervision substantially in excess of that normally required by a child or young person of the same age and sex? Constant attention and supervision means the child or young person cannot function in their day to day living with it. Some examples of serious disabilities that may require constant attention and supervision are : Downs Syndrome, sever visual impairment, Autism and Cystic Fibrosis. Yes/No
Is the child or young person’s disability likely to improve? Yes / No / Don’t Know
Would you recommend that we need to re-assess the Child Disability Allowance in relation to the child or young person’s disability? Yes (at what age) / Never to be reassessed
The application is now based mainly on the medical examination. There is no space for the caregiver to explain what extra care and attention their child requires. It may be worth attaching a page to the application with how your child’s condition affects each day.
This is an income tested benefit available to cover costs which are directly related to the child/baby’s personal health need or disability. You may be eligible if your income is below a certain level (see WINZ – Disability Allowance). There is a maximum payment per week for a disability allowance, although separate allowances are generally payable for each member of the family with a personal health need/disability.
Expenses covered are:
Medical costs (medical fees, alternative medical fees and prescription fees)
Transport costs (travel to and from doctors, specialists and hospital)
Living expenses (power, gas, heating, food (i.e. food thickeners for babies, dairy free formulas if over two years of age), clothing)
Essential costs (medical alarms and telephone)
- Extra costs (gardening and consumable items)
Extra costs may be able to be claimed, but you will also need to provide receipts, accounts or quotes for every cost claimed.
IF ELIGIBLE, YOU MAY APPLY FOR EITHER OR BOTH OF THESE ALLOWANCES.
There may also be help available for respite care or personal care in severe cases.
NB: These allowances and the criteria for them change frequently so please don’t take this as gospel.
Acknowledgements: GRASP and WINZ (M08 (July 04))
Compiled by Roslyn Ballantyne (RN), National Coordinator for © Crying Over Spilt Milk Gastric Reflux Support Network New Zealand for Parents of Infants and Children Charitable Trust 21/02/2004. Edited September 2006.
Page may be printed or reproduced for personal use of families, as long as copyright and Crying Over Spilt Milk‘s URL are included. It may not be copied to other websites or publications without permission and acknowledgement.
Has anyone had experience with lactulose ? I have been using on and off but I'm not sure if she's worse on it , seems very farty and uncomfy ! 4 month old 5.5 kg and she's on 2 ml per day , any advice or alternatives appreciated ; she is on losec and gaviscon
Hi. Just wondering if anyone has a similar situation to us. Our daughter was born 8wks premature and was a very unhappy baby. Once her reflux was diagnosed at about 4 months old and she started on losec, she improved instantly. I discovered going dairy-free helped her tolerate breastmilk. We have had to increase her dosage as she has grown. She is now 4years old and her symptoms have changed. She used to wake up screaming in pain but now it just affects her personality, sleep, etc. I have tried gradually weaning her off losec but she becomes anxious, tired and just can't cope with life. We've been to Dr Ford and he suggested going gluten-free which has helped. She has had an endoscopy but no answers. Our paediatrician doesn't believe in food issues and thinks if the medication works - use it. She is now up to 30mg losec each day. I would love to hear from anyone who has a young child still on losec or who has successfully got off it.... Cheers.
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Hi there, just wanted to say that this page and your website has been a huge help! It has provided ideas, helping me and my 8 week old son cope with his reflux. He was diagnosed @ 4 weeks old, and has been on gaviscon since. I have also gone dairy free, not sure if it's helping but he's definitely settled over the weeks. Hopefully he 'grows out of it' as the Dr says, grateful for all tips and advice from other parents experiencing the same...'I'm not alone'....this is a photo of our son in his Happy Place, where he goes from crying to smiling straight away!
Hi, Just wondering if you could help me with a question please. I got given Losec Suspension today. Since it's in suspension form and not the granules how long before a feeding should I give it to my baby or can it be given at the same time?
My baby has been diagnosed with reflux, her dr prescribed her ranitidine 150 mg/10 ml. It says 1 ml 3x a day, shes 5.7 kgs, does this sound right? That seems alot to me...
Hi there. I've been reading your website and Facebook page with interest over the past few months and it's been really helpful. My daughter is coming up 4 months old and her reflux seems to be improving. We tried gaviscon but it didn't make much difference. Main thing for us has been that I cut dairy out of my diet. I now have food with dairy in it but just don't do the core basics like cheese, yoghurt, milk etc and although she still spills often, the associated pain seems to be almost gone. Am hoping she's growing out of it but the dairy still seems to have a bit of an effect. Anyway, in two months time I have to go back to part-time work and will need to start using a formula on those days. I usually used karicare gold with my kids but have no idea what options would be best for my reflux baby. Can you make some suggestions? I'd like to try some out to see how she reacts etc before I go back to work but don't know what brands to try. Thanks.
Hi, I have a wee girl Matilda, 3.5 months, who has been diagnosed with gerd and is currently on Ranitidine and Domperidone. We have tried Losec and gaviscon infant too, and after trying pepti jnr and neocate we are now on elecare formula. Also have done the usual, raise cot, chiro, upright after feeds etc. We don't seem to be making much progress and its really heart-breaking to try all these medications on such a wee person! We do seem to have 3-4 great days when she is happy and contented but then have 3-4 terrible days with constant crying, not much drinking, so much vomit and terribly unsettled, not much sleeping etc; my question is, is this 'normal' ?! Is gerd cyclonic? Thanks, Amanda :)
My four month old son has recently been diagnosed with reflux after his feeding has become worse and worse over the last month. He will cry before and during a feed and constantly turns his head from side to side. It takes alot of coaxing to get him to drink. He has also started waking almost hourly through the night. We have tried gaviscon which gave him terrible constipation and now ranitidine. After reading the dosages on the spilt milk site we realized the dose we were given was far too low so have now been on a high ish dose for a week with little change. How long should it take to see a change? We also have a script for omeprazole so can try that next. Anyone else with a reflux baby also had these sleeping issues? Any tips welcome, we have raised the bed and keep him upright after feeds. Thanks in advance
Anyone recommend a good paediatrician in Auckland, son has reflux and looking to get some help!
How can I give my omeprazole granules to a 5 month old? I have been putting in pear puree but now want to introduce food and think this is putting her off wanting to eat!
Our membership form is now working again. Sorry for the delay. We are looking forward to meeting some new members. http://www.reflux.cryingoverspiltmilk.co.nz/grsnnz.../ Joining Gastric Reflux Support Network NZ for Parents of Infants and Children Charitable Trust gives access to our Newsletters and Private Local and National Support Networks. Membership is free, and this gives you opportunities to discuss gastric reflux related issues with others in a safe and confidential setting.
hi i have a nearly 8 month old girl, she is on ''Kari-care anti reflux AR'' now they say by six months the reflux or spewing up heaps of milk should be fine now. but im scared to put her on normal kari care cause she use to vomit like crazy, what formula should i be going on? thanks :)