Allowances Available in New Zealand

APPLICATION FORMS FOR THESE ALLOWANCES ARE AVAILABLE FROM YOUR LOCAL WORK AND INCOME SUPPORT OFFICE.

CHILD DISABILITY ALLOWANCE
This allowance is available to parents caring for a child or young person (under 18) who has a serious medical, physical and/or intellectual disability who requires constant care and attention for more than a year due to a medical condition and/or disability.

• It is not income tested
• Either a G.P. or paediatrician can sign the form to verify your child’s condition.
• The child automatically receives their own Community Services card for subsidised health costs.
• The child also becomes eligible for up to 50 hours per week subsidised care (by way of a Childcare Subsidy – subject to level of income).

Below are some of the questions from the medical examination section of the form:

  1. Is the child or young person likely to need constant care and attention over and above the ordinary care and supervision required by a child or young person of a similar age for a period exceeding 12 months? Yes/No

  2. What is the extent of the disability of the child or young person? Mild – has an impairment but no requirement for additional assistance reported; Moderate – requires assistance to function independently but does not require this assistance on a daily basis; Severe – requires assistance on a daily basis

  3. Does the child or young person need more assistance with their self care than that of a child of a similar age? Eg: dressing, eating, toileting, bathing and regular medication to maintain or improve quality of life. Yes/No

  4. Without regular supervision from another person could the child or young person cause harm to themselves or others? Yes/No

  5. Does the child or young person need constant attention and supervision substantially in excess of that normally required by a child or young person of the same age and sex? Constant attention and supervision means the child or young person cannot function in their day to day living with it. Some examples of serious disabilities that may require constant attention and supervision are : Downs Syndrome, severe visual impairment, Autism and Cystic Fibrosis. Yes/No

  1. Is the child or young person’s disability likely to improve? Yes / No / Don’t Know

  2. Would you recommend that we need to re-assess the Child Disability Allowance in relation to the child or young person’s disability? Yes (at what age) / Never to be reassessed

The application is now based mainly on the medical examination. There is no space for the caregiver to explain what extra care and attention their child requires. It may be worth attaching a page to the application with how your child’s condition affects each day.

It is our experience, that the Child Disability Allowance is unlikely to be given for an infant under the age of one year with gastric reflux as their only medical condition, as it is likely that they will outgrow this within a year.  (Number 3)

See Child Disability Allowance.

DISABILITY ALLOWANCE
This is an income tested benefit available to cover costs which are directly related to the child/baby’s personal health need or disability. You may be eligible if your income is below a certain level (see WINZ – Disability Allowance). There is a maximum payment per week for a disability allowance, although separate allowances are generally payable for each member of the family with a personal health need/disability.

Expenses covered are:

  • Medical costs (medical fees, alternative medical fees and prescription fees)

  • Transport costs (travel to and from doctors, specialists and hospital)

  • Living expenses (power, gas, heating, food (i.e. food thickeners for babies, dairy free formulas if over two years of age), clothing)

  • Essential costs (medical alarms and telephone)

  • Extra costs (gardening and consumable items)
  • Extra costs may be able to be claimed, but you will also need to provide receipts, accounts or quotes for every cost claimed.

IF ELIGIBLE, YOU MAY APPLY FOR EITHER OR BOTH OF THESE ALLOWANCES.

There may also be help available for respite care or personal care in severe cases.

NB: These allowances and the criteria for them change frequently so please don’t take this as gospel.

Acknowledgements: GRASP and WINZ (M08 (July 04))

Compiled by Roslyn Ballantyne (RN), National Coordinator for © Crying Over Spilt Milk Gastric Reflux Support Network New Zealand for Parents of Infants and Children Charitable Trust 21/02/2004. Edited February 2015.

Page may be printed or reproduced for personal use of families, as long as copyright and Crying Over Spilt Milk‘s URL are included. It may not be copied to other websites or publications without permission and acknowledgement.

  • We have a question from Sara now too.

  • Hi there! Im just wondering if anyone has gone down the line of bubs having to have an endoscopy and pH probe study because of reflux lasting too long? My bubs is 15 months and still on high doses of reflux meds and she gets so bad when we try to wean them down. Her Paediatrician has referred us for an Endoscopy +/- pH probe. Has anyone had this? If so, what was the outcome and did it even change their management? Thanks!

  • Hi everyone, Brylee has asked a question. Have a look at the posts to the page. Thanks for sharing your experiences in advance.

  • i keep getting an error message when trying to register?

  • Has anyone else had a major setback with reflux after their little one starts moving? I am feeling so emotionally drained and thought it was supposed to get better, he's now nearly one and we are back to square one

  • I've just hit SEND on the newsletter so if you are a member, you should receive it over the next 24 hours. I'm using MailChimp for the first time, so it will look a little different.
    If you aren't a member and would like to receive newsletters or join our local support groups, please complete a membership form: http://www.reflux.cryingoverspiltmilk.co.nz/grsnnz-membership-confidentiality-agreement-form/
    Membership is free. It has been great to see two to three new members every day since I fixed the form! :-)

    Gastric Reflux Support Network NZ for Parents of Infants & Children Charitable Trust Membership & Confidentiality Agreement Form / Newsletter Admin Page First Name Last name Email Street Address City/Town Area Auckland Bay of Plenty Canterbury Gisborne Hawkes Bay Marlborough Nelson Otago...

  • I've just discovered our membership form hasn't been working due to some unknown glitch and I've spent the last few hours getting it working again. I suspect this has been like this for a fortnight. So sorry anyone who has been trying to join. Remember membership is free and you can join in confidential chats with those in your local area.
    http://www.reflux.cryingoverspiltmilk.co.nz/grsnnz-membership-confidentiality-agreement-form/

    Gastric Reflux Support Network NZ for Parents of Infants & Children Charitable Trust Membership & Confidentiality Agreement Form / Newsletter Admin Page First Name Last name Email Street Address City/Town Area Auckland Bay of Plenty Canterbury Gisborne Hawkes Bay Marlborough Nelson Otago...

  • Another Post created on our website from the Tips on Coping thread from National Infant and Child Gastric Reflux Awareness Week. Thank you so much to those who contributed. I might just try and add this into the Help! Menu as well.

    The following is created from a thread during National Infant and Child Gastric Reflux Awareness Week on our Facebook Page https://www.facebook.com/hashtag/nationalinfantandchildgastricrefluxawarenessweek There were 38 comments with advice or tips on how parents coped with infants or children...

  • Story 2 from National Infant and Child Gastric Reflux Awareness Week transferred to our website for safekeeping. :-)

    Daughter number 3 was born in 2000, weighed 8lb, 6oz and fed well, but we escaped the maternity home earlier than with number 2 as she just wouldn’t settle at night easily. At eight days old, my husband found her grey and limp, but breathing. She went on to have prolonged apnoeas (cessation of...

  • National Infant and Child Gastric Reflux Awareness Week logo profile photos - The week finished 6th June. There are still a few people we've noticed with the logo as their profile picture. Can you please remove this now?

    Many thanks, for your support.

  • Thank you everyone who contributed to this. I think it will help others know that they are not alone in what they feel and experience. I also think it might be a great resource for health professionals.

    The following is created from a thread during National Infant and Child Gastric Reflux Awareness Week on our Facebook Page https://www.facebook.com/hashtag/nationalinfantandchildgastricrefluxawarenessweek It included words or short phrases that had something to do with what gastric reflux meant...

  • Who has seen National Infant and Child Gastric Reflux Awareness Week Posters in waiting rooms, reception areas, play centres, consult rooms or anywhere else?

    There was quite a number posted or delivered around NZ so we would love to hear if you spotted one.

    This is the printed A4 glossy poster that has our phone number and website address at the bottom - not the digital graphic. Draft preview here:

  • Gastric Reflux Support Network NZ shared their photo.

    Thank you so much to everyone that supported the Gastric Reflux Support Network NZ and promoted National Infant and Child Gastric Reflux Awareness Week by taking up the Challenge and using the logo as your PROFILE PICTURE on your PERSONAL PAGE.

    It was wonderful to see so many people doing this and I did lots of double-takes when visiting some pages as there were so many orange PROFILE PICTURES.

    I don't know about you, but I'm looking forward to next year and am already making plans. Hopefully, many of you will no longer be dealing with Infant Gastric Reflux, but feel free to come back between 31st May to 6th June and give others some hope that they will get through this difficult time. Put it in your diaries. :-)

    Best wishes for the year ahead,
    Roslyn Ballantyne, National Coordinator, Gastric Reflux Support Network NZ, National Infant and Child Gastric Reflux Awareness Week 2015!

    (Please note the National Infant and Child Gastric Reflux Awareness Week logo is copyright and may only be used with permission from GRSNNZ. It may be shared using the Facebook Share Function.)

    A Challenge to you ALL except we ask that you only do this on your Personal Profiles i.e. NO PAGES or GROUPS. National Infant and Child Gastric Reflux Awareness Week starts tomorrow and continues until 6th June. During this time GRSNNZ would love you to create Awareness by using this logo as your profile picture. Once you have set it as a profile picture please add a comment to the picture on your page and put the link to this Facebook Page and our Website: https://www.facebook.com/cryingoverspiltmilk and www.cryingoverspiltmilk.co.nz so others can find out more. (Please note the National Infant and Child Gastric Reflux Awareness Week logo is copyright and may only be used with permission from GRSNNZ. Permission is granted as above for the use of Personal Profile Pictures only. It may also be shared using the Facebook Share Function.) Example in the comment soon. Many thanks. GRSNNZ Committee.

  • I'm slowly copying over the Awareness Week happenings to the Crying Over Spilt Milk website so we don't lose them. You will also find some of last year's publicity and stories there. Here is Day 1.

    My first child definitely had very few, if no signs of gastric reflux. I can’t even remember her spilling much – mind you, she is 22 years old. Three years later we had another daughter, born 13 days late, who decided she should then enter the world in a rush. She became unsettled at about two...

  • Hi.

    Just wondering people's opinion or feedback on how they get their baby to sleep?
    My GP wants me to let my 5 month old 'cry it out' but I just don't think it's the best idea for him. At Present we feed him to sleep.

    Thanks

  • Gastric Reflux Support Network NZ shared Mum 2 Mum's photo.

    Just sharing this back to our timeline again as this was a perfect way to promote National Infant and Child Gastric Reflux Awareness Week.

    The logo and Awareness Week is not used to sell a product or promote the business.

    It links back to our website and Facebook page so that users can identify that the logo belongs to the Gastric Reflux Support Network NZ ,and seek support and information.

    Top points Mum 2 Mum.

    Today marks the first day of "National Infant and Child Gastric Reflux Awareness Week" - here at Mum 2 Mum we are not strangers to refluxy and spilly babies and we we know how hard it can be as parents some times. If you have any concerns about your infant or child's health or think they may be suffering from Gastric Reflux, please contact a healthcare professional - if you wish to learn more (from symptoms to real experiences), please take a look at the national gastric reflux support website: www.cryingoverspiltmilk.co.nz or check out Gastric Reflux Support Network NZ :)

  • Copyright: The National Infant and Child Gastric Reflux Awareness Week logo/graphic is copyright to Gastric Reflux Support Network New Zealand and may only be used with permission from GRSNNZ.

    During National Infant and Child Gastric Reflux Awareness Week 2015 the logo has been used without permission and in some cases to promote businesses.

    Crying Over Spilt Milk and Gastric Reflux Support Network New Zealand for Parents of Infants and Children Charitable Trust does NOT endorse any product, business, health professional or treatment as there is no one correct way to treat or parent our infants and children with gastric reflux.

  • Gastric Reflux Support Network NZ updated their cover photo.

  • #NationalInfantandChildGastricRefluxAwarenessWeek Story 5

    I just looked back and re-read the archived version of daughter number 3's story. This is the edited version of the end of it which might be useful for those dealing with Child Gastric Reflux

    At the time of writing this, she was almost four years. She was almost seven before she had her Nissen Fundoplication surgery so it was not something we rushed into.

    "We have just reduced and stopped her medication to determine if she still really needs it, and she may be referred for a surgical opinion if reflux continues to be a problem. She does seem to still have reflux though, and we wonder how long she will be able to stay off medication.

    Some of the ways she describes what she feels are: "my tummy is hot", "my tummy has sick in it" and "my tummy feels sore", "sick" or "unwell" as well as the obvious sounds of refluxing occurring and sore throats.

    I have never been happy about the thought of surgery to cure her reflux, but over the last few months and with all the research and reading of other's stories (both negative and positive) I at last feel peaceful about this possibility. Whatever happens now we know that reflux is likely to continue be part of her life, but that as she gets older she will be able to tell us more clearly what is happening."

    Written by Roz, Regional Coordinator for © Gastric Reflux Support Network New Zealand 25/01/2004.

    Roslyn Ballantyne, National Coordinator, Gastric Reflux Support Network

  • #NationalInfantandChildGastricRefluxAwarenessWeek
    Please share one piece of advice that has helped you cope (no medical advice).
    Remember national guidelines for sleep are on the back, flat and in their own space.

  • #NationalInfantandChildGastricRefluxAwarenessWeek
    Let's play a game.
    Put in a comment on this post a word or short phrase that has something to do with gastric reflux for you.
    And sign it with your relationship eg mum.
    Please keep it to one description per person as we will potentially have 100s of replies.

  • Gastric Reflux Support Network NZ created an event.

    Come and join us for morning tea to celebrate National Infant and Child Gastric Reflux Awareness Week in Christchurch. If you are not already a @[199074539208:274:Gastric Reflux Support Network NZ] or @[1569415393340472:274:Spilt Milk] member (with a completed membership and confidentiality form), and are attending for support with your infant/child with reflux or who spills or is irritable, you will need to complete one of these forms on the day. Please contact us for your personal invitation.

  • #NationalInfantandChildGastricRefluxAwarenessWeek Story 4

    My first child was a dream, eat sleep play.

    My second baby was a nightmare! Screaming the moment he was born. Sleeping upright on my chest for ten weeks!

    We couldn't find an answer, losing our minds! Five doctors later, high doses of medication for gastro-oesophageal reflux disease and specialised formula we had a baby we could cope with, only just.

    He spilled until one and a half, was on formula and medication until three years and is now a beautiful amazing boy at 8 years.

    It was worth every minute of personal pain and we risked it again by having son number 3 who was a dream like the first.

    Keep your head high, things will be okay, struggle through but never give up!! Your baby will grow into a beautiful human being.

    Melissa, GRSNNZ Member

  • We need 3 more short stories or articles for Awareness Week. Please use the Contact Button App or private message the National Coordinator if you are a member.
    Thank you.

  • I'm not sure if we were clear enough yesterday. :-(

    If you want to promote National Infant and Child Gastric Reflux Awareness Week or if your business or organisation has been asked to do so by someone other than the Gastric Reflux Support Network NZ, please share one of our posts unaltered without any links to any other page, group or business other than the links in the comment below.

    If you would like further information on National Infant and Child Gastric Reflux Awareness Week, please feel free to contact us using the Contact Button App on this Page. Do NOT accept information from anyone other than GRSNNZ.

    GRSNNZ has been promoting National Infant and Child Gastric Reflux Awareness Week for a long time and has been given funding to do this. It is linked solely to them with their website, and the Awareness Week Logo/Graphic is owned by GRSNNZ with the trademark baby, organisation name, slogan and colours. Permission must be given or sought before it is used other than by sharing a post unaltered as stated above.